HI all, hope everyone is doing ok.
Had my last chemo today 16 treatments completed and picc line removed thank goodness 
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Next phase will be 15 sessions of radiotherapy but not got a date just yet.
@art1 brilliant advise about thyroid and bloods I’ll see about looking into that 
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Interesting thought about thyroid, I’m underactive too, and I’ve already been chasing the doctor to review my thyroxine dose even before chemo because the anaesthetist for my surgeries said my TSH was too high. x
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@shannon27 They should organise that next echo soon then , do chase up if not… it’s awful really we have to keep chasing things up
I’m on herceptin rather than phesgo but I’m being stopped at 9 which feels scary …but a relief …
@flojo I got the chemo box and it was delightful , the moogoo cream is lovely and may be useful for the radiotherapy x
I think I’ll get the results when I next see the oncologist. I have a ct aorta booked in June and I’m praying my anyerysm hasn’t increased as it’s pretty life threatening when it gets to a certain size … I was born with congenital kidney defects which are linked to vascular defects and sadly the aortic anyerysm is linked …
@flower5 do chase this up and insist on a full thyroid screen , tsh , t4 and t3 too x Dud the consultant say what your previous TSH was ?
Congratulations! @stevie-puggle … another treatment ticked off … we are all smashing it ladies ! Xx
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Thankyou for replying it means a lot! I will look into these things if I don’t start to feel better about things soon! It’s just so weird after treatment! I have a bad chest again at the minute, it’s not really got fully better since my last round of chemo’ I had emergency chest x-Ray & bloods but it still isn’t any better so I’m back at the doctors tomorrow afternoon!
I know you would think with chemo & everything else that we would have lost weight …… but NO just something else to contend with on top of everything else! I suppose I shouldn’t moan as I know it’s a small price to pay in the grand scheme of things but it’s just another reminder of what we have been going through!!
You’ve been such a great support on this group so Thankyou for that xx
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I’m with you on the weight gain. I was 61kg at the beginning and 74kg on my last chemo yesterday I’m only 5 foot 2 so any weight gain seems to show straight away and makes me feel uncomfortable. Everyone around me is constantly saying stop worrying about that but when you look in the mirror and don’t recognise yourself anymore it’s easier said than done.
Hopefully now chemo is over I can get walking a bit further each day and eat a bit better once my taste returns to normal. For the last few weeks I’ve only been able to tolerate foods that aren’t particularly healthy. I can’t bare to eat fruit or salad only bananas.
Hope you feel better soon x
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I think it was 4.1, so only just above the optimum range
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Yes i thought they would do it before surgery so may get one before then 
will ask her next week. Yes i will be waiting for my pathology to come back to see whats next xx
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@shelbylou81 and @stevie-puggle we should have been warned about the weight gain … I might have then curbed my craving for mince pies and squirty cream over Christmas 
I don’t recognise myself in the mirror either … I look like a potato 
like you @stevie-puggle I’m only 5ft 2 … 
… I’m not fat I’m just short for my weight
@shannon27 I would think they’ll do this scan before surgery x
@flower5 Gosh if mine was 4.1 I’d struggle to get out of bed I think they need to up your thyroxine … mine is 3.67 and gp has upped it by 25 mcg
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Hello everyone just wondering if anyone has had the phesgo on there own ? Ive done the 6 tchp with phesgo but now on just phesgo until surgery. My leg is sore when walking where the jag was ive never had but have been doing alot of walking yesterday and today (jag was friday)
Has anyone found they have side effects from continuing phesgo ? Xx
Did anyone else take Lanzaprozole to control reflux during chemo and if so, are you having a hard time with reflux after stopping? I didn’t have reflux before chemo, but it’s awful now I’ve stopped the Lanzaprozole. Wondering if it’s a lingering chemo effect, of somehow linked to stopping the medication. x
Hi, I did, because of the steroids. I was then switched to Esomeprazole. I only just had my last EC yesterday so taking the stomach liner for a few more days, but in between cycles I did manage to stop taking it for a few days and it seemed to regulate itself within a couple of days. Sorry, doesn’t really help you I guess. You could ring the triage line and ask for advice?
I finally had my final chemo session yesterday. No ceremonial bell but instead we celebrated by getting the picc line out - yay! Still expecting all sorts of side effects, but the fact that I can start eating everything again and no more need to isolate in 3 weeks time is something to look forward to. Weird how the dread and misery of the chemo is already starting to fade in my mind. Respect to anybody having to face this horrible treatment!
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Hi xx been a long time since I posted xxx but been keeping up with the thread and been happy to read most of us are at the end of chemo xx I’m 6 weeks post chemo and 2 weeks post lymph node clear out xx 21 lymph nodes taken out and only a small area of scarring and no more cancer found scans are clear xx still radiotherapy to go and hormone treatment to go but feeling a lot more like myself xx
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Hi everyone, hope everyone is well.
I had my last chemo last Thursday and and my picc line removed the same day have any of you experienced a bit of a rash around that area it’s only just come up today a slight pinkish rash just in the area where my dressings were it’s not itchy or hot just strange it’s come up nearly a week after it was removed x
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Hello. I just wanted to say well done everyone on getting to the end of this bit of the treatment. @stevie-puggle and @couchpotato it’s brilliant to have the picc line out - and have a bath or shower without having to wear a cover! I hope you feel better from the last round very soon. @kd48 that’s good no more cancer found - onwards and upwards! Hopefully not too much discomfort from the node removal…x
It’s eight weeks this Friday since my last round and I feel MUCH better apart from the odd numb toes still. I’m on my second month of Letrozole and coping ok - not sleeping too well and a bit low. STILL waiting for a radiotherapy start and then Abemaciclib. I asked about going on holiday but apparently I have to have blood tests every two weeks for two months on Abemaciclib so I will have to wait a bit longer to make sure all is ok.
It feels like it’s being going on a long time now - it has…a year in June/July - and I’m weary of it all. But keep carrying on carrying on…! xx
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@flojo node removal definitely more painful than the mastectomy I had in November !!! Let me know how you get on with abemaciclib ?? I also have to have that with examestane !! I’m dreading the abemaciclib xxx
Has anyone had radiotherapy yet wondering what I should expect there ?? Xx
Also any hot flush advice ?? I wake up 2/3 times a night have to put a fan on ??
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Yes, I can imagine. I had both at the same time and it’s still quite sore. I’m also not looking forward to Abemaciclib although the surgeon was trying to convince me it was well tolerated - yeah right! x
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I had my first radiotheraphy yesterday, it wasn’t brilliant, they struggled to get me in the right position and that made the breath hold difficult. Hoping for a better time to today!
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How many are you having ?? I was told between 5 and 15 ?? I’ll find out on Tuesday how many xx
@flojo yeh it sounds a scary medication !!! I’ll have to have a good discussion about the side effects xx
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