L4W I will give that a try thank you.
Breast is now extremely sore with sharp shooting pains across it whenever I cough which is frequently at the moment as I seem to have the cold from hell. If anyone says anything about breast cancer being the one to get or some people pay for a boob job I am going to punch them, I am totally and utterly fed up with feeling ill.
Well evening all, sympathies to all fellow sufferers… I too am having trouble sleeping on my back I am trying the supporting with a pillow, sleeping propped up ect, mind you I have had the LD flap so I am in effect lying on the wound!!! I was lucky enough to have imm recon?? I did insist and even though I had chemo before this op I do run the risk of rads changing the asthetic look?? I did consider the ‘tummy op’ but went for the LD flapas that was what I had last time ( for those unfamiliar with my history, I have done this journey once before 14 years ago!!!) I too have been weepy and grumpy and share the misery of the pain of ANC, even though I know from personal experience it gets better…it makes it NO easier to cope!! Its along miserabiele haul eh? Judes I know how you feel with thought WLE/ poss RADS was it then realising mx and the whole 9 yards on the cards!!! I cope by taking one day at a time, I have addes complication of my 9 year old boy, who is autistic, getting him to be aware and not touch my boobs ( I say boobs coz I had nipple recon on right breast too that was the 1 removed 14 yrs ago! I also had pagents disease in that nipple and been without one for last 14 yrs now PS has taking existing one and mader 2 one on each boob??? can’t wait for that to be revealed) It seems never ending at the moment but I KNOW surgery gets better and stronger each day, so lets give ourselves a soft pat on the back for getting as far as we have!
Love to all
Jeanette xxxx
hello all
can i join the sorry for self club? i’m still in hospital, hoping to leave tomorrow, been feeling very drained and tired after mx - second anaesthetic in a week. i suppose its to be expected but everything feels very bleak.
i can’t say i’m in pain but the expander is pressing against my chest, can be hard to breathe. and it’s all a bit unsightly. i know that doesn’t really matter, in the scheme of things, but does change my perspective. maybe i need to visit that dark forest people keep talking about. i can’t seem to find pleasure in anything - not even chocolate, and that’s unusual. am just trying to be gentle with myself and accept that that’s the way it is for now, is normal under the circs, and will improve.
and they bloody won’t let you sleep!!! i’ve kindof found a position on my good (right) side but every time i start to drop off they seem to want my temperature or something …
sorry for the moan. love to you all xxxxxx
Hi Judes
I know how you feel, I was knackered and feeling crap and when I finally got to sleep they wake you up for obs. I know it is your best interest but it gets a bit too much. I felt very low in the hossie and couldn’t stop crying!!! It’s a lot better when you get home. Just keep swallowing all the painkillers, they help you to sleep, I got to the point where I was just giving them access to my body without opening my eyes!!!
hope you feel better soon. M
Well I saw my surgeon last night and he told me that the chemo had had a complete response and there were no cancer cells in the breast tissue they removed during the Mx. He said it was the best result we could have hoped for and he was very pleased. Needless to say I am so relieved and yes we did crack open the bubbly last night to celebrate. Long may it continue!
Xx
lovely to hear your good news jo…thanks for sharing!
i’m wondering how everyone else’s scars are healing…?
i’m trying the mepiform scar treatment but am told it could be a year before i know if its helping at all
at the moment my scar looks like an enormous joker~style grimace across my chest!!!
My wounds are still firmly glued together after 2 weeks with no signs of the glue coming off anytime soon, previously when I have been glued starts flaking away after a week but this is firmly stuck. I’ve not heard of the mepiform scar treatment, what is that? I do know others have had good results with bio oil.
X
Well done on the total response, Jo!
o/
Jo that’s fantastic news !!!
All that gruelling treatment has been worthwhile, you can now look forward to normality.
Well Done.
Jean xx
Thank you Ninja and Jean, I didnt know whether to laugh, cry or quite what to do, when he told me!
xx
YAYEEEEEEEEEEEEEEEEEEEEEEE! Great news JoC!
Ninja - how’s the seroma?
Is everyone doing their exercises?!!!
x
Great news Jo C.
My post op results were all clear today
I feel like singing I’m so relieved. My scars are fab-am using Bio Oil every day. Still doing exercises and have good mobility now in both arms. Def on the up, and only a few days til my little hol to Vienna. Happiest I have been since February
Rach x
Rach - you go, girl!
Doing my exercises, Miss, but movement of arm restricted by the fact that one upper arm isn’t only stiff, it’s also quite swollen as a seroma also extends down to my elbow. Seroma is now a B cup; feels SO tight, it’s hideous.
Got appt with surgeon-dude on Friday; hoping for an aspiration session. Worried my stitches may burst!
Still haven’t booked any days away as we are both worried about these seromas. Found some really nice places to go and flights but we are just so worried that flying while about to burst may be a really bad idea.
Wonderful news Rach.
Ninja your seroma sounds so painful, I really hope they sort you out on Friday.
Wonderful news Jo C and Rach.
Still wincing with you Ninja.
Dx
hi all
such good news JoC and Rach, very pleased for you.
Ninja did you go for that bottle of wine?
hey Applestreet, thanks, how you doing?
when is one supposed to start the BioOil?
i’m still in hospital (i think the consultant forgot to discharge me) but should be out tomorrow. feeling much better. i realised how much energy i was spending on worrying about chemo, have sortof let that go and just trying to get over this. i’m still extraordinarily tired but can feel a few signs of life returning. Haven’t quite confronted my chest yet but hey.
love to all jxxxx