Yeah i think mines is surgery related as yhey go in and cut a bit off the rib so they can attch the blood vessels.
Im in for my treatment today which is through the drip instead of the phesgo and they are struggling to find a vien 
the phesgo was nippy but easier to get than a drip xx
@shannon27 - well that would explain the rib pain ((winces)) - are you on kadcyla now ?
Hi @arty1 , how are you doing too?
Iām bumping around. Still recovering from radiotherapy and feeling sore and stiff from that and the original surgery. I was trying to work fewer hours, but this last week hasnāt quite worked out like that, so by Thursday, I was very tired and then a bit fed up. It feels like it has been a bit relentless now and still have Abemaciclib and bone infusions to go. x
Im on trastuzumab now until october/nov, she said i had an almost complete response so we will continue with the herceptin but they had an awful job finding viens in my hands, hoping its better next time 
what treatment are you on now xx
I am from Ireland , 44 and was told when a patient is under 50 Oncologists tend to opt for ādose denseā regimes -every 2 weeks rather than every 3 weeks. Seemingly we can ātake it betterā due to been under 50 ! Was recommended AC-T , 4 AC every 2 weeks followed by 4 Taxel every 2 weeks
Iām on the Wirral
I was 43 when all this started not long turned 44. I had paclitaxel every week for 12 weeks then EC every other week for four treatments . Nearly everyone I spoke to on the ward was having EC every three weeks I did eventually ask why mine was every two and they did say it was my age . Every two was harsh Iāve got to admit and at one point wanted it to be changed to every three weeks but they kept saying your doing ok keep going. I finished chemo roughly 10 weeks ago now and it does feel like it happened to someone else itās . Good look with it all 
Hi @flojo, just to say Iām a couple of weeks into abemaciclib now, and although itās early days Iāve only had mild side effects, and no sign of the dreaded diarrhoea. I hope you have a similar experience! x
Thank you for letting me know @flowers5. Iām collecting my drugs next week with a view to starting them at the beginning of July. Thatās really good to know! Fingers crossed. xx
Thank you -yes I agree every 2 weeks not for the faint hearted but once it explained to me -it made sense
Hello
Ladies - lifeās very hectic again as I spend all day on the rd doing the school run then work from home ā¦ I had a bone scan last Thursday a x got the results on Monday ā¦ all normal ā¦ whatever normal is 
@99649268roxy - gosh every two weeks would have killed me !! Even the herceptin my body hates
Quick question ??? Has anyone dyed there hair yet ?? Iām really tempted Iāve bought a Daniel field water dye that has no ammonia or peroxide in it ??
I think Iām gonna chance it 
If you do, let us know how you get on. Iām desperate to colour mine Iām sick of the sprays to cover grey
Im wanting to bleach mine 
let us know how you get on xx
@shannon27 @stevie-puggle I will xx my friends gonna come up in a few days xxx I donāt trust myself
Weird question but has anyone had a numb feeling in their leg weeks after Chemo finished. It started one week ago from my knee, up the outside of my thigh itās a strange feeling of numbness and when I touch it itās an odd feeling. If I walk about with bare legs it feels like Iāve walked through a cobweb .
Itās in my left leg my operation was on the left side my right leg is fine . I have got a phone appointment on Monday with oncologist but was just wandering if anyone else has had it I didnāt have it during chemo .
Hello. Iām so sorry I left this chat a long while ago but I did join a local community group for cancer patients on treatment or post treatment, those who have had and now in remission those bereaved by cancer and children who are affected by cancer themselves or family members. An amazing group and a supportive group of women with breast cancer many on the same treatment path as me. Although I didnāt finish the chemo I did the radiotherapy. My DX oncotype score was low so oncologist recommended medical menapause goserelin , letrozole, amebeciclib and zoledronic acid for bone protection. Thatās the plan Iām on and others in my support group too. So i havnt abandoned this thread because itās so important to support each other. I just wanted to come back and say im ok. Iām hugely supportive of everyone on this thread and wish you all the best . I just found it easier to talk in my local support group. Much love to you all. Xx
Hi everyone. Not sure how many of us still check in with the posts now, but wanted to bang on about Letrozole again, please!
Thanks to someone on hereās advice, I am now taking it at 5pm and my sleep has improved a bit (although with the heat and flushes at the moment itās a bit of a losing battle full stop!). However I am really struggling with just feeling stiff basically. In the mornings (or if I wake in the night for the loo) I literally canāt use my feet/ankles for the first few minutes. I have to shuffle until my ankles free up. Getting downstairs first thing is so bad! I wince all the way down and have to force my feet to work. I have the same with my hips/leg joints when Iāve been sitting for a while (especially after driving and getting out of the car - I sort of have to crank myself back to straight!). Iām 52 and whilst not having ever been a gym goer or a runner, I would have considered myself fit and healthy prior to this. Iām also feeling a bit stiff in my back and Iāve been blessed to have never had back problems before.
I just feel like Iāve aged 20 years! I feel gutted. Iāve beaten away the cancer but been left worse than I was before in so many ways beyond the obvious. Is this normal on Letrozole? Itās been about 8 weeks now of taking it. I was hoping things would start to improve. Oncologist said that movement would help but to be frank I am just bloody shattered all the time. I mean hats off to the women on here that still run etc throughout treatment but I am still floored from it all. I went from having never being hospitalised for anything and having no big health problems, to having 8 rounds of chemo, double mastectomy and now in the middle of radiotherapy. Iām just knackered to be frank. And I may kill the next medical person that tells me I can just go about my normal life during treatment! Grrrrr.
Anyway, the point to my post was to ask if I am alone in the stiffness and if indeed it is down to Letrozole. And if so what do I do! Do I just have to put up with it?
Hi everyone - apologies Lifeās getting in the way which is frustrating as I really need to factor in rest days !
@louisea77 - no need to apologise. Online isnāt for everyone and Iām glad you are getting local support . You are looking fantastic btw ! Is that your little one in the second photo ?
@rfg - I canāt comment on the letrozoleā¦ however my friend who is on it . Hates it with a passion . She said she feels like sheās aged twenty years on it and canāt even drive long distances now due to pain . Aches and stiffness 
it sounds Blimmin awful tbh ā¦
@stevie-puggle - did you get to chat about your leg stuff ? Is it possible itās neuropathy ? Iāve been left with terrible hip pain in my right side and mild neuropathy everywhereā¦ Iām hoping it will improve
@kd48 - did you brave the hair dye ?? Iām so done with grey hair too ā¦ Iām looking online for organic dyes
Bless you. you sound a bit weary and fed up. I donāt think that is surprising given where you are at. I finished radiotherapy about five or six weeks ago but I was totally knackered and had had enough at that point. It just feels that itās been going on forever. You just need to be kind to yourself - I keep getting told to put myself first.
Iāve been on Letrozole for about three months now and Iām not finding it too badā¦but Iām a fair chunk older (60) and have been through the menopause so I figure that I donāt have so much oestrogen to wring out of my poor body! I do wonder if it is the lack of oestrogen so much as the drug itself and my heart goes out to anyone thrown into a sudden menopause - the natural one was bad enoughā¦
I spoke to the oncologist last week and said I was really tired and she said the Letrozole wonāt be helping - I also donāt think it helps your mood.
If you look on the forum, there are loads of ladies who are suffering like you though - so they may have some ideas for how to get round it. Sometimes, I think a different brand can help - think the nurse told me that at one point. Iām on Accord.
I hate to also say it but I started a breast cancer exercise class through the hospital two weeks ago - a weekly session of cardio, weights and relaxation - and I do think it is helping. I feel much better afterwards and I am not so achy - I was suffering with aches in my shoulders, arms and hands but it is not so bad at the moment. Before that, I was probably much the same as many others - walking the dogs every day and doing stuff around the house and garden - never a gym-goer for sure! It helps doing it with other ladies who are like me - we are all levels of fitness, for sure!
I would say just take it easy though - anyone who tells you to get on with normal life has presumably never had to endure the treatment or they wouldnāt say it!
iām starting on Abemaciclib this week and dreading it! xx
