First rough night for me last night. Have felt nauseous all night. Took an extra anti sickness at 4am which helped a bit. Got a gurgling tummy and just feeling rough. Day 4 !
Hope you lovely ladies feel better today x I can’t offer any practical advice because I don’t start until next week but can send you a hug xx
No snti sickness injections patchwork just the gscf injections in my fridge. To be honest i felt like fish and chips last night but now realise it was a mistake!! Glad your sickness is subsiding xx
Taste buds well and truly knackered! I love a slice of hot buttered toast. Just had one and it tasted of nothing! Very disappointed. Watching Saturday Kitchen and the Hairy Bikers got me feeling hungry but thought I’d better take it steady and stick with toast.
Cassie x
Patchwork i am having 3 FEC then 4 docetaxol with permuzetab and herceptin. They gave me 3 days of sntisickness and steroid tablets to bring home and 7 GCSF injections. They also gave me 7 days of anti sickness tabs in case i need them. Anyway just had potato waffles with eggs and beans, cooked by the hubby, and it was lovely xxx
I’ve had a jacket potato and cheese. Couldn’t taste the potato but cheese was ok. Especially with a smidgin of brown sauce on to add flavour.
Cassie x
I found Day 3 the worst to be honest, but I’m now on day 6 and felt back to normal this morning. My mouth’s started to feel quite sore today so although my appetite’s back, it’s soft food for me ?
Nausea and gurgling tummy from 2am ish for me and my mouth is gross. I wish i could take my tongue out, scrape it and put it back! Took one of the spare anti sickness that sounds like Dom Perignon but its not! Permuzetab is the new drug for her2 that has been available since April. This drug is the reason why i am having neoadjevant chemo (before surgery) and not adjuvant (after surgery). Hope everyone is coping ok. Xx
Patchwork I think I payed this on another thread but I bought a water infusion bottle the one you fill with fruit and I put frozen berries in the tube so as it defrosts it puts a subtle flavour into the water
I don’t know if it helps with taste etc as not started my chemo yet but might be worth a try xx they are about a fiver
Posted not payed autocorrect
I bought soup maker too so I can have lots of vegetables x
Hi Patchwork, no i wasnt given mouthwash but i bought biontene mouthwash and toothpaste which is super gentle and helping. I was her2+3 so drfinite for me. I went into menopsuse early and at 50 have been period free for 5 years and my fish test showed this. Hope your gurgling tummy improves. Try some cool boiled water - it helps me a little xx
Morning Ali how you feeling today ? X
Hi SueW, i am feel8ng ok thanks. Nausea has gone so just the sore mouth. Have been rinsing with warm salt water to try to heal it Jay. Patchwork hope you get your temp sorted. How are you SueW? Sending everyone a hug xc
Trastuzumad ( Herceptin )
Pertuzumad ( Perjeta )
Docetaxel ( Taxotere )
Carboplatin…
Has any1 had this? It’s all new to me and like I say I see a lot of women on Fec-T which is very confusing,I start chemo Wednesday and to be honest I’m getting really scared! I’m having chemo 1st then surgery xx
Hi Sam can’t comment on yours Hun I not met chemo nurses yet
Ali glad your feeling a bit better
Patch I have got s thermometer but not opened it yet so not sure if it is any good though my friend a nurse did suggest I open it and take temperature every morning so I know what my normal running temperature is do to speak
The bottle is an infusion water bottle if you use that title for amazon search
But have seen them in Sainsbury’s and the range x
Thanks both Sues x
I start Wednesday too but don’t know what my drugs are yet. Seeing oncologist again on Tuesday. Have a few appointments this week. ECG at 9am tomorrow then talk and tour of the chemo unit. Onc on Tuesday then treatment Wednesday. Such a rock and roll life! Hopefully organized but having seen my dad go through chemo I am expecting the unexpected
Hi everyone, I’ve never posted anything on a forum before, so I hope I’ve done this right! I hope those of you who started last week are starting to feel a bit better. I’m due to start 6x fec on Tuesday 3 Oct. very anxious, read September starters and sickness seems to the main problem, especially if you don’t get the right Meds to take home. I just feel so unprepared. Is anyone planning to carry on working through their chemo?
Hi meesh won’t say it’s nice to see you here because obviously you would rather not but welcome x yes you have posted correctly
I can’t carry on working as I work at a School and my consultant has said as my immunity will be flow low to continue working is to risky x