@flower5 I’m not sure on cream but that sounds unpleasant, I’m horribly bruised from all the cannulas …did you have extravesation ?
If not and it’s just bad bruising I think you need to ask your consultant for a steroid cream .
My mum is still in hospital on the cardiology ward . Worried about her now . They’ve shocked her heart twice to try to reset it but it hasn’t worked , then she had hours where it resolved and now her attack is back again … I suspect they might get the ablation done in an attempt to try and stop it
@flower5 unfortunately they don’t do it at that hospital so I’m not sure if she’d be transferred or whether they’ll try and get her heart rate down with other meds . I’d texted her asking if the dr had seen her and what was the plan tonight and she was snappy saying I was just worrying her and I should be cheering her up … this irked me as I’ve literally just had my chemo cycle on Thursday and the side effects are crap this time… I know she’s probably feeling stressed and frightened though
I’ve decided to shut up and ill
check in with her in the morning
Better news today , my mum had a good nights sleep and her heart slowed down …
I on the other have feel like I’ve been run over by a bus … cycle 3 had absolutely floored me I literally can’t get out of bed today
Hope you start to feel better soon! We just have to take each chemo as it comes because I’ve had some that have floored me & other times I haven’t been as bad!!
It’s good to hear that your mum is doing better & had a settled night. Sometimes It feels like it never rains it pours so at least hopefully now your mum is on the mend you’ve not got that added stress especially when your not feeling the best yourself.
Get some rest & hopefully after getting some rest today you’ll start to feel better by the day x
@shelbylou81 it’s weird isn’t it … cycle 2 was really doable but this time I feel wretched
@flojo I think I’ll need a dose reduction as the neuropathy has hit already and is bad , I’m glad you are feeling better … are you going to ask for a dose reduction before the next one ?
Mum is still ensconced in the cardiology ward , her attack started up again and lasted a few hours and they stopped her heart twice to try and break the rythym but it didn’t work … it’s all very worrying and my poor mum is understandably very upset . She’s had this all her life and never had to be in hospital because of it
Bless her. Your poor mum. It’s worrying when you can’t just jump in a car and be there, I imagine. It must be quite scary for her.
I’m definitely going to ask what they can do to make the next round more do-able. It’s been a boost feeling better today but I’m not sure I can go through it much more. My finger has come back to life though!
@flojo I felt like that after cycle one … I just thought , I cannot go through this again ! It’s so nice isn’t it when you finally feel human
Mum is 4 hours away so definitely no jumping in the car ! I doubt I could walk out if the house at the moment, Yet again I’m covered in the hideous rash .
Yes latest pic is another wig an Amazon cheapie !
@arty1 remind me what regime you are on please? I started Docetaxol and Phesgo (the nabs combined) yesterday. Feel fine so far but am on double the steroids that I was on for EC, so I’m very nervous of the come down…
@rfg I’m
On nab paclitaxel and herceptin (traztuzumub) three weekly … I usually feel great for about 36 hours afterwards while the steroids are still doing their thing but they removed one of my steroids from my pre meds as my cortisol levels are borderline lower so I felt tired and washed out this time then the side effects hit
@rfg not quite so don’t panic ! I’m also not on phesgo , I’m on straight up
Herceptin but everyone reacts differently … My friend was on nab paclitaxel and felt only ever slightly tired … I had long covid and a heart issue before starting so my tolerance was always going to be lower x
I felt pretty ok after cycle 2 tbh . It’s just that cumulative effect kicking in I suspect.
From what I understand Phesgo is Herceptin combined with Perjita (proper names end in nab). Think main difference is purely the administration as it’s an injection into the thigh rather than infusion? I’m docetaxol too separately via infusion.
Really tough you having health issues going into this! So hard. I’m so sorry.
It’s weird because I normally research the hell out of things, but I have been weirdly un knowledgeable about the details of my cancer and treatment. But am now diving into it to try and fully understand exactly what I have and the prognosis and the logic behind the treatment programme. Hence me asking you all lots of questions at the beginning because I didn’t understand all the differences!
@rfg the trastuzamub jab is just herceptin where as phesgo is a combined one . I don’t have any lymph node involvement so I’m wondering if that’s the difference ?
You may find you are fine with doxetaxel
Everyone is different x I suffered from fatigue etc before chemo so I was doomed
@flojo she’s still in hospital … The attacks are becoming shorter which is good and she had an echo yesterday to check her heart is ok so she couid be prescribed a tablet to take for the acute attacks … She wont be going home until the attacks stop but they are referring her for catheter ablation x
Hi all, hope you are coping as well as possible I dipped out due to feeling frap with chemo coupled with huge life stresses.
I’m getting third EC on Friday. My cancer was in left side. However I have pain in and around right lower ribs and soft tissue. It seems to move about! Has anyone had similar? I’m worried sick incase the cancer has spread. I’ve had no luck getting my oncologist but hope to speak to her tomorrow. I’m praying it’s an after effect of chemo but I just cannot settle x
Hi @sam3 sorry you have been having a bad time. have you had surgery? Or do you have the injections? I had rib pains that I put down to the jabs on my left side (my surgery side).
@flojo Hi, no I haven’t had injections. I had left side mastectomy and nose clearance in September. I’ve had two EC chemo and the third is on Friday. The pain is actually on my right side so my mind is going crazy! It’s not pain that requires painkillers but it’s more discomfort
this irked me as I’ve literally just had my chemo cycle on Thursday and the side effects are crap this time… I know she’s probably feeling stressed and frightened though
I literally can’t get out of bed today
I dipped out due to feeling frap with chemo coupled with huge life stresses.