Hi Moijan
Thank you for your reply. Who would be the best person to speak regarding this?
Keep thinking I would not be entitled to anything as I am quite a active person that is why I have not tried to find out where to go in the past. Know one in the past GP or care nurse I had when I first got dianoised ever mentioned I could apply.
Hope you are ok.
Linda
Hello lyndyloo
Yes u can claim pip and pension. All I did was rung their helpline …got asked a few questions , they sent me easy forms and 6 weeks later I was awarded the full amount …it’s not means tested or anything …
Go for it …xx
HI Carolyn
Thank you for your reply. I will give them a ring. Nothing ventured nothing gained.
Once again thank you ladies.
Linda
Hi Paula
Thank you for info. Will have a look.
Linda
Hello Kate ( again)
Yes you should reapply …you are entitled to it and it can make quite a difference …its about £500 odd a month if you get the maximum …sure you can find use for that amount !!
Xxxxx
Kate …don’t give up …keep chasing it as you could surely need it right now to make life a bit easier for extras that this disease creates …petrol, parking and extra heating etc etc.
Xx
Hello Kate
I can’t really offer much further help …I think all you can say is that things have progressed since your first application …that you are less mobile etc etc.
I didn’t know anything about pip …until I applied for my Blue badge …the assessor was checking my mobility at the centre and asked how long I had pip …I sort of said what’s that ? And he gave me their helpline number and that was it in a nutshell.
Xx
Kate, if you have problems with finding a Dr to complete the DS1500 like I did, contact Macmillan. If you have to take the long route to getting PIP they will help you complete the form or direct you to a welfare worker who can help you, remember to put in as much evidence as possible, I included copies of all my letters from my Oncologist to GP, they can’t dispute hard facts. You can also include statements from people who know you saying how your diagnosis has effected you, keep a diary of how you cope each day and include that, remember also to include things like using special equipment, I have electric tin opener and bottle opener, shower seat, sock donner, long handled brush etc.
Good luck x
Well ladies a quick update on my 30th September posting…
DWP …have just texted to say they will be arranging for me to be reassessed by a medical expert to see if I can continue with pip.
Beginning to take this personally now as no one else is getting this hassle …
Just received a letter to say I have to see a assessment officer on 13th November to check that I can still keep my pip …I’ve only had it for 18 months !!
Think there must be a jobsworth somewhere picking on us !!
Carolyn, just a thought…was your pip form filled out discussing your disability…or was it done under the special rules as that qualifies you very definitely…as it does all mets ladies…if someone merely discussed your disablement then that might be seen as needing reviewing, whereas a terminal diagnosis won’t …
if if you follow me?
much love, Moijanx
I’m not sure Moijan. .I left it for oncologist to complete at the time. …just will go for my assessment and answer honestly …
Hi Carolyn, cannot believe you are having to do this!!! Remember on your assessment to go off your worst days! I understand that our illness is an up and down one BUT just make sure you home in on the bad days because they will home in on the “better days”
Good luck, hugs Janette xx
Hiya
I get pip paid monthly …I was awarded it for 3 years so very confused why they are picking on me after 18 months!
I’m waiting for scan results so thought about asking for a copy to take with me. Otherwise I’m in their hands really.
Watch this space …
Hi all, Ive just received a letter from DWP informing me that my DLA is due to stop giving me 2 weeks to put in a claim for PIP or by the 1st Dec. I’ve been on this benefit for nearly 7 years as I am living with secondary breast cancer and was awarded it by my gp signing the DS1500 form, so far he has signed this form twice, initially it had spread onto both lungs and further down the line it was found on my liver. I am on Herceptin and Arimidex indefinately or until they stop working and whilst I feel well today I get very bad days where I’m stuck to the sofa with lots of joint pain, extreme fatigue, as well as very bad migraines I have as many as 4 a week. As of my latest scan the lungs are clear which is amazing and the liver is stable, however my onc has explained that whilst my current dx is good my secondary cancer will always be there its just that the cells are so tiny the ct scan can’t pick them up at the moment. She has told me we will deal with any changes as and when they come along. This letter has really shaken me up I don’t know what to do? Do I go back to GP or Onc and get the to refill another DS1500 form in? Or do I try and apply for PIP through the normal route, I think if I do it this way they will stop my benefit. The benefit was supposed to end next April so this has come as a shock. Any advice ladies?
Just been for my PIP assessment and will hear in 4 weeks if I can keep it …
Basic questions which I think I answered honestly so it’s the waiting game now.
Just keeping u up to date as I fear that many of you will be getting this now and so pre warned! !
Hello all,
I haven’t been here for a long time so hello to everyone new and old.
I had a DS1500 signed by my GP for the renewal of my PIP claim and have been told by the DWP that this is not enough to qualify me for any PIP and I will need to fill in a complete form. The DWP phoned my GP and based on what she told them (which was written in the DS1500) they have decided that I am not ‘terminal’ for the purpose of awarding benefits and therefore ineligible to claim under special rules.
Has anyone else been told that they aren’t eligible for special rules even with a DS1500?
Tink x
Well following my assessment last week got a letter from DWP .to say that a decision hasent been made yet as to whether I can keep my PIP. .they are still putting all the paperwork together …
Phew …what bureaucracy !!
Hugs
Fingers crossed crossed for you Carolyn ??It’s very worrying how/why they are clamping down on us!!!
Hugs Janette xx
Just to conclude my moaning about pip …got a letter today to say I can have £55.65 per week for daily living needs and £22 a week for mobility needs …it’s now fixed for 3 years so it’s less than I did get awarded 18 months ago but better than nothing …hope I live another 3 years to get my money’s worth out of them !! Ha ha