So low not flow low autocorrect got me again lol
Hi meesh I’ve also been advised to stop work from Tuesday during chemo as I work with food and people,and to be honest I’d rather rest and get better I’m sure I’ll be off work now till march next year! As I have to operation after chemo xx
Hi sueW and sam34, not sure what I’ll do about work yet. I’m going to see how I go, the BCN said I’ll probably want to dip in and out of work and my employers are fully supportive. I’m lucky (or not depending on how you look at it) I can work from home so may just do that. Are either of you trying the cold cap?
Sam34, do you also start chemo Tuesday like me?
Hi meesh I start hormone therapy Wednesday and chemo Thursday,yes I’m having the cold cap ( worth a try ) xx
Thanks SueC, I went shopping today, bought ginger everything for nausea and sickness. Couldn’t find any ginger drops though what make are they? OH does all the washing so no worries about that (I’m such a lucky girl)! Just making some soup and I have a journal to keep notes. I’ve not been given any meds yet (apart from laxative sachets for afterwards as they mentioned they would give me ordansetron which can make you constipated?) is it normal not to have any meds beforehand?
Hi Sam34 that’s what I thought re: the cold cap. Didn’t think I was going to bother with it but had all my long curls cut short last week and love it so much think I’ll be more upset to lose it now! Not had short hair since I was 12. Also went for wig fitting on Friday in case it doesn’t work or I can’t bear it.
Meesh no cold cap for me my sister is doing brave the shave and we are shaving together on 9th October between us we have raised £1200 for Macmillan x
Thanks everyone, for the advice. I’ve found it really useful. SueC thanks will give them a call tomorrow although as I’m due to start Tuesday might be a bit late. SueW I really admire you for the shave and well done for the money raised.
Hi Meesh , i had first Fec last wednesday and apart from a bit of nausea, feeling tired and a sore mouth i am doing ok. Have had 1 day so far where i didnt get dressed and just chilled. I didnt have any meds before but was given 3 days anti sickness and steroids to take at home plus 7 gscf injections to give myself at home too (they jave been easy to do). They also gave me an extra 7 days of antisickness in case i need them. Start taking your sachets the day before treatment i would say as they didnt give me any but i have needed them. Drink lots of water and get your ginger biscuits in for nausea. I find if i eat, even if its just a little, i feel better. Re work - i am a teacher so wont be going to work but some people are working through chemo. I think it depends on your job and how you are feeling. I am not cold capping. Good luck xx
Good luck ladies having chemo this week. I am on day 4 of first chemo. Not actually been as bad as expected. Left anti Sickness tablet a bit late on first day but learnt to take it at first hint of nausea and it works fine. I was given the one that sounds that don perignon lol. Appetite hasn’t been great so just eating what I fancy. Had some hot pot and veg today which was nice. Not a full portion as I don’t want to overload my system but it was good to eat a proper meal. Mouth is dry and things taste strange or of nothing. It’s annoying but no real issue. Tiredness is my biggest issue it just wiped me out. I start the injections tomorrow which hopefully I’ll be able to do ok then should start to feel better.
Cassie x
Thanks Patchwork Girl and Ali49 for the feedback on your first treatments. It’s encouraging that you’re both doing well and feeling better, even despite your sickness Patchwork Girl. Does everyone have injections? They never mentioned any injections but I’ve found through this process that they like to drip feed you with bad news rather than give it to you in one hit, so guess I’ll find out Tuesday. I’m booked in for 9am and have been told to have a bit of breakfast beforehand, any recommendations of what to eat prior to treatment?
Meesh i eas advised to have carbohydrates so i had toast xx
Thanks Ali, I normally have porridge or eggs and was worried they might be too heavy so will try toast.
Best of luck Meesh. I start the following day, can’t sleep!
Thinking of you lovely ladies this morning and good luck for everyone starting chemo x
I have xb appointment with endocrinologist nurse at 1 for blood tests etc re my enlarged adrenal glands
Before mri on Thursday and kidney consultant next week
Xx
Ignore xb in. Middle of that sentence no idea where that popped up from lol x
Chaffinch17, I know what you mean. Sleep has been a bit on and off for the last week. I now just feel like I doze from about 1:30am and there’s no sleeping after 5am. Hopefully it will be better once we’ve started and not so anxious.
SueW good luck with appointment today, hope all goes well.
I’m off to work in a bit, no idea how I’ll keep focussed today and that’s without chemo brain!
Meesh before surgery (I booked it for school holidays) I carried on working until the end of the academic year and being busy most defineltly helped so hope your job keeps you distracted x have a good day
SueW yes I worked up to my surgery in August. It does provide some distraction if only for a brief time. The good thing with that was I was then signed off for 2 weeks so I could tell work. This time it’s a bit unknown, but I can only do what I can do! Are you all recovered from surgery now?