@loupy cost drives me insane as a reasoning tool … I’m a google monster! Basically 4 different pharma companies make pegfil for UK use, prices varied by hundreds for an injection - all do the same thing. (Think paracetamol from Aldi same as paracetamol in Boots price difference! )
Going by the British Pharmaceutical site if a different pharma company was used 1 Pegfil is actually cheaper than 5 Fil but it is all down to companies, contracts and extras. Who knew ‘Big Pharma’ would impact little old us so much! ( Not a conspiracy nut, I don’t wear a tinfoil hat, the world is not flat)
K:shamrock:
PS Looking into this (and obsessing) also indicates how completely bored I am and my brain needs exercise!
@rbf glad you went into hospital and hope you get to feel better very soon!
@lumpybyebye if you feel bored you probably feel ok which us better than feeling like shite right, so enjoy the boredom if you can!
Hope everyone else is doing ok. Lucky for me I’m getting the Pegfilgrastim injection and the first one was kind to me so fingers crossed that remains. It’s wrong its not available across the board though.
I’m struggling with sensory overload these past couple of days. I feel less horrid than I did, but god everything is way too loud and way too bright.
I think my cycle 5 will also start on christmas eve which will be my start of EC! if also no delays!
i might compensate and turn my house into santas grotto for my girls just to make myself feel better xx
Just caught up slightly and so glad @rbf yiu are being looked after well in hospital and ur defo in the right place! i get why you didn’t rush though!
young kids and weighing up the risks of A&e is tricky but at least now for future reference they might explain the triage system in your trust!
It’s a shame we all don’t know really unless we’re in that situation!
So guys has anyone experienced loss of voice well i can’t say it’s gone completely but i sound like i smoke 40 a day and it doesn’t hurt but as the day has gone on it’s got worse!
No temp or any other symptoms!
also i have bloods tomorrow so thought id hang fire?
hope your all ok xxx
@slc1 not suffered with loss of voice, that’s a new one! God there’s so much that can happen! Take care and phone them if you’re worried, it’s what they are there for x
Yh i’m not sure it’s a side effect i suppose anything is possible!
i am also having immunotherapy which i think can bring lots of weird and wonderful side effects!
i’ll be fine ill see what my bloods say
This cancer malarkey is defo the gift that keeps giving isn’t it!
@slc1 I thought I would take in mince pies and chocolates for the staff, and I might get some festive deely boppers for my cold cap…just have to try and make it a bit fun!
I’ve not read anywhere that is a side effect, that is a new one to bring to the table. Can you contact your onc nurse easily?
I started looking at how long it takes for white blood cell count to recover after chemo infusion if taking filgrastim injections… didn’t get too far with the answer to that as I got bogged down with all the side effects of taking that!!! As if the chemo wasn’t enough ffs!
I’m quite lucky that my nurse has a mobile so I can text or call her if I have questions.
Mine falls on Christmas day too. Not sure if i am going early or waiting a week. I dont have plans for chistmas yet. Its a bit crap that the first thing i am planning is my chemo. How festive. I always seem to get a cold at christmss so i may need to stay away from people anyway. I was thinking of having a early chrismas in my good week after ec as i will be on the weekly paclitaxel by Christmas.
Can you let me know how you get on with this brand of polish, interested in this type of nail polish but I’ve never been able to find one that stays on my nails very long.
Just brought myself some black and burgundy Sally Hanson nail polish- The lady did mention for you ladies having docetaxol to wear dark polish and the importance of cuticle oil as it can really affect your nails (forgot to post that bit of info, you just reminder me @lumpybyebye).
Top tips: Base coat, nail polish, top coat Gently file nails every 3 with a super fine file, including down the sides to keep them smooth Use a 4 way buffer every 1-2 weeks Dark nail polish, as nails can discolour/go black Use cuticle oil EVERY day, stops your nails falling off
Thankyou i did leave a message on my BC nurse phone. more sore to ask on my ultrasound on thursday to see how things are going i wondered whether there tell me there and then? or will i have to wait to my consultant ringing me next tuesday? but if she gets back to me i’ll ask about the throat!
Also im having bloods tomorrow and in for weekly paclitax wednesday so im sure all will be ok! ill ask someone!
I sware i read our neutrophils and WBC take 21 days to recover post treatment and at there lowest 7-14 days post chemo!
You really can get bogged down with the reading of all the side effects
I know… my friends have been texting me about organising things for Christmas for today… social media has brainwashed everyone to go from Halloween to Christmas over night I think I’ve still not told them what’s going on with me yet… I still have my head in the sand about it all.
My son turns 11 on 18th Nov and my daughter turns 13 on 25th November (teenager in the house!!) … so before I started chemo I got organised with birthdays and Christmas. It’s mad on a normal year with parties etc let alone factoring in chemo (my husband was so relieved when I said I’d sorted it all today as I don’t think he would know where to start😮💨).
@tigress42 I started cuticle care a few months ago… use polybalm morning and bedtime, cuticle oil twice inbetween. I keep them cut short. Don’t use nail file as my nails are delicate and it causes them to split. Booo.
I’ve been using ice gloves and socks during my taxane for 90 mins with Suzzi pads on. Then take them off for cool down part of cold capping. So far no nail issues. No neuropathy. I do also wear compression gloves and socks during treatment. Since surgery and then chemo, I wear compression socks daily and to bed. I’ve a history of DVT.
Crikey. No wonder I’m both broke and broken with BC! PICC clean tomorrow
@rbf Getting clippered on Thursday. Weirdly my hairdresser Sarah rang me to ask how i was, lol. Cosmic wobbles …
@poptart you are at the exact same point as me, i had my first EC on the 31st and just did my second injection. Belly i am really struggling with but managed to do the thigh straight away, so that will be my system now as have a huge fear of needles which I am trying to beat!
Today i took off work and curled up on the sofa just feeling more tired, hoping now im off the steroids i can hopefully sleep a little better tonight. Sickness hasnt been an issue touch wood.
which will be my start of EC! if also no delays! 
xx
jolly good idea xxx
xx
I always seem to get a cold at christmss so i may need to stay away from people anyway. I was thinking of having a early chrismas in my good week after ec as i will be on the weekly paclitaxel by Christmas.
but I’ve never been able to find one that stays on my nails very long.
Base coat, nail polish, top coat
ill ask someone!
