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Some people have had DLA under Special Rules, but have had a renewal letter that seems to imply they will be changed to PIP (I guess it depends on exact age?) and I know someone whose renewal letter does NOT mention Special Rules!! Anyone have experience of this situation?
Hi ,I’ve been receiving DLA and had renewal letter it does imply that it may stay the same or receive less or none at all and not sure special rules ,ie ds1500 will guarantee it either ! I am really worried that mine will stop as I rely on this quite heavily ,has anyone else managed to switch over from DLA to PIP with /without any hassle ? Regards Helen12 x
I wonder if BCC can clarify this question for those of you who are in this situation? There are horrific stories of people being called for a walking assessment and deliberately kept waiting long after their appointment time, so the assessors (whose job it is to cave as much money as possible) can see whether the applicant is capable of walking to the loo… degrading, yes this is the UK in 2014 (sorry I don’t have a link to post but I have seen it somewhere on the internet, I think a disability forum?)
Hoping that BCC will realise how worried we are… please BCC, look at this thread again, and respond, even if it is to say thay you cannot help.
This is my first time on the forum, have had very little contact with anyone else with SBC. However, a friend of a friend recently mentioned the personal independence payment, does anyone have any information or advice on making a claim. Any tips would be much appreciated.
Hi Tracey and welcome to the BCC forums
In addition to the support here please feel free to call our helpliners to talk any concerns/ queries through, they on hand with practical and emotional support for you on 0808 800 6000, lines are open 9-5 weekdays and 10-2 Saturdays
I am posting a link to the secondary support and information from BCC which I hope you will find helpful:
breastcancercare.org.uk/secondaries
You can read the Macmillan PIP information via this link:
Take care
Lucy BCC
Hi I am in the process of trying to see if I am entitled to P.I.P I already get DWP for mobility for M.S Macmillan Support are helping me I just hope it doesn’t mess the mobility up they say it will not but when you hear all the trouble people are having when it is taken off them its scary. Love Rose x
Thank you all so much for your replies, it’s much appreciated, it’s good to know there’s so much support out there, especially as I feel a bit lost sometimes. Since my post I have called DWP and started a claim, which wasn’t too bad at all, and asked BCN to fill DS1500 form, although she’s not done one before. So far DWP have confirmed receipt of the claim and told me to ring if I’ve not heard anything by 16th June, so fingers crossed. I’ll post again when I’ve heard anything. Again thanks for the support xx
When you received your award using the ds1500 route how long has pip been awarded to you
Not finding claiming for PIP, as straightforward as I thought it would be. Sent in DS1500 filled in by GO but then sent the huge ‘how your disability affects you’ form, with no accompanying letter explaining why I needed to fill this in, so I rang them, apparently they are not satisfied that my disease is terminal, as my primary diagnosis was in 2005, my SBC was diagnosed in 2014. I am hoping to get assistance from McMillan CAB but appointments are scarce. Any advice would be much appreciated
Hello Tracey
i claimed PIP but the hospital did all all for me. I didn’t have to do anything… not sure if that helps you
SS
Thanks for this, I’m hoping to get an appointment with McMillan advisor, so fingers crossed she can point me in the right direction or at least make things a bit clearer.
Chrisjonesey you have been treated terrible you need to take it further.
I applied back in June finnally got it standard £55.10 until 2017 if circumstances change I can reapply I already the mobility because I have MS.
Good Luck
Just a quick question from everyone…i was told to apply for this a while ago. Hearing thet you have to be classified as terminal to be eligible is a bit worrying…my hospital doesnt class us as terminal, they call it ‘chronic breast cancer’ when I apply for travel insurance they always ask if I have bern told im terminal and I say no, even so…its a big slog getting travel insurance. As it sounds like you have to be ‘terminal’ to claim PIP im a bit afraid of shooting myself in the foot!any comments please?
Moijan
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Hi Moijjan,
Jst to let you know i went through the macmillan centre at my hospital who passed it on to my Onc but he refused to sign the dsform as i wasnt ‘terminal’…to me if you cant be cured and will likely die of the disease then whats the difference. Anyway, i then got a macmillan nrse come to visit me ( i think it was via my district nurse) and she said 'leave it with me. The next thing i know i have the higher rate pip and a blue badge…what an angel. Persevere and try any avenue available. Good luck.x
Hi all yes agree with stress head we dont want to hear the word terminal…but currently no cure for it so it is…could have years on treatments and hopefully new ones in pipeline…Sharon 
Yay I have got my PIP but I have a big question - it says Living allowance and mobility so I’m needing a car so does ALL the money from both go straight to the car firm??? Do I get some living separately? Hope someone with a clever head can help me.Akso I’m finding it impossible to sleep even when off steriods but my oh is going abroad until end of November so that’s probably upset me xxx
Hello debs
I might b wrong but I think that getting both allowances means you have to pay for the car if you want one from the allowance and its not another extra.
I thought about getting a mobility car but as I have a nice ( ish) one of my own thats all paid for …decided to keep my allowance as cash!!
It’s great though you have the pip. It Does help with extras that this dreadful disease has caused us.
Xx
You can get free car tax for your own car if you get enhanced mobility.?
The mobility component pays for your car.