I dumped my adult colouring book found it far to boring but got some from the works as they are cheap
I got a Disney, a marvel but best of all a unicorn and fairy one yay ? xx
Hi ladies, some great tips and tricks here - thank you! I’m on Day 8 EC (one down, 7 to go) and feeling nearly normal. I was all stocked up for sickness and diarrhea (such glamour…) and instead got heartburn and constipation. Both passing now, thank goodness, thanks to bicarb, making a big old nest of pillows to raise my head up at night and Sennakot, which I checked out with the BCN. She said it was often the smallest things that were the most worrying - how true. I’m still wide awake at 3.30am but no longer noshing in the wee hours - well, not much anyway! All the best to everyone starting and continuing this week.
Sue I swear by v pillow so much easier than trying to build a nest with loads of pillows x
I got satin cases of ebay cheaper than the shop just check measurements as pillows come in different sizes x
Hello ladies
Not been on for a few days been getting myself prepared for starting chemo tomorrow and Thursday
Hope your all doing well x
Patchworkgirl
The Tommy Tippee digital thermometer from large Tescos is good…and sometimes half price!
A barh soak wirh Epsom salts is good for rhe aches and pains. I was in such pain from aches last Saturday, I soaked that night and Sunday was gone.
Reboot
Im on 3xECs first. I asked why not FEC and it has been researched by Christies that the F doesnt really do anything more than EC but gives more SE effects so sooner or later the F will be stopped in most hospitals.
Hope it treats you better.xx
I could’ve done with a v pillow when I had my surgery as I found it uncomfortable laying flat. Instead I managed with 3 pillows and that was ok. Wasn’t given any injections just given tablets to disolve in water in the morning (something beginning with D, demezarole? can’t be bothered to go check the name) plus ordansetron (which I’ve just taken with some veg soup), lorazepam for the next couple of nights and then the Dom perignon one. Still feel ok at the moment just have a bit of a headache, probably from the cold cap but it’s not bad enough to make me want to take anything. Last dr foster tonight wonder if I’ll be able to stay up to watch it. Not been all that impressed with it but need to see it through to the end now! Thanks everyone for the great advice it’s nice read experiences of those a little ahead of me. Hope you’re all doing ok.
Reboot ok did you try to do too much to start with?
Patchwork, I don’t have much luck with thermometers either. Hospital provided mine but the first one didn’t work properly, the next one is fine, but the one at the hospital broke today when they used it on me oh and so did the first cold cap I tried!
Sam34, good luck with treatment tomorrow and Thursday, the cold cap was really ok after the first 5-10 mins. Wear some layers and take a blanket and also a scarf (although they did give me some towels). Also make sure to go the loo before you start, 3 hours is a long time! I did but then needed them to unhook me after my chemo so I could go again. Although it’s 3 hours i found it goes quite quickly, maybe because everything is new. They also came round to serve lunch about 30 mins before the end so that also took up time.
Ladies can someone sit with you whilst you having chemo ?
Sam good luck for tomorrow
Thank you all for continuing to share xx
Yes they can, my OH sat with me the whole time and we just about managed to do a crossword (him reading the clues out to me) which was nice especially as he hates puzzles & games. Most of the rest of the time the nurses are in and out. If you’re having fec then the nurses give the f&e parts by syringe into your line, then leave the c to drip through.
Thank you ? I got a queue of family wanting to come to stop me being bored they said lol
They fail to realise I am okay in my own company as long as I have a book to read and I can talk to anyone (including myself ?) x
Yeah my husband came with me for my first. My mother in law is coming for the second. I think i talked to the nurse most though whilst the drugs were going in.
Sometimes I think it’s for them too so that they know you’re ok and they feel it something they can do to help. You’re lucky to have lots of family wanting to go with you. I don’t live near my family (although they’ve said they would come anyway) or close friends but I have been so surprised and really moved through this whole experience that many other people came to see me after my surgery and also said they’d go with me if OH doesn’t want to go. It is truly humbling.
Hi again, providing things fo to plan, how long does each session last…my apt letter says 3-4 hours…is this right? x
First session might be longer as they have to run through information with you. Length will depend on how long the wait for appointment is. My first appointment was 8.30 and I think we left at about 2. Though should be less next time. I would say assume you’re going to be there for the day and plan accordingly. They’re very good with cups of tea and biscuits lol
Cassie x
I went in today at 9:00am and was home by 13:30 but I had the cold cap which makes the treatment longer. As you’re not having that it’ll probably be much quicker but I think it depends if you get delayed or not. Some of the others who’ve not cold capped would probably have more of an idea.
Thank you…fingers crossed it will be a case of a few hours x
I’ve been wearing them most of the time. Was too worried to take them off lol. Might wear them tomorrow and take them off in the morning. I haven’t taken and anti sickness tablet since Sunday night and haven’t felt sick at all so I might chance it and see what happens
Cassie x
Meesh I agree they all said they want to come as they feel helpless and like they can’t do anything to help
I shall ask them to cook stews and cottage pie lol tell them that will be a help.
I am meeting nurses Tuesday so expect to go through everything then in advance of Friday
Thank you for your help ladies big hugs everyone and good luck to you all with treatment coming up xx
They are fabric and I do take them off to shower then put them straight back on lol