Hi,
I had a call back on my first mammogram. The letter said its very common to get a call back. But at the appointment it soon became clear that it wasnt a normal follow up. I had biopsies and markers inserted.
I had my results appointment on 1st july and the surgeon confirmed i have 4 masses, 2 in each breast all cancerous. Invasive ductual ER + and HER low.
The good news was the lymph node they tested was clear and the masses are small- grade 1.
She thinks a lumpectomy left n maybe a mastectomy on the right as the 2 lumps are further apart.
I had a MRI on monday to see if they missed any n then they will decide.
I cant take it in. I cant think of anything else except cancer.
Im trying to carry on as normal, but its so tough.
Thank you for listening
I’m truly sorry to hear your diagnosis sending a hug x that must be a lot to take in, I was the same went in for a check up no lump felt just a weird grizzly feeling and 4 Hours later numerous mammogram and biopsy I was diagnosed 3 weeks later with ER PR POSITIVE HER2 NEGATIVE right breast. My lumpectomy went well and recovering well, now on week 3 chemotherapy cold capping, honestly once you get all your answers and dates you can process so much try not to worry about something that hasn’t happened yet as you worry when you get told any news at your appointments. Don’t Google and try to Process bits of information any advice give me a shout if I can help I will and use the help lines they are amazing too xxx
Hi,
Thank you, thats really kind. It is so much to take on. Im glad you are healing well after your op n I hope the chemo isnt too bad. I have googled myself out and am now trying to stay on sites like this as the information is quite clear.
the surgeon said at the moment it looks like i wouldnt need chemo as HER is low ? But i couldve got that wrong as it was a lot to take in, in a short time.
How long did you have to wait between diagnosis and surgery?
Please please stay off rogue sites you will get into a big hole honestly xx it’s always approx 2-3 weeks which is the longest but I understand they have to take it to MDT and await plans moving forward but once all the things start slotting into place it will become much clearer, that’s good if no chemo then have you or have they mentioned an onka type test for peri or post menopause sorry I don’t know your age so don’t want to presume xx
Hi, they’ve not mentioned an Onka test, should i mention that at my next appt? Im 53- peri menopausal,
If they haven’t mentioned it then it may be that it’s not required everyone’s diagnosis and treatment plan is different, my results came back high as I’ve gone through the menopause and that’s why I’m having a preventative chemotherapy plan so as you said you didn’t need chemo that’s probably why, you will be a medical genius after this all the names of treatments and jargon xx
So sorry about your diagnosis and yes it goes round and round in your head and it can be hard for your mind not to go off down rabbit holes . The only thing you can do is to try to keep busy and do things if possible that make you feel happy in the moment and take a day at a time . If there’s a good friend that you can talk to I would advise doing that but not everyone until you have a plan. When you have had your MRI results and get a definite plan believe it or not things usually get easier because the lack of control is one of the things that can be so difficult to cope with. You can then also have a place to start with if you want to as to getting information about your particular brand of this **** thing .
I only had it one one side but there are plenty of people on here who have had BC on both - they got through it and you will too . You might find it helpful to talk to the Nurses on the helpline 0808 800 6000 . I’m glad you’ve found your way here because Google is not your friend right now though I think you’ve already discovered that . Write your questions down in a notepad and cross them off as they’re answered and write new ones down . Take it with you to your appointments . If you are worried that you haven’t taken things in from your appointment then hopefully they have given you contact details for your local Breast Cancer Nurse service who could go over it with you .
Reach out again whenever you need to even if you just want to vent .
Sending love xx
Great advice 
take each day as it comes and definitely keeping busy helps xx
Thank you for the advice, i will write some questions down for my next appointment. The BCN rang me after my diagnosis, but my brain was still mush n i couldnt think of the questions i wanted to ask.
I work full time, which has been the only time i can switch off and sweep it under the carpet. Night time is the worst as its so hard to switch off the thinking. Ive been trying some relaxing music to try and push it away.
Xx
Sorry you’ve had to join the club nobody wants to be a member of but please know we are all here for each other so never just sit and stew about things. As others have said don’t Google and it will get better once you have a plan in place. I kept a journal from the day of diagnosis until the day I rang the all clear bell. I found it helped to get the things I was worrying over out of my head. I was told at the time of my diagnosis that under NHS ruling you must be offered surgery within 31 days of diagnosis. Hope you soon have some answers and remember we are here xx
I used to try to think of something nice that had happened in the day that had helped me - meeting a friend , seeing a beautiful sunset , walking on the beach and feeling the sun on my face . I made myself think of that nice memory it was something to hold onto in the evening when I was feeling low and telling myself that there would be another good thing the next day - if that helps any. Xx
Sorry to hear, I know it’s a shock! I’m up and down constantly trying to occupy myself. I was told on 24 June and still having tests. It’s brutal but I think the key is to stay positive. Wishing you all the best 
Hey, hope you’re not feeling too bad. Can I ask how the cold cap is going and is it bearable? I really don’t want to lose my hair 
Hi I’m really tired today but to be expected for week 3, cold cap is fine take 2 paracetamol 1 HR before treatment have a fluffy blanket warm clothes and you will be fine. If you can get to the first 15 mins in you have smashed it don’t get me wrong it’s not delightful but bearable. When are you starting treatment xx
This is the hair care range I’m using to help with any hair loss and up to now not lost any than you normally would.
Shampoo conditioner etc
That’s good to hear. I’m not sure, still waiting for my treatment plan. Going for my second ultra scan tomorrow and then may have to have a core biopsy. Just want to know what my future looks like.
Argh ok once you know your treatment plan you can plan and get organised you will be ok it’s a lot to take in, write everything down so you know what you are being told, also questions to ask. Your future is what you make of it, don’t get me wrong it’s hard to be positive all the time but you have to try for your own sanity what diagnosis did you receive if you don’t mind me asking? And I truly hope it goes well for you xx
So I read the doctors note and it was DCI ER+ waiting for HER results but had MRI and some more suspicious items in the same area so have to have ultrasound. The main tumour is 4.5cm I think. Just hope that’s it.
I noticed as my breast tissue got really thick after starting HRT. I was only on it two months!
Hi @springer5 just popping on to add my support. If all your lumps are grade 1 you are unlikely to have chemo particularly if no lymph’s are involved. Alas they don’t really know the full picture until the tumours are removed and rigorously tested. On occasions the histology changes once testing has been done on the tumours so that’s another tricky waiting time. I was grade 1 so also know that the NHS do not do Oncotype tests on grade 1 as the Onco test is primarily to determine whether chemo would be beneficial and it isn’t for slow-growing Grade 1s. Depending on the level of HER2, which be accurately assessed once the tumours are out, they may be some added targeted treatment but fingers crossed for you that that isn’t necessary. It’s natural to be so consumed by your diagnosis but it WILL be ok. Unfortunately the only way out is through.
Yeah me too I was on hrt and I noticed a grizzly texture never in a million years did I think they would find a lump 22cm it was really early detection and they removed all the cancer with clear margins so that’s good. You are in good hands I’m sure once your on your plan it will all be a positive and successful journey xxx