Thanks Barton and ff …I wanted to post here honestly so that other ladies are warned that pip can stop at any time…
It seems to be a minefield but I would also say to other ladies …apply for it …every bit helps! !
Hugs xx
Carolyn I cannot believe this! I reiterate everything that Barton has said, it seems the powers that be would rather give money to the con artists that are bleeding the system dry!!
It very worrying, we have enough to deal with living with this disease without having to worry about our finances!
Hugs Janette xx
Hi everyone! I hope your ‘battles’ for PIP go well but somehow it seems we are being targeted! I have had the pleasure of receiving I presume my renewal form a year early. Mine was originally awarded until December 2018. As I have secondary breast cancer which was diagnosed with a pathological fracture of the left neck of my femur so I am a bone mets gal. I haven’t seen the form yet as I am in hospital having surgery on my jaw to remove the dead bone from the osteocronisis of the jaw I have been been diagnosed with and suffering from most of the year. Thank you for that pressie DWP x Happy Christmas everyone!!
Hello pumpkinsue
Sorry about your hospital trip and stay …secondary bc is the gift that keeps giving. …never know what is coming everyday !
I had to have my femur pinned 2 years ago in an attempt to stabilise my crumbling hip and cracked pelvis …
I hope you get your pip renewed without too much hassle …I think the system targets the honest people that genuinely need it !!
Onj another gift that the bone strengtheners give too …at least u will loose weight as a pre Xmas diet as it will be smoothies and ice cream for a while .
Hugs xx
Hi thank you for your replies Carolyn and Barton. I have until the 11th of January to return the form. I am going to speak to the Macmillan people who helped me before plus my medical people. I am going to try and enjoy Christmas in the meantime. The money is so helpful and we will really miss it if I lose it. Last Christmas I was recovering from a Mastectomy from a recurrence plus a change of treatment and this Christmas the loss of my nearly all my bottom teeth and now a sizeable portion of my lower jaw bone. At least though I am with my children and I am so grateful for that. I wish you both and everyone on here a wonderful Christmas. Xxx Sue
Just heard on the news 1.6 million pip claims are going to be reassessed. …
So be prepared for paperwork etc dropping through your letterbox.
( mine was halved a few months ago)
Carolyn, isn’t that for mental health patients??
Hugs Janette xx
Yes it is …sorry read it wrong on facebook but they are reassessing a lot of claimants …I got caught out with it …
Hi everyone had my PIP face to face interview at home today. I found the whole thing quite stressful and am in no doubt that I will lose this benefit. I can dress myself move around etc unaided. My husband was there but didn’t add anything. The assessor literally I thought switched off when I tried to convey how much I struggle with Kadcyla the drop in platelets to 98 roughly and lower and my anaemia he made absolutely no note of. The need for blood transfusions and the fact I struggle to get out of bed often by 2pm. Again he just made no response to at all. I am also in the middle of treatment for Osteonecrosis of the jaw. With results of a CT scan imminent and a decision on whether to have more surgery on my jaw and teeth or whether the risk of blood loss is too great. Ho hum though, I can put my knickers on without help. I put them on the floor and flick them up my legs don’t worry about the massive nose bleeds and bleeding from my mouth.
I just felt like a complete fraud all the time the interview went on. I am not a fraud nor are any of us but I feel like the whole system is against us and I feel like no one actually listens to what you really saying. My situation is complicated but there should be capacity in the system to anticipate this and not to pretend you haven’t heard and can’t be bothered. The mental stress of this has taken even more out of me than even I anticipated.
I suppose I will have to wait and see. There were suspicious things like when asked how I spent my time. She said at least 3 times do you read, you read don’t you? Does this have something to do with my mental capacity?? Apparently according to him the whole process is nothing to worry about. Yes, just the loss of a sizeable chunk of money when you are trying to bring up a family.
Sorry to go on. I also only had 2 days notice for the interview. I know we had the snow. Before Christmas I had a week to fill in the form despite the letter being dated at least a week before.
Well I hope you are all OK as can be.
Kind wishes to you all
Sue.
Morning,
Ladies with the DLA Highest rate care and mobility with an indefinite award please can u advise me the outcome of PIP and what to expect…
Many apologies I see there are hundreds of posts, but my mind is melting with all the info of reading back.
Lots of love to everyone
Xxx
Hi everyone. Sorry for my late reply. I would love to read what you have written to your MP Bone. . I know I have a tendency to waffle! I am still waiting for a response from the DWP l, but know I can’t have scored any points for the mobility component. The whole system doesn’t take into consideration having a massive nosebleed in the night and then sleeping all day or the 2 scans I have next week. My team do
look after me. As I think could I work at AL? l. I realise it isn’t realistic.
Thank you Sarah for responding to! I appreciate your support.
I hope Mackerel with a lifetime award you should be OK at least I would HOPE so. I think the plan is just to get people off the benefit if they can. Saving money for people to have tax cuts!!! How very fair.
I still think the whole process for me was very invasive. We are visiting you at home. No choice there. I just felt a fraud. Why couldn’t I do this, why couldn’t I do that. I have heard of assessors who are more sympathetic at least on the surface. He was more interested in why I couldn’t do things rather than any side effects or pain I was in. He acted like having ONJ didn’t even exist. Once we had done what he wanted, in terms of questions it was going to be my turn to talk about how I suffered. Instead he said ‘I have what I need’ and was off.
I just hope Mackerel you get treated well. I am sorry I can only tell you my personal experience. Best wishes everyone. Here is to some warmer weather! Sue xxx
Bumping up for janied