October 2024 chemo starters

Hi ladies, I am recovering from my 2nd round of EC chemo. I was admitted to hospital for over a week due to severe nausea and vomitting. I’m due to have my 3rd treatment later this week but I am very hesitant to go through with it again. Has anyone experienced a severe reaction to EC chemo? I honestly cannot go through the severe sickness again.

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I haven’t been sick on EC myself, but a friend of mine was admitted after her first cycle with severe vomiting. They changed her anti sickness meds and the rest of her cycles were much better. Have the Drs said they’ll give you different meds next time? I agree I wouldn’t be happy to go through that again if they don’t make any changes. There are loads of options of different drugs. From reading on here it seems the protocols vary hugely across the country. I had 3 different drugs at various times regularly over the first 4 days, plus a fourth drug which I could add in any time I needed something extra. I’ve seen some ladies on here have only been given one or two drugs :woman_shrugging:t2: I’m not sure what the reason is, but I’d definitely be asking about a change in meds for the next cycle. Maybe another option would be a reduced dose as I know that was mentioned to me as an option due to liver function.

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Hi @bigbird1 I had 2 cycles of EC with severe vomiting. They changed my medication and gave me a dose reduction for round 3 and it has been a lot better this time.

Good luck and hope they can find the right meds / chemo dose for you.

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Yes try cold cap, second session came home and lost all my hair down the drain

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Hi mog2
So sorry to read cold capping wasn’t a success for you too. Hair loss is unbelievably upsetting and hard to deal with on top of all the other chemo side effects.
I don’t know if you’ve seen the annabandana website for great head coverings that are well made, comfortable and arrive quickly.
Big hug.

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Hi big bird,

So sorry hear about your rough time with EC.

I have been on TC (Docetaxel and Clyphosphamide) and felt nauseous and achy but was controllable with medication.

I found it helpto tell my oncologist about all side effects when seeing him or registrar 2 weeks after cycle and he adjusted medication. They can also adjust your dose or change a chemo drug.

Keeping my fingers crossed for you and sending a hug,
Rose

Hi ladies. Has anyone suffered with low blood pressure on EC? I’m really struggling with it, it’s been quite debilitating, but the hospital aren’t offering any help. They’re telling me to rest and drink plenty which I’m doing but I’m so upset and frustrated with their lack of help and at a loss for what to do.

Sorry to hear of rough times.

My liver Alt was 3x usual limits today instead of last week’s 8.5x so my treatment went ahead with 75% dose. I’ve avoided paracetamol this week - our diet is already very liver friendly but I’m looking at what else I can do.

I started cool mitts and socks today as I’ve had pain in some of my nails (using suzzipad). They’ve said they may suspend a week to help neuropathy taking hold, so if it’s not one thing it’s another. However, it’s a marathon and long-term wellbeing is the aim. There’s no point kicking cancer’s backside if I can’t enjoy the things I did before.

Hope everyone is going on ok.

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Just checking in to see how we all are??

I’ve got treatment no 4 on Monday. Keeping my fingers crossed that bloods tomorrow will all be ok and can crack on with round 4 :crossed_fingers:

I’ve felt so good and “normal” this week. Actually forgot how awful I felt last week, it feels a distant memory.

Hope you are all faring well xx