Wow, you’ve still got a lot of your hair. Hopefully the crown will fill in quite quickly. My last chemo was 14 Feb. I cold capped for four of the six, then gave up as it was too sore but hopefully it has helped with regrowth. I’m not sure why it is so dark, but at least it’s not grey and curly - so far!!!
Have you tried putting anything on it? I bought some rosemary oil that I use occasionally and the shampoo I have is rosemary and mint - not sure if it makes any difference, or not… xx
I have some magnesium oil because I suffer from restless legs - has been terrible - but I’m not sure if I’m supposed to use it or not - must ask. I’m currently taking the pill in the morning but it makes me feel sleepy all day and I don’t sleep any better at night. I’ve also started getting more pains in my shoulder and arm and fingers on my surgery side since being on it but I’m seeing a physio next week. xx
Yes if i wear wooly hat i can get away with no wig and have a wee bit hair out the sides, i think im using everything rosemary oil, caster oil and a hair growth shampoo trying everything but my other body hair hasnt started growing yet so im assuming once that all starts growing it will maybe grow faster xx
When was your last chemo? I’m starting to get some body hair (legs and arms are still fairly bare) but happily (NOT), I have noticed some hairs appearing on my chin in the last week! Seriously!!! xx
My last one was the 14th march, i shaved my legs half way through treatment cause they were so long and not falling out so were hurting me but i still have no nose hair and yes leg hair doesn’t seem to be growing back either ! Think it always comes back quicker to places we dont wamt it too xx
You look fabulous that’s a lovely picture of you & you look healthy & happy.
I am so glad that I made it over here to Florida to see my daughter compete in worlds.
I’ve just found those little things difficult but I’m still thankful for all my treatment & that I am still here to make these memories!
I don’t like coming on here & being negative but sometimes I just need to have a moan to the people who I know understand what I am feeling the most!
I’ve been so grateful for this forum & everyone who’s part of it, it’s been very comforting through my treatment to have all of you who know exactly how I am feeling
Hello everyone. Update on me is my hair is coming back fairly quickly now and def started growing back before I’d finished chemo - which some around me questioned, like I was some sort of fraud and I needed to explain why to them! People are so weird (actually it was mostly my 2 sisters…).
I am sitting in bed on day 5 post double mastectomy with temporary expanders. Can any of you give me some wisdom on what to expect? It’s like chemo all over again in terms of wanting to know what’s normal and what’s not! At present the pain/discomfort is manageable with pain relief, but I get a sharp intolerable pain if I move in my left breast that catches my breath. It’s also very painful to touch that area - which perversely I keep doing to check it still hurts! I still have drains in and have a dressings appointment for Thursday.
What I will say is that psychologically I feel unexpectedly relieved that it’s done and I am out the other side of something so dreaded and feared, that came with so many difficult decisions!
Hi hope everyone is as well as can be xxxx
Is anyone here on tamoxifen ?? Wondering what side effects are likely ??I have to take it for a month until my next oncology appointment when I’m assuming they are switching me to exemetane xx
I also have to have 3 weeks of radiotherapy on my affected chest side and clavicle area xx
@shelbylou81 - no one is expecting any of us to “grin and bare it “ This is a place where you can be honest , rant moan , cry … what ever x
I feel like I appreciate things in a different light now … it’s fantastic you’ve been able to accompany your daughter … you must be so proud of her x
@rfg - I had done faint fuzz before my chemo finished ! Like new baby hair …
I’m glad to hear the op is over and you are recovering . I only had a single mastectomy with no expanders as I’m not allowed a reconstruction … I was lucky and escaped having drains too .
Have you started doing your arm exercises? I think discomfort around the area is also due to nerve damage that can happen during the op .
I have been left with odd numbness combined with sore ribs that side . It’s quite a major op really . I was going for small walks but obviously only had single mx… but I found I felt absolutely shattered for around two weeks x
Do contact the breast nurse if there is anything worrying you as they can arrange for you to be sen in clinic - I felt relief too once the op was done , Since diagnosis I’ve pretty much detached emotionally from my breasts and I’d have been quite happy for the other one to go too x
@kd48 I’m hormone negative so no experience with Tamoxifen , it might be worth while posting in the hormone therapy section of the forum for people’s experiences x
Yes I agree about them both going! I was given the choice of keeping the ‘healthy’ one as it had LCIS meaning dodgy cels, that could turn into cancer, but also could never turn into anything. I opted for both partly to eradicate as much risk as possible but also for the sake of symmetry! I am not massively optimistic that I will have success with the reconstruction side of things. So I am mentally preparing myself for going flat eventually. They keep telling me of the high percentage rate of failure of implants after radiotherapy (which is on the cards). But I’m giving it a go! Not enough belly fat for two Dieps (I should be thankful for that at least!), and using thighs would be desperate measure to my mind in terms of scarring on the legs. So in my head I am already planning g my glorious tattoo that I would have across my chest if I go flat. In fact I may do it anyway instead of having nipples tattooed! I feel so glad to have had it done. No more agonising!!
Hi all, just catching up. I finished chemo on 21st March and started radiotherapy a week and half ago, having 15sessions. I’ve been out on tamoxifen. My onc has mentioned me starting on Abemaciclib- anyone else on this? It’s for hormone positive cancer. The side effects sound horrific and I’d be on it for two years, tamoxifen will continue for at least five.
Sending hugs to you all x
Hi @sam3 I am on tamoxifen until my next oncology appointment !! Radiotherapist prescribed it to cover me until then I am also due to start radiation 15 sessions in a few weeks xx
My oncologist has suggested exemestane and the abemciclib !! There is a thread on here with people on it and it doesn’t sound fun so I’m unsure !! But a few people have said that they were started on 20 mg and couldn’t tolerate it so were reduced to 5 mg which seemingly has the same benefits ???
So I’m deffo going to ask about dosage and is it necessary to start on high doses ?? and make a decision xxx a lot of people also say they tolerate it fine xxx
How is the radiation ??? Xxx
How’s the radiotherapy going? I start next week for 15 sessions and I’m feeling quite scared by it all. I also have to have Abemaciclib after that. I have been on Letrozole for nearly seven weeks now and feeling more side effects. All in all, feeling a bit miserable about it all and the future. xx