Good to hear from you Meesh73. Hope that you continue to do ok. Am I right in thinking that you are on 6x FEC like me? I start tomorrow afternoon.
Timekeeping doesn’t seem to be a thing at my unit so with a 3pm appointment I expect to be there for a long time!
Good luck tomorrow Chaffinch. Remember all the good advice thats been given to us. Iwill be thinking of you and sending you a hug xc
Hi Meesh, I think I did do too much (physically and emotionally). I had my first cycle on the Monday and when I woke up on the Tuesday, apart from a little nausea, I didn’t feel too bad so got on with housework etc. I then crashed just after lunch and didn’t come back from that until the end of the week at least. We hadn’t properly planned our support for those first couple of days so I ended up worrying about my husband and my mum and my kids, which made me feel worse and which I now know to sort out beforehand next time! I was also worrying about why I couldn’t do more!!
Next time I’m doing absolutely nothing!!! Bring on the puzzle books ??
Thanks CK, when he said he was stopping the 5FU, I remember having seen someone on here only on EC so didn’t worry too much. He said the same, and that they don’t even give it in the US.
I hope it treats you well too xx
So the day has arrived for my first lot of chemo…I feel relatively calm and that’s not how I expected to feel?! Anyone else starting today? Now gonna try and have a piece of toast…appointment is 10 am xx
Hi SueW
Yes, always take someone with you for company, and better if they drive you too. They also get brews and tell them to take a magazine and nibbles. Both chemos passed quite quickly with my mates being there and rhey take your mind off it with the chit chat. I was chatthng to alk the others too, whereas I met a lady yesterday and she said no one speaks where she is being treated. I can see you chatting your head off too.xx
Goid luck Karana
I was calm but a little anxious which is normal. You will be looked after and talked through the process.
Are you having cannula? Remember to take some nibbles and wear loose clothing and sleeves and maybe leggings in case you need the loo and also as you are sat for a while.xx
Hi Reeboot
Yes, theres been a study and seminar by Christies about the ‘F’ and they are starting to leave that out now as its not really doing anything more but may give off more SE!
Too right, do nothing for the first few days after trearment and then concentrate on building body up for next treatment.xx
Morning everyone! Had a good night probably thanks to the lorazepam, although the Epsom salt bath and chamomile tea made a good start. I’ve woken this morning to a bit of headache, slightly dizziness and blocked nose. I’ve taken my steroids and also 2 of the Dom perignon. I’m also supposed to the ordansetron twice a day but not sure if I should taken now with the others, what does everyone else do? Had some porridge & stewed apple with cinnamon. Now just chilling on the sofa with a cup of tea.
Chaffinch, yes I’m on fecx6 like you. You’ll be fine I think it does take a bit longer the first time as they have to through everything with you and also sort the cold cap out to as I think you said you were having that? I took 2x ibuprofen and 2x paracetamol an hour before my appointment which I think worked, but take some with you in case you get delayed. My appointment was first thing so I do have less chance of delay. Good luck hope all goes well.
Good luck today Karana and mikala hope all goes well, we’ll all be thinking of you!
Good luck everyone starting today. Meesh the donperidone where my extras and ondestron (or whatever they are called).were the ones i had to take. You can only take 3 donperidone in a day so take care with them. Ring your nurses and check how you should be taking them. Big hug xx
Thanks Ali, they’ve given me a sheet with everything on and told me take the lot. It also shows Domperignon two tablets four times a day?! Did you take all your steroids & ordansetron together or space them out?
What a difference a day makes!! Day 8 and i have had a great sleep and feel almost normal today!! I got mouthwash and gel for my sore mouth yesterday and cyclizine as a diferent anti sickness to don peridone. They have done the job. My mouth feels better and i havent neded a tablet since yesterday afternoon. Thank You God xxx this time last week i was getting ready to go for my first treatment!!!
Meesh i have messaged you xx
Glad you’re feeling better and got your meds sorted out. It’s reassuring to know that those of you who had treatment last week are coming out the other side now. Guess we’re all living in 3 weeks cycles now!
Morning lovely ladies
Just been reading through and thanks for replies. And advice ?
Good luck to today’s new starts and let us know how you got on later
Hope everyone had a great day x
I just got out the shower drinking coffee from my travel mug not even dressed and the first thing I do is pick up my phone and come in here
I feel like you are all one of my lifelines like on who wants to be s millionaire you are my CALL A FRIEND xxx?
Hope everyone is ok today. Good luck to those starting chemo today. It’s very daunting going into that first appointment but remember it’s the start of getting rid of that cancer. Chemo drugs are your friends. That sort of drunk and disorderly ones that always seem to get you into trouble. But friends none the less.
I slept well last night and feeling ok this morning. Still tired but feeling a lot more alert then I have recently. Taking my 3rd injection shortly when might go out for a little walk in the fresh air.
Cassie x
Well I’m home and it all went quite smoothly…bit of trouble getting cannula in but that’s quite normal for me!! I’ve put my sea band on but feel ok at the minute…just a bit of da dizzy head!!! Just got meds out of my bag and all quite confusing…a sheet telling me what and when I need to take stuff may have been helpful but got nothing!!! Been told to take a anti sickness (Ondansetron) later today and start on Steroids (Dexamethasone) tomorrow then have Domperidone & Dioctyl if I need them!!! I’m hoping I’ve got that right??!!! Just had my first bright red wee!!
Hows everyone else doing?? Xx
I’m just off now, expecting a delay appointment is 3pm. Already have a headache.
Karana well done you x chaffinch good luck x