Hi @tan1988 I have IBC too, I’ve just done second round of EC out of four and then I have four Paclitaxel after that, this forum is amazing sending lots of love 
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Thank you so much, fingers crossed for that! X
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Hope you’ve had an ok night and improved. I feel what you said as when we phoned the rapid response in the night they said jut would just be an and e and we had two kids in bed at the time too. She also said an and e would be 8 hours anyway.
I think in the day hours you get seen quicker so hopefully you’ll get sorted today. Sending a hug x
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I hope you are ok. Did you go to a&e? I have spent 2 5 hour days waiting in the emergency day unit in a very busy waiting room. I wore a mask the whole time and used hand gel when i left the room. I did feel very vulnerable though. If its anything serious like chest pain or fever its best to go and be checked out.
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Hi Tan1988
I’m not too sure how to use the features of this forum yet either!
I had my first EC on the 31st. Touch wood I’m ok at the moment I think. Taking all the tablets and I did my first filgrasim injection last night which was a bit nerve wracking but ok.
Just resting lots and drinking lots of water.
How are you getting on?
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Thanks guys. 
I didn’t go to A&E, I just really didn’t feel it was the appropriate place for me and as you say, would be hours and hours of waiting around in a germ pool, I couldn’t face it!
Sadly I rang the day unit this morning, but that basically directed me back to the bleep number if you say you’re feeling unwell, so back to square 1.
It’s a shame as I feel there must be a better route for chemo patients to have assessment…
I fear that even if I contacted the GP, if they were actually concerned they would also probably just send me to A&E!
I don’t feel it’s the right use of that department, for me or for the staff!
I still feel terrible, but my temperature has remained under control since the early hours of this morning, so I’m going to try and see it through at home. I have a PICC care appointment tomorrow so I can always talk to the chemo nurses then I guess.
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Hello, popping over from Sept chemo starters… when I was told to go to A & E, they knew to expect me and I was taken to an area away from the other people, to have my temperature taken immediately and bloods, I then went and sat back in my car and asked them to phone my mobile, when the bloods were back - they were back in about 1/2hr, I put my mask on and went straight through to discuss the results with the Dr. Luckily he just gave me antibiotics to take home, as my infection marker was not too high. I just thought you could follow this, to keep yourself safe if you end up going to A & E . Best of luck and I hope you get better soon. Jane
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This is really useful info, thank you so much!
Hope you are doing well x
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Morning lovely,
I was still awake at 4am so just coming round now. Body clock buggered. Im no medic but it sound like you’re having pegfil side effects meets TC side effects. Day 6 / 7 are my peak eugh days. I was super trembly yesterday as well - bit like DTs! May account for temp as it is the low point of white cells in our treatment cycle before they kick back in. You were really good to ring magic number.
My hospital has a separate admission when you’re referred by onco team ( or another Dr) Acute Emergency - run separately to AnE with own entrance through the hospital. At regular accident and emergency at moment of triage you flash your neutropenic sepsis card and you should go straight in - no waiting or messing around.
How are you now? K☘️
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Morning,
I feel pretty crappy and the chemo unit called me earlier as I obviously never turned up in A&E after their phone advice 
- I got a bit of a telling off, a bit of a phone triage and asked to come into the chemo unit for bloods, so I’m waiting there now.
That sounds much better where you have a separate entrance, think we’re all bunged in together in the emergency department at my hospital! I do have the sepsis card to show, although it’s reliant on them actually having space to put you somewhere separate isn’t it, which I know from one of my besties who’s an ambulance tech here that it’s not always possible …
Fingers crossed all ok after check up here
Hope you are feeling ok x
Ps looking at that card, I definitely feel shivery, flu like and generally unwell!!
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Think of them as ‘Mother’ and you’re getting a a telling off for not doing what you were told, lol. On a serious side, if directed to go to AnE - even if scary, you should go … curve balls with side effects are real. Now you’ve had a telling off from an Irish Mammy as well.
Glad you are in the right place. Keep your mask on, lots of hand gel. Request staff to put masks on as well if they aren’t wearing them as you are immune suppressed quite badly on Day 7.
Fingers crossed it is side effects and they’ll give you meds to level you out. Really hope nothing more heinous. Take yourself for a wee walk outside whilst you wait for results, might make you feel better.
Today my scalp is fecking killing me. I feel like ive pulled all my strands out. Just about enough for a dodgy come over. Layer in the week i sense a buzz cut coming. My wee scalp needs a hug.
K☘️
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You are welcome 
I am fine, just finished 3 x EC chemos and start Paclitaxel x 12 on Monday. x
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I accept my telling off! 
Temperature still high, and high heart rate etc, had loads of blood taken including some for culture, done a COVID swab, flu swab, wee sample, had an ECG, and being sent for chest X-ray. Also been hooked up to IV antibiotics. Hoping I can go home with meds after this 
but glad I came in!! 
Sorry to hear about your head, it is no fun is it 
x
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Just catching up on the thread. I was awake in the night, put a podcast on and then slept in till 9am. Had my oncology appointment at 10am 
@rbf … So pleased to have read you have gone to hospital, and being cared for with quite a list of tests to check everything is OK. Hope they feel you are well enough to go home soon 
Sending feel better soon vibes 
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My C-LASH eyelashes from the cancer hair care online workshop came in the post today. Nice surprise for when I got home from my consultants appointment. I went in the LGFB nail care online session too, and they send nail care gift in the post they said at the end- hopefully dark nail polishes, nail strengthening polish and oils the lady said.
Took my list of questions to my consultant appointment:
I’m having my abraxane dose reduced due to numbness in my fingers
I’m having the pegfilgrastim injection prescribed next week instead. It is more expensive I was told, so not prescribed routinely.
Hope everyone is getting through the day OK. 
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@tigress42 loving the lashes 🩷🩷🩷 I’m feeling a bit girly today - ordered water based nail varnish off Jeff Bez and have painted my stubbies for the first time in 6mths! Got a pink / brown set collection - 6 varnishes £1.50 each (ish) I’ve still not done Look good or any of the cancer ‘gift’ sites - decided to hold off until after chemo and before rads.
@rbf you’re being tested up the ying yang! I had all of those plus a CT on TC#1 such fun. Seriously, i’m sat waiting for something to go wrong because, shhhh, this round has been no bother except being knackered. Cant be right … waiting …
Had a shower and wet my hair (sic) and scalp but its still buzzing, tingly weird and sore. Ringing my hairdresser tomorrow for a a buzz cut. Put Barry Mc Wig-on for a spin today and felt like me. Might be time to keep it on. Keep me buzzy happy.
I am sat with nice nails, watching shite on the TV with my SAD light on and TBH feel grand. 
K☘️
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Interestingly, just had my oncology follow up call ahead of cycle 3 next week, and told the Pegfilgrastim not available where I am. Ho hum. But will have 5 Filgrastim again, so thats something.
Love the nails @lumpybyebye great colour - sorry your head is sore, I’m with you it’s so painful - buzz cut booked for tomorrow although no wigs yet as picking up Saturday lucky it’s cold weather!
@rbf glad you went in - that’s all the tests I had, hope you get to come home but you’re in best place, they will get you sorted! Lots of love
@tigress42 my eye lashes arrived today too - not attempted that yet - I’ll leave that for when I’m not just sitting on the sofa 
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@dilly I’m on the Filgrastrim injections too as my nhs trust won’t prescribe the others as too expensive! It’s mad how they are all different!
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@loupy and some don’t even prescribe the Filgrastim! Not moaning, because I really do appreciate my care and treatment, but you would think it would be standard across the country…
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