Got back at a resonable hour - didnt have to worry about kids as friend was bringing them back from stables.
So had afternoon to my self - slept bit. Unfortunately this time i was sick last night * this morning BUT fingers crossed its abated…slept for ages and feel better.
Left OH to get chips on way home for them all for tea cos i could nt face cooking…kept telling kids hes be 10 mins finally bought tea home at 10pm!!! would have been easier to do it myself.
Again I said today have your phone with you cos im not 100% then when I ring him he not answer!!! so had to collect kids myself.
Good job it wasnt urgent!!!
hope you get some rest.
Im off again soon
Oh mate, sorry you were sick and had inconsiderate OH to deal with as well. Do you think it’s partly that they just don’t know how to cope?
On another thread, someone said that FEC is like being hit by a train and TAX is like being dragged along by it and I agree with that analogy. Have felt terrible all day. Just can’t get comfortable with all the pains in bones, joints, internal organs, head, mouth, gut (ie everywhere!!) and am sooo tired but can’t sleep. Happily OH has been great today, realising that I am so below par, and I went off and had 3 hrs to myself to rest while he had the kids, and he did the dinner. Feel another early night coming on, but wanted to check that you were ok after the FEC - hope the fog passes for you quickly this time and you get some time to yourself with your girls away.
Cheers -feel bit better now - sickness stopped still bit nauseous. Have managed loads of sleep. The girls left me sleeping sunday and prepared all the veg for dinner - without being asked!!
Lot of running around yesterday getting them ready for camp - mind you they dont seem to have a nice week weather wise!! BUt had real quiet night which has helped. Cos had so much stuff in the car I had to leave the dogs at home in kitchen for a couple of hours…not wise puppy helped himself to my strepsils and the anti sickness tablets!!! he seems fine . Plus there was a pot of salt on the floor to clearup. and he shredded my parking permit for the onc centre at hospital!!! So how to i explain the dog ate my expensive tablets!!! Off to try and do a bit of work today - easy one then quiet afternoon.
Hope the joint pains ease off - i think thats worse not being able to get comfortable… cos at least when you get comfy you can usueally get some decent sleep. Take care dont overdo it (pot kettle black springs to mind here but hey ho) thats me.
Bye for now
Leesha xx
On Sunday I felt worse and worse and my temperature was up to 38 in the middle of the night, so I was thinking as I lay awake of calling the out of hours Dr, but then I thought I coudln’t get in to see them as I coudln’t drive like that and OH woudl need to stay here for the kids, so I didn’t. I had an appt for my line clean at 930 on Monday anyway, so just went with that. I ended up being in there till 1pm, having had all manner of tests including a chest x ray. I must say that I was treated like royalty, put to the front of the queue for everything, which made me a bit worried.
Anyway, they decided it was an infection of non-specific origin and I was discharged with a sack of antibiotics, penicillin and strong pain killers.
Beginning to feel a bit better today, not a lot, but a bit. Have had to cancel our trip to the UK.
Is the dog still ok after taking your drugs?
Don’t work too hard!
OH has been good, but now he sees that I am recovering he sits back and lets me get on with stuff!!
Hi Leesha & Kinden
You both seem in the thick of it at the moment I’m sorry to hear you,re feeling rough and hope it will soon pass and think it’s time the OH’s had a kick up the backside & faced reality.
Luckily I’m keeping fairly well except that my joints are getting weaker with the hormone treatment so my knees keep giving way and I keep doing my back in, oh what joys! I feel like an old crock but am always aware that there are those of you that are having to put up with worse. Take care both and keep smiling, your friendship with each other obviously boosts you up when you’re feeling low. Keep the thread going it’s nice to join in every now and again to see how you’re both doing
Luv Maggie
x
Hi Maggie - always good to hear from you - will the joint pain improve at all? That i think must be tiring cos joint aches are always there - not easy to rest them…but hope you managing to keep up with all you want to do.
Hi Kinden - soz to hear about the infection - never ending at the mo…hope by now anitbiotis have kicked in well and truly and yr now on the mend.
Im on a good week now - nall side effects momentarily gone and its as if nothing wrong. till next friday!!! but ill not wish the week away.
Took girls to cross country last thursday…well i needed an oxygen tank…it was up hill down hill…it was great watching them…but i was knackered by the end…but think fresh air did me good…i felt more healthy if that makes sense. Then spent lazy day friday watching their end of camp show which was good fun.
The OH had to drive them to a local show on SUnday …got there at 9am left at 5pm…did he moan about how much longer was he going to have to waitr around!!! I do it all the time…although i will admit only on here not to him…that it was going very slowly even i was fed up by the end. Any way girls enjoyed it…they go as much for the competing as meeting up with friends who they only see at shows.
It looks like we’ve got something on every weekend to end sept… OH will have to do more driving…
Hes not working today so Ive put him on ferrying girls about all day and field maintenane while i work at home…Hes doing it without moaning…wheres the real one gone?
So life good this week - hope yours is shaping up… talk soon
hugs
Leesha xx
Hi Maggie - it’s lovely to hear from you, and certainly helps me feel that there is light at the end of the tunnel, albeit a fair way away just now for me. I feel like an old crock too! I hope that the joint pain passes for you as your body adjusts to the drugs; are you taking anything for it?
Hi Leesha - I feel exhausted just reading what you’ve been up to! It does sound like fun. So he should do the driving around without moaning. Have a great ‘good’ week and don’t work too hard.
As for me, the infection took some kicking, but at last I am feeling a fair bit better. Still have diaorrhea, weak and tired and soles of feet really sore and temp is still slightly up, but other than that I’m ok! On Friday night when I was lying in bed with the duvet up to my chin and still feeling freezing, I said that I didn’t know how much more taxotere I could take (due 2 more) and since then he has been more considerate and done more/asked me what needed doing (it should be obvious, but …!) so I have been able to rest more as he really wants me to finish all the chemo.
I feel anoyed by how tired I am, and guilty that I am not doing more with my little girls, but hopefully if I rest the horridness will pass faster and I will get through the chemo without any further delays.
Am seeing the onc on Thursday. Hope I get to see the head honcho not the sidekick, and will ask if they can slightly reduce the dose of tax, as the chemo nurse said there’s a fine line between killing the cancer cells and poisoning me!!!
Am loving my wig. People don’t stare or do that quick look away that happens when I go out with a scarf or buff on.
Kinden - you can do it - only 2 more - then you can recover a bit and have a good winter with the girls - Im really looking forward to a mega christmas, and look forward to next year…plan some nice things in to look forward to. I had similar last week - thinking why dont i just stop now done 4 surely thats enough…then manage to get perspective…but that only comes when your start feeling good again. So while youre feeling crap how can you expect to feel postive? Dont beat yourself up about it, im glad OH is letting you rest…get as much as you can. How about getting a massage or some reiki… At chelt we get 6 free sessions of alt therapy…Ive not taken advantage of it…but have spoken to some who have and they really rate it. It really sounds like Tax is harder than FEC…
I did work yesterday got loads done…ut was supposed to see a client…couldnt find car keys looked everywhere…wasnt my brain not working …my eldest had gone off with keys in her pocket…So i stayed at home all day…was very nice…
Saw the onc on Thurs and was shocked when he mentioned stopping chemo now. He said my bad reaction was rare. He recommended that I have the next TAX and probably not the last one, depending on how I react to this one as the side effects may outweigh the benefits. At my suggestion, they are going to slightly reduce the dose a bit, by 10%.
Dreading next Tues as am still suffering from the last lot, but will have it.
Will be really difficult decision re no3 - seeing onc next on 18th Sept so will decide then.
I do get 6 free aromatherapy massages (without any aromas as they are bad for us chemo chicks), but I have to go to the hospice for them and they are really busy so have only had 1 so far. Next one booked on 11th Sept so really hoping to feel up to going to it.
I am looking forward to a mega Christmas. We booked in January to go to Lapland on 23rd Dec, and will be in the Ice Hotel overnight on Christmas Eve, seeing santa etc, then going to Stockholm for New Year, so really looking forward to that trip. Girls and OH will love it too.
Am missing a really good friend’s 40th birthday party in the UK today, so feel sad about that. Would have seen lots of old school friends if able to go. Will have to have a huge party next year for my 40th to compensate!
Hope you’re enjoying your good week now, not working too hard.
Hi there good to hear from you. Christmas will be fab!!! Bet yr girls will love it…bring out the kid in us all…
Wierd the reaction to stopping chemo…we hate having it…but…the suggestion that we stop is a hard one to come to terms with…even if it does make you feel c’**p each time. Hope you dont react so badly next time…good idea reducing the dose. I just keep thinking its near the end…well the chemo anyway.
I think im going to re celebrate my 40th - it was last OCt and i wa going to do so much in my 40th year…didnt really paln in chemo but well cant have everything!!! So will have to celeb being 41.
This week been good…done some work…not too much…
But guess what I finally rode my own horse today…first time since April…she was so good… i was so nervous…cant wait to do it again .
Anyway got to have sunday lunch now (tea time mind) Best f luck 4 tues Im on No 4 on Friday
So glad you’ve been able to ride your horse, well done you.
Had a really bad weekend with a sore bum, couldn’t sleep or walk with the pain (see another thread I started ‘Really sore botty’) on Undergoing Chemo. Spent another half a day in hospital on Sunday.
Today have had my 2nd Taxotere. Feel ok so far, but that was how it was last time, didn’t feel bad till the Friday. I don’t get that drugged up feeling like on FEC and the fog isn’t the same.
My hair is growing back. It’s really weird to see. I didn’t expect it so soon. It is really soft and fluffy and bits look quite dark, although it is difficult to tell with the little bit of regrowth that’s there. I might look like a badger for a while!!
OH is being good too!
Good luck for Friday, hope there’s not too much stress finding a vein and you get to use the mobile unit.
A friend has got my eldest and OH has taken the youngest out, so going to have a rest now.
I am on the mobile bus friday - i nearly forgot to ring & check…i thnk subconsciously i didnt want to think about it…might go away…but reality check had to make sure i got appoint for friday and sort out bloods for tomorrow. However much i dont want to do another one…I know I have to…wheres freedom of choice gone… I like to think im choosing to do it if that makes sense. Hate it when im feeling good again…
Had bad news this week too …the man who inspired me to referee at horseball died this week…cancer of lung & spine!! What sh***t hes such a lovely man… unassuming & genuine.
Before i was dx - i knew only 2 people who had cancer…now its eveywhere i turn…what is it with life?
Sorry having a moment…over now
Hey on thurs i got to admit to nurse that dog ate my anitisickness tablets!!! so i need more…
weather here isnt helpng…feels more like nov. we actually had roarin coal fire yesterday…it was lovely…but a bit of sun would be most welcome.
Hope your bloods are ok and you can go ahead on Friday, gets it nearer to being overwith.
I know what you mean about cancer being everywhere, I notice stories on the news about now all the time as well as everyone telling me about everyone they ever know who had it.
Was the nurse understanding about your drugs!!!
Have had some sun here, but also some really heavy rain and it’s defo colder.
Well, am feeling ok on Day 3 tax too, so thoroughly hoping that the reduced dose has helped, and I have not got diaorrhea this time so that’s hopefully a good sign. It was Friday before it kicked in last time, so I’m waiting with baited breath a bit for tomorrow, and have no plans for the weekend.
Hi - am on mobile bus defo -assuming can get through flooded roads!! have had so much rain certain roads are flooded.
Yes nurse was very understanding - just said shed get more put on the bus for me.
Heres to nearing the end…hope you ok today.
HAvent ridden again yet had so much work on. will def get going again soon.
back to school gone ok - my youngest has done really well as shes been put up a set on both maths & english…which considering her dyslexia is brilliant…as she has tried so hard last year for thing s to click. They both seem reasonably happy with the new teachers having got rid of a couple they didnt like last year… it was great to hear them discussing it…normality…
Done all the shopping yesterday - so no need to do anything this weekend…lazy one …
take care
Hope you’re having a nice restful weekend with the FEC-fog soon starting to lift + not sick this time.
I must admit I’m feeling pretty bad, but not as bad as last time. It’s more achey than painful this time and I don’t feel so much like I’m being stabbed everywhere as being weighed down. Have been really sensible with rest and taken drugs before getting really bad, which is helping. Arms + hands worse than last time though. If it doesn’t get any worse, I think I’ll be able to face the last one.
Glad back to school went ok. WE go back a week later here, so my eldest starts primary school on Tues, and I will be there come hell or highwater (actually, wehave had a load of rain too!)
Nails are sore, but hair growing back - I will look like a badger as some is really dark and some white, but hey it’s hair!!
This one went better - tired but no sick - bit groggy - but muddling along - getting done whatever i can then crashing.
Oh stayed at home today to do housework which nice for a change.
Got back from treatment on friday having left dogs for 4 hours on own to lovely mess!!! Now got chewed door in kitchen and carpet!! so thought i’d vacuum up mess to find cable on vacuum had been eaten!! Cost me a new one !!!
Good on the hair front…mine looke like i’ve got some longer fluffly bits not a lot but a bit…cant wait for it to strat covering…especially in this wet & wind. Scarfs off gone to beanie look its warmer!!!
It’s nice thinking only one more to go - seem like a small light at end of tunnel…the rest cant be as bad can it?
take care
xxx
Leesha
Just when i thought it was better…inflammed arm no sleep tired fed up p***d off and feel sick today. Oh and rubbish weather - thought i’d be feeling good about only having 1 more to go. Even can guiness didnt help! Want someone else to take over for a while - as if that happen. OH has taken kids to school…big deal… Hope u ok roll on next week i know ill b ok then. just bit of a downer today. Had to happen didnt it.
So sorry that you’re feeling poorly again mate. This stuff is so horrid isn’t it?
Have you read the thread about really fed up and wanting a rant, something like that anyway, under the chemo section. A lot of the posters on there say that the one before last is the hardest, so we’ve got the easy one to go.
I think it would be great if our OH’s could feel what it’s like for a day. Mine did 3hrs work yesterday on a project he’s doing as a consultant, and the moaning afterwards about being tired! I am shattered, exhausted all the time and yet he asks me questions relating to his project knowing my chemo brain is shot to pieces!!!
I had my 2nd free massage today and it was wonderful. Skin now feeling a bit moisturised for the first time in ages. Hope to fit another session in (get 6 free here) before I come across to England for rads.
Starting school has gone really well so far for my eldest. OH is mostly taking her, but we all went to take and collect her the first day. I hadn’t really thought about the social aspect of meeting the other parents outside the school, but that is a bonus.
Anyway mate, have a great sleep and rest more. Do you need to get treatment for your arm?
Take care and hope it passes soon for you
Hugs
Kinden
xx
HI - not so fed up today…took kids to horseball weekend comp - it was great to c everyone again i even did a bit of refereeing- not ridden though. mind u my arm was still very painful and i was worn out by sunday - my brother came as well so he took over and drove lorry home. i finally gave in today and rang the helpline at hospital…ha dto go in and get checked out – it is inflammation but the docs given me stronger painkillers and some cream for the inflammed vein. So hopefully i might get some good sleep and feel better soon.
Glad the school bit went well…and yes it is good to meet other parents…i can remember mine at primary …i quite often spent 1/2 hour chatting with friends there… not quite the same when they are at secondary - who wants parents hanging around?
hi thought id let u know arm grad getting better what a relief. roll on next friday get it over and done with. that how i feel now. looking forward to a couple of normal weeks before rads start. and hopeing for some nice weather. My b’day is end oct - so trying to plan something nice not sure what yet. But if i wait for oh to think bout it nothing will happen. He never does b’days or any other celebration. Whereas i like planning surprises…mt eldest is 16 in Feb - so has asked if she can have aparty… its the day after valentines - so ithought it be nice for her to have something else to look forward to. So am looking for a reasonably priced venue & disco. Shes off to a 16th next sat - all black & white!! (been watching too many US sweet 16 om TFM) Might have to pull in some favours from clients with pubs…at least itll give me someting else to concentrate on which is a good thing.
how i doing? Got anything planned for after last chemo? mark the week…
I’vwe also been discovering facebook…it must be my age but tis taken me ages to understand it. And i can finally c some benfits to it.