Progesterone, assorted other hormones and fluffy cake

Going through breast cancer treatment Hormone therapy
2621

Good morning Willows,

 

Beautiful day here, shame a migraine is on its way.  It’s my own fault as I was gloating on Thursday that I hadn’t had one for about 7 weeks, then bham, got up yesterday morning and had all the signs that one was looming.  I was meeting my friend for lunch so dosed up with painkillers. Enjoyed lunch but by the time I got home it was straight to bed with meds, magic stuff, takes the pain away but still have the other symptoms, now   it’s building up again.  I either get one day or three day ones so guess that’s tomorrow sorted.

 

Going to catch up on all your posts while I can then I’ll be out of action for a few hours,  medication knocks out out completely for about three hours, bliss as when I wake up, no pain.

 

I hope all you mums are going to be spoiled rotten tomorrow.  I always used to get daffs and chocs from Gypsy and Myrtle in their day, such clever dogs, they knew daffs are my favourite flower apart from Lily of the Valley xx

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image.jpegHelena…saw this and thought of youxxx

2623

Hello Delly
How rude of me …I didn’t answer your question …I.live in Exeter …yep mum to three and nanny to four …and two grandogs …do doggyday care during the week for them.
House always full of dog hair and kettle always boiling up cuppas but wouldn’t want it any other way !!
Sounds like your life is busy with all the hospital appointments too …
Xx

2624

I was itching to start on my border project today, but I reluctantly decided that there’s no better time to paint the fence before the trees come into leaf and all the plants explode into life. So i spent the day picking my way in between the plants and fretting over paint splashes on new leaves. I think this will take a few days, it’s much slower than i thought. So I’m very jealous of Janey and Helena for actually getting some gardening done, I’m stiff and achey from reaching out over shrubs.

We went out for a meal tonight, we don’t usually go on Mother’s Day because we’ve had some bad experiences in the past, so we usually plan on a quiet day.

 

Lesley, hope the pills have kicked in and the pain is gone.

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Cooo-Eeee - Where’s Mummy Charys gone to?? Are you alright, my little pumpkin? Am hopin so

And I reckon Lillium’s snook off back to Italy without telling me - Hope you’re okay ?? We all keep askin after you. 

Oooooo - Lush-Lesley - Another nasty head. Perhaps you need to take more medicinal wine, at least that way you can call it a hangover head. You, Helena, Sue and I need to have a Not Mother’s Day !! Any other chillen less women? What day shall we choose?? We could all give each other a pressie. I’m so with you on Lily of the Valley - so delicately pretty, as Snowdrops, but with perfume. When I was refurbing this house to sell (foolishly fell in love with it -something all serious house refurbers tell you NOT to do), got totally carried away with the garden, amongst other things like refurbing the deco oak staircase. Even in creating a last of the evening sun seating area, with perfumed climbing roses and even a perfumed Clematis. Was well into gardening and the names of this, that and t’other at the time. All now totally overgrown, but I’ll get back to it sometime. Trouble with me and gardens, is that I’d rather be out walking the hills/countryside than gardening - anytime. It’s people like me that need a regular maintenance guy/woman to keep it all in check, and I can then occasionally potter and pretty up if/when it takes me.

Helena - Are you feeling better?Hope you’re recharging? Enjoy your break doing what you enjoy. 

Janey - Loving your pots photo, I have it in mind to find some blue glazed planters at some point. Yours must smell luvverly with the Hyacinths. Yeh, thanks for your ref. my eyes. Had a drive today and night. WOW what a diff. No halo’s around headlights, or distortion in sunlight. S’ good.

DarlinDizz - But your fence painting is all part of the gardening “groundworks” required, before you get to the “Good Bits” no??. Hope your feelin more positive today. Have you a date for your surgery, or not yet??

Carolyn - Ahhhh, another who lives in that famous place and centre of the Devon universe. I envy you. Have now noted it down on our different areas list. For official reasons, I’ll have youknow.

 

Hope you all enjoy your Mum’s Day tomorrow/today. And we none Mums too. 

Lotsa love for now

Dellypoos xxxxxxxx & xxxxxxxxx !!

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All you fluffly mummies

 

Mothers Day.png

 

 

Have a wonderful day

 

Helena xxx

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Oh, thank you Janey, they’re beautiful xx. Thankfully migraine hasn’t returned, just a continuous bad headache that won’t shift, and Delly, unfortunately not a hangover.  One good thing is at least when my head is this bad my liver gets a rest as the last thing I want is vino when I feel like this, every cloud and all that.

 

Happy Mother’s Day to the mums, and happy sunny Sunday to the rest of us.

 

Not writing anymore as not doing head any good so won’t mention you all by name but thinking of you all.  Getting concerned over Lily now, has anyone had any pm from her? Xx

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Lesley
You poor love suffering migraines …could it be just the hormone pills you are maybe taking ? They play havoc with the whole body .
My poor sister has had them for over 20 years …the doc has run out of ideas for her …she’s had acupuncture …reikki …you name it …nothing helps … xxxx

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Hi Carolyn, my sympathies to your sister, I feel her pain.  No, Not down to the anastrozole, I was taken off it after 4 months as it made me so ill.  Was supposed to be a short break to get well then have another go.  Haven’t got round to giving it another go.  I’ve been getting migraines for about 20 years too, but now have a concoction prescribed by a neurologist that stop the pain (though not the other Sympthoms)  what is much worse though are the daily chronic headaches I suffer from and no cause can be found.  Lovely Lily on this thread is a fellow sufferer, she too gets a headache most days.  She’s gone on the missing list so hoping she’s off having fun somewhere and just forgotten to request a a leave of absence xx

2630

 Wishing everyone a happy day today, whether mums or not, we all need a day to celebrate being us. What beautiful weather to coincide with the clocks changing, now it really feels like spring. Today we’re having a bit of a rest day, OH is cooking an easy lunch, and later on were going to the cinema, in fact were going tomorrow as well. It’s not something we do very often, today we’re seeing a sci to film and tomorrow The Lost City Of Z which is based on true story about an explorer. Anyway, they’re hopefully both a bit of escapist entertainment, which is what I go for, no gritty realism for me.

 

Helena, garden lights are on my list for later this year, we put an irrigation system in last year. I presume yours are low voltage? I do love seeing trees lit up from below, and we have a jasmine arbour with a seat under, so it would be nice to light that up. I’m frustrated at the amount of time I’m going to have to spend doing donkey work before I can start on the nice bits, I’m going to take out a couple of big shrubs which will be difficult, and if we do put lighting in we should put the wiring in before we put any new plants in.

 

Delly, I have an appointment in June to see the surgeon to talk about symmetrising surgery, I have to leave at least six months after rads to allow for any more shrinkage. I’ve left most of July and all of August free in the hopes it can be fitted in then. So in the meantime I’ve bought a pocketed swimsuit for my holiday in May. I’ve often found it difficult to buy swimsuits because I don’t like showing much cleavage, but pocketed ones just come up a bit higher, so I actually found them better. And they do them in longer body length which is my other problem. I’ve found pocketed bras mostly awful so the swimsuits were a pleasant surprise.

2631

Hello optimissy
Phew that is awful having a back spasm like that …the pills do have different side effects and everyone is unique to them. Maybe you have a generic brand which is causing it …I take letrozole which is similar and always get the same brand from the chemist …one I had caused blurry eyes !
The side effects might settle down …it takes six weeks to kick in …so they are just testing you maybe !!! I took tamoxifen for two years and anastrozole for three years …always had the original brand and no trouble.
Hair thinning is a common problem on all hormones …when I wash mine …it’s like a dead cat or something on my shoulders .
Xxx

2632

Morning Glories!
Well here I am, last Monday off before full time next week and I’m waiting for my surgical review at the lovely hospital you know so well too Carolyn! Wish I was in the sunshine. Lunch planned with a friend later and a trip for more seed tray buying - I may have been a bit over enthusiastic with garden planning!
Optimissy I take accord brand. I think my body has now adjusted, other than 2nd menopause. However, despite my DEXA scan showing brilliant bones, my joints are agony and it takes me a while to loosen up, even after just a short sit down ?I’m guessing it must be the tablets, as I was fine before.
I hope the sun is shining on all of you wherever you are. Dizzy/Helena I don’t have plugged in lights but have a string of solar lights wrapped around our apple tree, which I love.
Lesley, I hope you’re feeling loads better xxx

2633

Morning lovelies, I’ll be thinking of you Janey xxx just popping by to see how you all are and to send you much love xxxx

2634

Hello again! Well that goes down as the best appointment to date. Feeling hugely supported and listened to. The registrar is the family clinic BC doctor. She had heard of Cowdens and told me we would become very good friends, if the diagnosis is confirmed, which she thought is likely but hopes isn’t! She had a good feel and all healing properly. I should wait 6 more months before I ask for a small fillet. I asked about prophylactic surgery if Cowdens is confirmed. She told me no rush but if I decide to have it, they could possibly preserve skin and nipple. Most importantly she asked about the medication. I told her about the worsening joint pain and she said swap medication to exmestane. Prescription in my hot hand, although now I can’t remember if she said to take a break of4 weeks or 4 months between the two! My mammogram is due July/August (12 months post surgery) and another appointment with her in Sept/October. So much more empathy than the oncologist!! Now I am going to enjoy the sun and maybe hit M&S or Waitrose for a treat supper!! Xxx

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PS Helena, it’s time to start pricking them out into their own pots (if they now have 2 sets of leaves! Xx

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That’s fantastic news Janey and how wonderful to have such support. I’ve still not heard anything from the Bc surgeons about appointments and such like but I’m not to bothered at the moment I just want to get this gyne thing out of the way. Its beautiful and warm and sunny here Helena and I’m so pleased with myself I managed to cut the back lawn today it’s the first time I’ve done it since surgery :smiley: and I did a bit of weeding out the front now I’m well and truly shattered but happy. I’ve had such a lovely day after having a few really down days, I went for coffee with a friend then met another friend I haven’t seen for years on the way out, she’s one of those friends who you just click right back in with. My smear test came back negative so that’s fab. My only dilemma and I need help please is I’ve been called up for jury service in May !!! I’m going to ask for a deferral or if I can to be excused I’ve got possible surgery to deal with and to be honest after all the Bc I’m in no fit state to be making clear judgements I just don’t know what to say. Any suggestions please. I hope everyone is having a fab day much love Clair xxxxx

2637

Hello everyone
Wow …what a busy thread to catch up with but everyone sounds busy and well.
Janey. Yes the hospital here is very good but so maniacally busy at times …I’m there in a few weeks to c my oncologist .
Exmestance is another hormone pill so hopefully it will be easier for you to tolerate.
The weather here has been gorgeous but I just keep washing things …sure I have a naughty elf that keeps filling up.my washing basket when I’m not looking !!
Xxx .

2638

Another beautiful sunny afternoon Hello Scrumptious Fluffies,

Well, I’ve just sent an official search posse message to the Lovely-Lillium flower. I’m hoping like mad she’s okay, as we all are. If I don’t receive a response, I’m getting in touch with the Italian police. In fact I may go over myself

 

Janey - Wow!!! What a wonderfully positive, supportive appointment. Soooo pleased and glad for you. I’m sorry to be a pest, as you may have given this info out before (praps when I’ve been AWOL), but what is “Cowdens”?? and what are its ramifications?? Is this all to do with the genetic tests you had done? and when will you receive those results, cos you seem to have been waiting an age. Sorry for the bombardment of questions. Hoping that it isn’t the diagnosis, from what you’ve said, surgically wise. Enjoy your treat supper - you sooo much deserve it.Your poor painful joints.

LadyHelena - I’m so glad you’re feeling much better. Think your this mornings weather improved.

Absolutely lurrrrv Peonies ( Erm, just had to rectify my spelling of that word, it being close to the pleural word of the male genitalia, had to add an O, and 2nd E and remove an S!! Freudian slip perhaps, or maybe too much looking at some beautiful nude statues/sculptures yesterday. Hahaha - sorry, brought the level down to a naughty one (nothin new there ‘ey), but soooo made me chuckle at myself - nothing like being able to laugh at yourself, along side being able to humbly self criticise and realise one’s own failings. Glad I spotted it before I posted tho’, otherwise Charys would have had a heyday with the “incorrigible” word again.(Where are you girl??? Are you okay?? Gonna be sending out a posse message to you v. soon - unless you report in. You haven’t flitted off to Italy too have you?? Mmmmm)

Luscious - Yes you know who you are. So hope you’re having a free from headache day today - what a flippin pain (sorry) for you to have to put up with.

Optimissy - Such a good name girl.I need some of that positivity injected where it don’t hurt!! Reading back - how’s your scar now? You were concerned about “lumpiness” at the ends of. There’s sooo much goin on underneath the skin tissue with its healing process (had to learn all about in my training). Just a 3/4" gash to my boney browbone area, from a recent car smash a few months ago, had a hard lumpiness under the external scar area. Very much reduced now. Takes quite a while for the tissues to repair, knit and heal. The human body never ceases to amaze me - what goes on underneath out of sight. Hope your back settles given time and praps your meds. I’m not on any medication - refused to carry on with Tamoxifen, after 2 weeks of being plunged into a seriously massive depression, and the reason for my initial appearance on this thread in response to Charys’s experiencing similar. Even without it, ref hot flushes, guess am just unlucky, post menopausal. Totally spoils my previous enjoyment of the Spring and Summer months, which I’ve always previously loved so much, temperature wise + everything else about them. Now, I enjoy the cooler months better. Even benefit from lower heating bills!! Have to keep turning it off Autumn and Winter ! I’m hoping your back pains can be attributed to your meds.

 

Darlin-Dizz - I so loved your statement "We all need a day, celebrating being “Us” " !! Brill ! Did you enjoy your films?? Apart from pocketed bra’s, I’ve never bovved with pocketed cossies (didn’t have the need for). I was nicely surprised by/with the cossies I previously mentioned, coverage of skin wise, protecting my upper boob area, thin skin recon wise. More than met the requirements. Chuffed. Without wanting or wishing to sound vain, it was just sooo good to see something of my old bod back - looking  p r e t t y  okay (!!) considering.

 

Loada Bo**ox all of this, isn’t it !! I soooo feel for all of you. Had another reminder today from discussions on Rad 2 this afternoon - cancer was being discussed. At my diagnosis, 2006, 1 in 9 women were being diag with BC (9 per per 90). Today, it was again said, statistics are now 1 in 8. Thats in over a a 10% increase in a 10 year period - sorry to be a doom-monger. S’all very frightening. At the same time, the good news is - treatments and prognosis keep progressing since my 10 yr ago diagnosis experience. Long may it continue to be the case.

In last Fridays “Mail”, there was a recent medical/scientific report - now dispelling much of the previous “so called” causes of cancer, saying that much of it, apart from smoking (often directly related to lung cancers, tho’ not always the cause), certain genetic, or, in my Dads case, certain environmental substance/chemical “exposures”, eg. Asbestos caused type cases, and similar - -  it’s mostly down to simply, bloomin bad luck !!. That sits well with me and all others who knew me and were so shocked by my diag, in that I was in and at my prime peak of self conscientious health and fitness levels when initially diagnosed, exercise, healthy diet, alcohol and smoke wise. Much is now being attributed to an accidental biological “over processing” in the cell multiplication process,

Look up the definition of Cancer - an abnormal growth, either benign or malignant, caused by the division of cells being influenced by certain factors - trauma, chemicals/substances (again, as in my Dads case - asbestos producing aggressive Mesothelioma of the lungs), viruses (e.g. cervical cancer) that would be normally destroyed by the body’s own natural defence mechanisms. Look up the word “tumour” - an abnormal proliferation of cells causing a growth. I’m now speaking from my previous profession - Verruca’s are classed as"tumours"/growths - caused by the effect the Human Papillome Virus has on skin cells, once it’s infiltrates one. Some consultants refer to “cysts” as tumours, or vice-versa. Easy to be over-awed or frightened by medical terminology sometimes and also good to know Cancers causes are still being questioned and researched into.

 

Love to everybody

Delly xxxxxxxxxxxxxxxxxxxxxxx 

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Thank you Helena xx it’s lovely to do something normal for a change.
I’m spoke to a very unhelpful lady on the helpline who just kept saying write it in your reply and we’ll defer it. I rang the Drs to see if he can help and he’s going to ring back tomorrow. I’m in no state to do it and I can’t give any dates because I don’t know what the future will bring in the next few months. I can’t believe the timing xxxx

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Evening you fluffy wonders. Carolyn, I do think we are lucky with that hospital. Parking though …! I’m mainly based with the hospital next door (250 spaces for staff and patients, with 500+ staff!), although in Tiverton tomorrow, while we still have community hospitals! The consultant said this hormone inhibitor should be kinder on my joints. My feet and hands are particularly bad.
Delly, Cowden Syndrome is when the PTEN gene goes awry. I’m still hopeful I don’t have it, but if I do, then it will be lots more tests, as high risk of multiple cancers. Mum has just had her 3rd primary and I’ve had 2. Some people opt for bilateral mastectomy and prophylactic thyroidectomy, but I figure Mum is still doing well despite her big C fights, so monitoring will be the key. That said the Occ Health woman told me not to worry, as she’d never heard of it and I probably don’t have it, so to stop worrying! Anyway, I was told 8 to 12 weeks to get the results and I hit week 8 today - so I shall hopefully know soon. I’m hoping it will all have been a waste of energy worrying and the Occ Health woman can feel smug!
Clair, ring and tell them what’s going on for you. You may need a letter from your GP. You certainly don’t need to be adding something else to your list. Amazing what coffee/lunch with a friend does for the soul.
Lily, I hope you are ok and back with us soon.
Helena I’m running out of seed trays - I think I’m trying too hard to look forward!
I’m now worried I’m not name checking you all but hugs to every one of you xx