@flojo ah ok , don’t panic , it’s standard to check . But scanxiety is definitely a well researched phenomenon! I know I’d be feeling anxious too … it’s because we’ve learned not to assume everything is ok since having cancer so we are just primed for bad news now … and I think it takes us back to when we had our mammograms and got our diagnosis … so we associate scans with our diagnosis xx
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Thank you. I had a CT and bone scan originally. The hospital automatically does a CT at the start. But you are right. I then have to wait for the results so worrying days ahead! X
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I booked my covid jab at a local pharmacy via the NHS app. When I went for the appointment the nurse asked why I was entitled to have one for free and I said I was starting chemo. I would challenge your doctor or try to book directly. The .gov website says “Those undergoing chemotherapy or radiotherapy”: Who’s eligible for the 2024 COVID-19 vaccine, or ‘Autumn Booster’? – UK Health Security Agency
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@flojo I’m actually envious of your scans … bizarrely as I worry a lot about spread but they won’t scan me as my lymph nodes were clear … good luck with the scan and then chuck it in the “f@ck it bucket “ until you get the results xx
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Thanks. It’s done. It was terrible because they couldn’t get a vein to start with because of my picc - so my arm is now even more bruised.
You are so lucky not to have had your lymph nodes affected. That’s got to be a massive positive.
Oh well, that’s it for a few days hopefully! Feeling a bit fed up now.
Enjoy your concert! x
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I know but they wouldn’t listen. I feel sick today and tired so I haven’t the energy to contest it again right now. When I feel better I will but I’m not sure if I should still have it now having started the chemo already. Does anybody here know?
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I felt fine last night but just could not sleep. This morning I feel a bit sick. Waiting for the anti sickness tablet to kick in. Think I’ve got diarrhoea on the way too.
You may be fine. The nurse in the hospital told me that the IV antibiotics I was on for the infection make most people sick as a dog but I was fine. We’re all different x
@krissykochanski lots of ladies having chemo have their jabs during it … I think they advise you not to have it when your immunity is at its lowest . My mum had hers during chemo x
Personally I’d book a pharmacy appointment and just say you are having chemo x
If the sickness gets too much ring the number on your red card - don’t suffer in silence x
@flojo such a lot to deal with first thing on a Saturday 
be kind to yourself today x
I guess I’m lucky , my surgeon is still bemused I had any symptoms as my invasive were all under a cm and didn’t even show on the scans. They found one in the biopsy but my whole boob was full in every part right to the nipple with high grade DCIS … my surgeon keeps reiterating to me that they “caught it early “ You don’t really feel like celebrating though when you’re missing a boob and facing chemo
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Ah thats useful to know. Thank you.
The nausea is only mild right now. The tablets they gave me worked really well yesterday - I should have taken one when I first woke up! X
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@krissykochanski They told me to ring fir any side effects that were unmanaged… so definitely ring if the sickness gets too much .
I’ve been told I’ll have metaclopromide but I can see them having to change that as it doesn’t usually work for me .
I will. Thank you. I’m not one for suffering in silence lol!
Is metaclopramide an antibiotic or chemo? Sorry it seems the chemo brain seems to have kicked in early!
Edit: oh, just looked at mine. Doh!
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Can anyone who has already started manage my expectations about what I will realistically feel like doing after my first dose of EC? Due to the change of start date I’m going to be on my own with the kids (8 year old twins) for a few days after the first session, am I likely to feel up to getting them ready and driving/walking them to/from school, or am I best to enlist some help?
I didn’t feel too bad. No sickness, but just really tired. I’m not sure I’d have been up to driving safely though. They advised me not to drive to the hospital for the chemo until I knew how it affected me. I had my treatment on the Friday afternoon and was tired until Wednesday, when I was really tired (think it was the steroid dip). On the Thursday, I was much better. I’d say enlist some help if you can until you know how you feel. x
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@flojo I’m going to have to drive on my second lot which is worrying me as the hospital is half an hour away as husband is working from 3 … I might see if I can get an earlier appointment.
@flower5 Id say enlist some help if possible x
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Hello all
Im a September starter who reads the chemo threads. Ive had 3 lots of EC and Ive moved to paclitaxol now. I have 2 boys and i work (normally) in hours that allow me to do the school run still for my youngest. First EC i felt relativity normal. Honestly just tired but some of that was pre chemo no sleep nerves. Very low level nausea for a few days but honestly didnt really notice it …until it lifted… just a bit ‘not myself’
I had treatment on the Monday and drove on the Tuesday no issues. For me EC did build in my system and I am mardy about sickness so I tried to head it off. My team were very pro active. They dont want you to have any side effects. I moved from metoclopramide anti sickness to cyclizine for second EC and then another stronger one since. They have alot of tools in their kit!!
Everybody seems to have slightly different experiences but my first EC was fine for looking after kids, dog etc.
Wishing you all well and sending love… xx
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Yeah they dont seem to be working for me either 
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@krissykochanski ask for some different ones , I was prescribed cyclizine during my pregnancies for my hyperemesis and it helped , baring in mind I was so ill I was in and out of hospital and on drips but when it eased a bit the cyclizine took the edge off and meant I could function
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@nellyh Thank you - it helps to see the experiences of others who are a bit further a long this road x How are you getting on with paclitaxel?