November 2024 chemo starters

You’re welcome.

I had my flu jab but the GP was refusing to give me the covid one for free (said I didn’t qualify- er HOW??) so I’m having to be extra careful around people - wearing a mask when I go out etc.

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Hi, well that sounds doable :crossed_fingers:t2: I hope it all goes as smoothly for you and I’d love to be like that! I keep saying every day that I’m going to eat healthy as I’ll need to do that through chemo but I fail miserably each day and am comfort eating! :hear_no_evil: I still can’t believe chemo is coming! I must do what you are doing and up my water intake. Did you drink loads the day before? My only water intake is in copious amounts of tea! My first session is at 6pm on Friday- wonder if I should drink more the previous day too :thinking:xo

@flower5 thank you! This will be worth a look. I’ve no idea why Belfast doesn’t have cold cap. If I thought my hair would have no issues after, it wouldn’t be so bad but I do worry. Xo

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@arty1 thank you :purple_heart: Absolutely- the unknown is terrifying! The more I read on others experiences, I feel like the trial was just too risky. My chemo is st 6pm next Friday- what about you? I’ll be a bundle of nerves xo

@sam3 Wow 6 pm ! That seems late in the day !
Mine is at 1.15 pm followed by my herceptin jab which I’m not looking forward to

@shelbylou81 i hear you- I can’t believe the things that are just not mentioned. These are big things, especially for us as individuals! I think if my oncologist had given me the information about the spread out of my nodes, I wouldn’t have wasted the last two weeks wondering wether or not to do trial- seems like obvious information that needs shared with patient! X

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@krissykochanski I’m sure that’s not right ! You are clinically vulnerable so will be entitled to the Covid jab , I’d query that

@arty1 yes I thought it seemed late. I’d say there won’t be much decent sleep the night before for us- or maybe all week! X

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I asked at my appointment if there was any LVI but was told no , however the information wasn’t volunteered . I’m assuming they don’t mention it to try and reduce anxiety , if there is LVI but it’s worse if you find out afterwards !

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@louisea77 - I had my mastectomy in September and that wait has felt long enough . You imagine rogue cancer cells going on an all night rave throughout your body … well I know I have done until I was gently reassured (peeked from the ceiling )
What chemo regime are you having ?

@sam3 I know I’ll be awake on Thursday night … we are going to be shattered on Friday :see_no_evil:
I’m going to make sure I drink plenty of water on Thursday and on Friday morning .

I meant to load up on fluids the day before (yesterday) but for one reason and another it didn’t happen. They gave me a bag of fluids before my pre meds, injection and chemo this morning so I wasn’t too worried and have had a bit of a dry mouth since I got home so I’ve been drinking loads x

And re my COVID jab - know! My BCN got involved and they told her the same thing. It became a bit of a tiff between the chemist and the GP surgery so I gave up. I think it’s too late now the chemo has started?

Sorry if I’ve posted this in the wrong subsection of the thread - I find this platform quite difficult to navigate x

I had my Herceptin jab before the infusions and it really wasn’t bad at all x

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12 x weekly Paclitaxel and 18 x 3 weekly herceptin x

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Same regime I was supposed to be on but they changed me to nab-paclitaxel because I’m allergic to castor oil !

How are you managing so far ? X
I can’t take a bleeding antibiotic without side effects so I’m dreading it

@arty1 this is my regime. TC takes 21 days (3 weeks) On the first day of each cycle, you will have docetaxel and cyclophosphamide. Have 4 cycles then 15 sessions of radiation reduced to 5 sessions so each session worth 3. Hit me with it longer each session on chest wall collar bone and armpit xxx

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@louisea77 - it sounds like you are having SABR radiotherapy… it’s more intense but targeted more to the area. I dont need radiotherapy but my father had it last year for his lung cancer (he sadly passed in April ) and tolerated it very well x

Gosh that is a late appointment! I gradually upped my fluids over the week and then on the day itself - mine was 3.30pm. I found that I was thirsty afterwards so it was easier to drink lots of water! Have a relaxing weekend.

PS healthy eating has gone out of the window in the last couple of weeks!

I am now sitting in the hospital waiting for a CT scan and the nerves have kicked in big time. I was doing ok but it’s just brought everything back. :relieved:

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@flojo ooh what’s the ct scan for ? X

They did one before surgery but they wanted to run it again as it’s been a while and to check the treatment progress. They assured me
They hadn’t seen anything last time. But can’t help but worry…

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