Thanks. Echo was fine but my PICC site is quite sore.
I’m having 12 x weekly Paclitaxel plus 3 weekly Herceptin for a year.
I’ve had plenty of time to get used to the idea but because I was in pain last night I just had a bit of a wobble.
This is a great place to come to when you’re feeling a bit wobbly. F&F have been great but it’s not the same as talking to people who really know how it feels.
I hope everyone is wobble - free this morning xx
I’m guessing from your name you’re in Sheffield? So am I but I live in Wales now x
@flojo Do you have any gum soreness? Yes I’m having 6 EC - I did ask why I’m not having another type of chemo as most seem to - I was told that in my situation the benefits of adding another type were minimal - but I must ask again. I have (or had as removed in lumpectomy) lobular breast cancer, and pleomorphic lobular across 2 adjoining tumours - a mix of grade 2 and grade 3 and some lobular in situ. Thankfully no node involvement PR and ER+ HR2-
Not at the moment, no but I think it is a symptom as are mouth ulcers. I have a horrible taste in my mouth which has been there for some time. I have a bit of sore back today so hoping that doesn’t go anywhere - maybe the injections. I had a very similar cancer to you but had a mastectomy because of the size of the main tumour and it had spread to a few of my nodes. Maybe that is the difference. We all seem to have slightly different treatment but I guess that is good because it is focused on us as individuals. I know chemo doesn’t work so well for lobular, but I was assured that it will reduce the risk of recurrence for me between 25% and 40%. .
@arty1 @mrso2 I’m starting to get hooked on Rivals! I’ve just turned 60 (old alert) so I feel very at home with the music and scenery - not the raunchy ones obvs!!
Well I’m a bit thrown now as when the breast nurse called yesterday to tell me the new chemo plan she said they’d get me in to see the oncologist before my start date so I could sign the consent forms , however I’ve just received an appointment today to see the oncologist anc it’s for 4 days after I’m supposed to start chemo !!!
This could mean my chemo is pushed back by a few weeks and will be nearly three months post surgery , really worried about it … I’m going in for my echo on Monday so I’m going to have to pop into oncology and see if I can sort it and if no joy I’ll go to the breast clinic … it’s thrown me now as the breast nurse said it wouldn’t change my start date and worse case scenario I’d sign the consent forms on the day
@flojo Im 52 so love all the eighties songs in it !
That doesn’t sound terribly organised does it! Hopefully they can sort it out. The breast nurse told me that oncology aren’t quite so organised as them - they have their own ways of doing things…My pre-treatment appt was basically go through what I’d be having, possible side effects and sign the consent forms. They were much more focused on treatment rather than anything else, so I’d have thought you would be able to do that beforehand. They sent me away with print-outs from the McMillan website. I hope you get it sorted on Monday. xx
@flojo yes it’s all a pita tbh … I had my pre treatment appointment … I’ve got my bloods booked in and pic line fitting and now they’ve done this ! I suspect A normal oncology appointment has been requested with no one noticing I actually start my chemo on 22nd 
Me too , it’s a fun watch that’s for sure :)) xx
So sorry things aren’t moving along the way they should be @arty1
Hoping they can streamline things for you so the treatment can start asap - big hugs 
We watched the final episode of Rivals on Friday , no spoilers but what a cliff hanger !
Speaking of Rivals I’m a face and body artist and we do a lot of high profile bookings and adult events , we were booked by David T and his wife to come along and paint the guests festival style at a private party at his home in September … I’m so glad he is as lovely in RL as I hoped he’d be , and not like Tony Baddingham 
he spent time chatting to us and sat down to be painted … I thought I was going to pass out I also painted Emily A who plays Sarah Stratton and she was so sweet and down to Earth , chatting about her new baby and even took our details .we had to pinch ourselves
Oooohhh !!
Wow, thanks for sharing , nice to have that insight and great to know of your talent too @arty1 xx
@mrso2 its the only time in 18 years I’ve been star struck we are massive Dr Who geeks and DT is my fave Dr after Tom Baker so it was like a dream come true … I was a nurse before I did this job … Sadly I can’t work while I’m having chemo as it’s too much of an infection risk 
Well … I popped Into the breast clinic but nurses were busy , so went into oncology … and lovely lady on reception said it was obviously an error and that she’d ring through to get it changed and that I’ll definitely be in for my scheduled chemo , so we’ll see! It seems I’m probably only getting five cycles unless that changes as they’ve got my end date for chemo as Feb 14th and then ongoing appointments for trastuzamub… Fingers crossed they get me in to sign the paperwork on time
Heart scan was difficult as I couldn’t hold my arm above the head and she said because I’m not healed yet she didn’t get brilliant pics … so I may have to have another . After traipsing round the hospital I was pleased to see my bp only went up to 116/69
Hi, lovely to hear from you!! glad you’re doing ok and they are sorting it all out hopefully, sounds like a lot of confusion?! Fingers crossed for a successful start day for you soon……. you’ll feel much better when it all starts I’m sure.
I’m doing ok thank you, the only real side effect at the minute is my skin on my face, it’s just really broken out in acne the last two days…… which in the grand scheme of things isn’t a big deal but I do have lovely clear skin and thrive on keeping it fresh and radiant (I work at the body shop, obviously on leave right now) so this is a big bummer for me. so il see how it goes, might even need to change me routine maybe?!
Apart from that, nothing else to report on yet…… I’m not sleeping too well, I do get acid reflux so quite prone to that, so that’s not helping but I’m still eating well and drinking and have been on walks.
Thanks for checking in…… how are you feeling today??
Xxxxxxx
@stevie86 blimey I haven’t had spots for forty years , that will be a real shock to the system if I break out in acne too , I can imagine it feels a bit horrific when you look after your skin especially when you work some with access to loads of lovely skin care products … you are right to be off work … all those cold and germy ridden customers coming in ! 
…
I’m so glad to hear you are not feeling too bad , it must feel a relief to get that first one out I of the way x
I decided to redecorate my bathroom to take my mind off things … like an absolute loon when I’m still recovering from a mastectomy
LOL! wow!! that will definitely take your mind off of it all🤣 have funnnn!! but don’t over do it!!
Hoping you don’t get the acne and also hoping it’s only a short term side effect, maybe it will calm down!!?? BUT if that’s my main symptom at the minute, I’m not complaining!!
I’m pretty bored to be honest, im so use to full time work in my shop…… I hate not being there. I know it’s for the best, I just hate sitting around. I might start some gentle yoga and meditation maybe before bed, get into a routine?! And I’m also scrapbooking…… which is fun!!
Xxxxx