October 2017 Chemo Starters

I went out today without my wig following brave the shave x wore heavier make up than usual but loved my wash n go style x

Well done Sue that was really brave ?

 

Meesha im just finding the thought of wearing a wig strange…was fine trying them on (although did also get a fit of the giggles) and managed to pick one a similar style to my short hair…but now I’ve got it I don’t wanna look at it!!  Was chatting to a friend this evening who is a hairdresser who has offered to style/trim it for me so it feels more like my own but think I’m gonna wait til I need it ? 

 

Its a week tomorrow since my first lot of chemo…any ideas when the hair will start leaving me?

 

xx

Well done Sue that was really brave ?

 

Meesha im just finding the thought of wearing a wig strange…was fine trying them on (although did also get a fit of the giggles) and managed to pick one a similar style to my short hair…but now I’ve got it I don’t wanna look at it!!  Was chatting to a friend this evening who is a hairdresser who has offered to style/trim it for me so it feels more like my own but think I’m gonna wait til I need it!

 

Its a week tomorrow since my first lot of chemo…any ideas when the hair will start leaving me?

 

xx

Has anyone else got intense tingling in their finger ends and lips? I’m feeling odd tonight again after a good day, not sure if I’m just over tired. Just worried about neuropathy not sure if that is side effect of FEC or not?

I got my pack today from chemo nurse and it says the following
Numb or tingling hands and feet
This is caused by the effect of docetaxal
Tell your doctor if you have these symptoms and they sometimes need to lower the dose and symptoms should slowly improve after treatment is completed
Talk to your doctors if you are worried

Not sure if this is relevant to you but all I can find in my pack xx

I had a really good day yesterday and hoping that will continue!  My fingers sometime feel a bit tingly Meesha but doesn’t last constantly!  Does anyone else feel panicky about planning things?  A friend asked if I wanted to go and see Neil Diamond at O2 next Tues and I nearly had a panic attack thinking about it!  I’m normally very confident…as it is I can’t go as hubby away but really don’t think I cld have managed the traveling and the crowds!!  Am I gonna turn into a hermit for 6 months?  

 

Hope you ladies managed a good nites sleep and those of you starting on Friday are keeping calm and drinking lots of water!! Xxx

Thanks SueW, I’m not having the Doxatel I’ve got 6 sessions of FEC only. I think you do get tingling with FEC but I don’t think there is the same neuropathy risk but it was that doubt that worried me last night. I couldn’t type in my phone it was so bad. I wonder if it’s because my hands had got too warm, I’ve had cold hands and feet since treatment. It’s much better this morning after a good night’s sleep I hit a wall last night after a busy day I think.
Karana don’t worry about panicking, going to the O2 would be a major undertaking at the moment and full of infection so probably just your body’s way of saying I don’t think so.
I’ve booked a small local concert in November for our anniversary and I thought twice about that, it should be in my good week and we chose seats st the end of a back row in a block so no one could sneeze on me from behind with hopefully a single empty seat next to us!

Had my 1st cycle of chemo and ended up in hospital! I’m ok now!! but my oncologist came to see me and said the 1st cycle of chemo has showed affect to my liver and will be checked before next chemo…

What will happen if I can’t carry on with treatment I’m scared!!!

Why did you end up in hospital Sam?

Sam34, sorry to hear you ended up the in hospital and that chemo affected your liver. Try not to worry, it may mean that they just need to adjust your treatment. The liver is able to regenerate itself so maybe that’s why they’re going to check it again before your next treatment?

 

Karana, I’ve also been really nervous about planning anything! I’m avoiding booking anything for definite and have been a bit like that since my diagnosis. I have a couple of Xmas do’s for work that I’ve been invited to. I don’t want to say no, but don’t want to say yes either. I’ve just told them not to book me in for the meal, but that I may turn up for a drink on the day if I feel up to it. Our friends have also invited us over for dinner this Saturday and I have said a provisional yes to that too, although I think I’m definitely going to feel up to that now. 

It is difficult isn’t it Meesha…I’ve always lived by having things to look forward to…now it’s not that easy!!!  I’ve just booked a lunch date with a friend for next Thursday!!!

 

poor u Sam…but stay positive and I’m sure they will sort your treatment out…we just have to trust the professionals!!!

 

xx

I couldn’t open my bowels and suffered severe stomach cramps and low temperature ? so was admitted last night but I’m home now and feeling 80% better xx

Sam get well soon x sorry you have had a tough time

I have a concert booked at the 02 arena on 16th December to see Shaggy and Maxi Priest I mentioned it to chemo nurse as on 3 weeks program i would be due chemo on 15th but nurse said they could delay it to the following Monday and I should be well enough to go so get my eyes and fingers crossed xx

Hi everyone, hope you all had a positive day.
I just saw this on my twitter feed and thought it might be interesting to share following our posts about looking after nails. I went to their website and it is pretty expensive stuff but seems it is worth knowing about.
Nail related quality of profoundly improves with polybalm - UK RCT reveals conta.cc/2ym3Xsi
Or their website is polybalm.com/buy-polybalm/

Still waiting and waiting to know what is happening when - it is sending me a little loopy, but decided to book in the chop for my hair anyway - next Tuesday morning. Fingers crossed it will fit in with everything else! Teeth done today so slowly working through the great to do list I have picked up from you wonderful ladies.
Wishing everyone a peaceful night.
XRuth

Sorry to hear that you had to go to hospital Sam34. I hope that you feel better soon.
I’ve still got this annoying tingling in my fingers and sometimes around my head particularly on my lips. Hopefully it won’t stay because one of the pleasurable things that I have promised myself is to do some of my adult colouring books this winter!
Otherwise not a bad day, afternoon better than morning even did some ironing and cooked the tea!

Evening everyone! Hope you all had good days.

 

Sam34, good to hear you are out of hospital, hope you’re feeling better soon.

 

I’ve had a good day today! I did my yoga and meditation again when I got up this morning, not sure if this is helping but I didn’t feel anxious or shakey. I popped into work for 2 hours as I had an interview for a promotion, it was good to see a few people and show my face. They called me this afternoon to let me know that I got my promotion which I was really chuffed about as I was worried they may overlook me. It’s also the first bit of good news I think I’ve had since my diagnosis!

Congratulations on the promotion Meesh ?

Well done on the promotion Meesha ?? it’s always good to hear cheery news!!

 

Hubby made me try wig on today…it wasn’t as scary as I thought and he took a picture which he has shown to a few close friends this evening…means I’m one step closer in accepting it into my life!! Xx

Thanks Karana, Ruth.

 

Well done karana with the wig, hopefully you won’t need it for a while!

Morning ladies hope you all had a good night x

 

Hows your tingling today Chaffinch?  Sam are you feeling any better?  Meesh hope your still on a bit of a high ?

 

Hope tomorrows starters aren’t getting too nervous…remember to drink lots before you go and during the day…I definitely didn’t drink enough and paid for it so will up my intake of water next time!!  I struggled drinking bottled water as it tasted really metallic and eventually realised that tap water tasted fine…weird as I never drink tap water!!! Xx