I’m in a real pickle - is it worth all my POzp going on a car and not having any bits for home or bills??
Deb, only the mobility part of the award goes to the car you keep the living allowance think that’s about £82 per week.
Hugs Janette xx
Thank you so much xx
Thankyou mint tea and Natalie xx
Thanks Janette x
Hi Ladies,
After reading this thread, I decided to go for it, even though I thought it would be a waste of time. My mc Mill nurse advised aginst saying its to early on in my disease after I had sent it in ,and to wait until i was more needy. So I rang them yesterday to say cancel it, to be told I had been awarded the enhanced amount based on my Gps letters and what I had written , every word true .
So thank you all so very much, as now I hope to get an automatic car , I have nerve damage in hand and arm so this will be great , and my leg is wonkey donkey too. It also means I can get a cleaner in to do those jobs I cant do. I am also do thankful for this as I have to wait until i am 67 ,another 6 years for pension, dont think I will ever see that either.
Keep well all xxx
Hiya truffle shuffle
Whoop whoop …it will help with the extras that this disease causes.
I decided against the car but find it useful for extras …chiropdist etc etc.
Enjoy and spend it well.
Hi truffle shuffle,
I was very reticent about applying for pip too but was encouraged by the wonderful ladies on this site to do so. I got the enhanced rate too. It makes such a difference not having to worry about money. xxx
Great news Truffle, it is eases the pressure off the financial worry we have due to not being able to work/cutting hours. My onc and Mac nurse also refused to fill in my form saying I wasn’t "poorly enough so I asked my GP who had no qualms about filling it in for me!
Hope it helps to take some pressure off.
Hugs Janette xx
Morning Ladies,
Yes I hope others read this thread and go for it, instead like me, listening to some others ,and doubting, hope you all have a lovley day, the weather is just glourious. ,
keep well xx
wel done shuff truffle…my onc refused to do it for me but my macmilan nurse soon sorted it out. With me not working and my husband being finished from his job because of me and his health problems, we rely on the money to live. Glad you didnt wait any longer.
Hi wendy, i may be wrong in what i am about to say bt if so, someone will be along shortly to correct me.
I think you can claim for PIP in any case but can only get the higher rate if a DS1500(??) form is completed by your onc, doctor ect. This verifies that you are terminal with 6 months left to live and for that reason many Medics wont sign the form. My onc wouldnt so i got the lowere rate. It was only when i was visited by a macmillan nurse that she sorted it out for me…so maybe thats the way to go.
I’m not sure whether self-employment makes any difference but dont see why it should…i would have said its even more importsnt in your position.
Please apply…they can say no but you wont be worse of for it and you may have something to gain.
Let us know how you get on. x
Thanks for your comments, seeing someone else tomorrow from Breast Cancer Care re PIP. So will know more again, might apply anyway.
I attend the Lymphoedema clinic at the local hospice and the nurse suggested that I speak to the Macmillan advisor that also works there regarding any benefits I might be entitled to. Didn’t think it would come to anything as I’m still employed and on full pay for 6 months while off sick and then half pay for a further 6 months, however he thought I did have a case for pip and with my permission he contacted my onc and made the application on my behalf. Result - I receive the top level payment and got a blue badge and he did all the hard work for me - what a star!
Good morning, newbie here so go easy on me :smileyhappy:, im on here on behalf of my wife who doesnt really get on with finding out too much information, whilst i have been on here lurking and reading since she first got diagnosed. I have a question to ask regards this PIP. My wife was diagnosed with with breast cancer at the start of Nov, it was a mere 15mm tumour. Biopsy showed lymph node involvement in the armpit at least. so a mastectomy was booked in for the start of December to get rid of this evil thing. Meanwhile they sent her for other scans and tests which unfortunately came back showing scondries Mets to the spine and hip, with an added bonus of an unknown at the moment tumour the size of a tennis ball attached to the sacrum. they are refering her to kings for this to investigate. They started her on Chemo in earnest the first week of December.
After looking a lot at this site i kept coming across this PIP. so i phoned our local Macmillan welfare office who promised to look into it. she spoke to our BCN who refused to sign off a DS15000 form who stated that “shes not at that stage yet”. so at the moment we are sort of at an impasse with what direction to turn. My wife is Stage 4 grade 3 and that sounds fairly serious to me. I know she is not currently about to keel over at anytime but the chemo is now starting to hit her, with fatigue, not wanting to do a great deal, lack of sleep and not really wanting to walk a great distance. Im aware its probably only going to get worse as obviuosly Chemo is accumulative.
I was wondering, should we be going to our GP to ask for a DS15000 form to be signed off? should we be bothering at all being as our BCN want really interested? Dont want to sponge but at the same time i dont want to miss out on something we migght be entitled to, we’ve both worked and payed our taxes all our working life.
Thanks in advance for any advice!
Hiya crusty
Sorry about your wife’s dx …it’s bad enough to deal with this blow but to have to seriously think finance and extra expense is also a worry. I just dialled the number direct ( u can Google to get the helpline) a very helpful lady took my details and sent me the forms. I assume they confirmed things with my oncologist and six weeks later I was awarded it.
There are so many extra expenses involved especially petrol or travelling to hospital and things at home …do try again.
Carolyn xxx
Hi Crusty, what a kind and thoughtful husband you are.
I dont really have much to add but my chemo team got me in touch with a macmillan nurse and when i told her my onc wouldnt sign the ds1500?? she said leave it to me…the next thing i knew i had the enhanced rate and a blue badge. You should get something even if its the basic…kep plugging away and let us know how you het on. Love to you and your wife. x
Thank you very much ladies for the wonderfull kind words and advice. Every thing is all so much of a blur at the moment and thats why i take solace in reading from people that either have gone or are going through it. it really does help. Once the shennanigans of Christmas is over, we’ll got to our Gp and request the he fills in a ds15000 form and see where that takes us. In the meantime id like to wish everyone a real merry merry christmas and i look forward to participating in the secondries thread with you all and hopefully my wife will too.
Hi Crusty, only just catching up with the forum (been away for Christmas…that’s another story…nightmare!!)
Anyway just wanted to add my story, I also applied for PIP and both my bcn and onc wouldn’t fill the DS150O saying I “wasn’t at that stage yet” in the end I went to my GP and he was more than happy to fill it in for me!
Although I’m trying my best to keep life as “normal” as possible i do get very tired and achey and sometimes have bad days with hip pain and for this reason I have had to cut down my working hours to just 12 per week and be being awarded PIP has allowed me to do this without having to be constantly worried about finances…we have more important things to worry about!
Hope you manage to get it sorted.
Janette x
Morning Garry, well hopefully it will get sorted soon for you now…why does everything have to be a battle!
I’ve got my renewal coming up in a few months must admit I’m not look forward to that, my gp filled the ds1500 last time (on initial dx) just hoping he will do it again this year. It had taken off such a financial worry and allowed me to drop my hours at work.
Good luck, keep us posted!
Janette xx