@tessie86 - same for me today, I’ve felt really tired and it’s been an effort to do much at all. I sent most of the day in bed. Now I’m just gearing myself up for my next injection in an hour…
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As i wont be doing christmas day delaying a week makes it new years day. They are opening that day. Great start to the new year, ay.
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Hi everyone!
I’m joining very late as had problems with the email verification to get signed up but finally got sorted today!
I had my first EC chemo last Monday (27th). I’ll be doing 3 rounds of EC every 3 weeks, then 3 rounds of Docetaxel, (plus Herceptin every 3 weeks for a year) and cold capping.
I was originally diagnosed with high-grade DCIS, but after my mastectomy with DIEP flap in August, they found a 2 cm triple positive area. So thankful my margins and nodes were clear, but it was still a shock to go from a surgery and Tamoxifen plan to full chemo.
Top delight from this first cycle for me, the steroid crash on day 5 (Halloween, of all days 
) it was brutal! I don’t think I’ve ever been that angry at literally everything… followed by a good cry when it was time for my injection a few hours later 
Anyway, just wanted to say hi, I’ve been reading along while waiting to join, and it’s really helped so much hearing everyone’s experiences. Thank you! Looking forward to chatting and supporting whilst going through this sh*t show together 
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Hi @loupy I hope you don’t mind me messaging but I also have IBC. My plan is 4 EC cycles, have my 2nd EC infusion on Friday and then 12 weely Paclitaxel. X
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Ooh good luck Thursday - it’s weirdly freeing in a strange way!
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Thanks so much all - I made it home by the evening and I’ve managed to actually get some sleep (awake again now but some is better than none!)
My temperature was still high by the afternoon so had some IV paracetamol and fluids as well as the IV antibiotics. They think it’s coming from my chest, but urine sample was also positive for infection 
so no wonder I was feeling so crap. Home to continue with oral antibiotics and rest 
Good job I did go in, silly me!! 
Lesson learned.
Hello to new joiners - welcome to this lovely hive of solidarity and support!
Hope everyone is ok x
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@rbf so glad you got all the tests you needed and sent home with medication and to recover in your own space. Really hope the meds kick in quickly and you can get lots more sleep.
Sleep does feel like the best medication so far, although those sickness tablets were pretty brill too!
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Morning all
Rant coming
I’ve had such a bad night I’m so done with all this!!!
Sorry normally positive but I’m just not coping today! I’m thinking neutrophils are lowest day 7 and then start to recover as I’ve had two bad Tuesdays now which is a week after my chemo! I’m going to ask and will report back xx
Lots of love to all sorry I’m so miserable!
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No wait Tuesday is my day 8! For goodness sake! 
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@loupy its not a lie when they say its a rollercoater ride that you 100% want to get off, off!
So sorry you are having a miserable day!! Rant away on here!!
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Oh no bless you, I totally hear you.
I think it’s normal to sometimes just feel thoroughly fed up with it!! What were going through is A LOT!
Being positive is really important, but it’s also important to give yourself the space for your bad days too.
We will get through this, thank goodness it’s so treatable. But it’s valid to have your down feelings because the treatment sucks sometimes!
Was there anything about your night that might be able to be improved with meds if you give your team a call? Or just generally feeling rubbish?
We are all here for you, feel free to rant!! Sending hugs x
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It’s normal to have bad days, get fed up of it all. Our lives have been turned upside down and inside out, the treatments are physically gruelling and the drugs can also affect emotions and moods directly (steroids anyone?).
Keep venting. It will pass.
Sending love x
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Not too bad thankfully, I would say up and down but mostly up. Keeping myself busy as much as I can. Just little surges of tiredness. I think actually the steroids made me feel worse. Luckily no nausea or anything. Just bone pain after my jag (I had to do it just once the day after - I was a wimp annd begged my GP lol) and weirdly a tightness in my jaw. Is your next session the 14th? I’m the 13th. Atleast we know what to expect this time but this will be the first time accessing my port for chemo which I’m a little scared about. Do you have one? I had it fitted the day before my first so they had left the needle in. Are you cold capping? Sorry 40 questions lol. Hope you’re still feeling okay 🩷 countdown is on to tick off number 2. Xxxxstrong text
Anyone else get a weird blocked ear sensation when you swallow, guessing its a message to the GP to see what that is. Joys!
Hi lovely!! Wow yes looks like we are in the same shitty boat!! I’m the same, had a few similar treatment plans but no same diagnosis. The IBC with IDC seems to be quite unusual!! How are you feeling? Xxx
Hi @tan1988
My second cycle is on the 14th.
Yes I have a port and they used it for my last chemo. I was really nervous but it didn’t hurt at all. It was just one quick sharp scratch (exactly like a normal needle insertion for a blood test) and then I didn’t feel anything. So glad I decided to have a port it in the end, even after all the initial faff.
I’m feeling a little more energetic today as I managed to sleep better last night. Maybe the steroids are finally working their way out of me.
I do have this weird feeling of fullness in my upper stomach - a bit like a tight band around my top middle, but it doesn’t hurt as such so I’m just going to keep an eye on it.
Sending lots of positive vibes to everyone x
Afternoon all
After my bad night I did something positive with today and buzz cut my hair - for those with pain it was instant relief and seeing as I was so emotional I didn’t even cry much!
So if anyone is scared it has helped me and turned my rubbish day around!
Lots of love to all
Thank you for letting me rant this morning and all your kind messages
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I’ve been listening to a lot of podcasts recently; can’t remember which one it was but they were talking about living life in thirds. A third of the time, things are just okay and you are just cracking on. Another third, everything feels awful, but you know those days will pass. And then there’s the final third, the great days, the ones you truly appreciate because you’ve got through the okay and the shitty, tough ones. Just made me feel a bit better when I heard it say like that, and how a good rant to get stuff off your chest can help move you past that shitty moment.
Another day ticked off on the treatment plan 
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This is such a great way to look at things!
(Especially for a 3 weekly chemotherapy cycle, very appropriate 
)
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hadn’t thought about it with my 3 week cycle