Hi FF
I get an Mri every three cycles on Eribulin. My onc puts on the form…to be done the week before…the appt.
our hosp is overwhelmed with mri now as is the investigation of choice for many people. The department have just decided to run clinics every Saurday and every evening …for ever.!
i think its because there are so many drug trials at my hospital. The chemo days/chairs are all booked up too!
Moiijan
stresshead Moijan and anyone else getting results today
Sending best wishes for good results ((((hugs))))
Best of luck ladies
We are all holding your hands !!!
???
oh sorry ladies…had a rush job today…flitting about like a flea n a fit.
Scan showed another reduction in met size and also my tms have fallen by 980 since end of June!
however, the onc wants to keep me on it for as long as it works for me! Very disappointing as im needing the freedom!
if only everything could just vanish?
Hi Moijan,
Great to hear Erubulin is working well for you. xxx
Thank you Waffles…xx
Great news Moijan…stable mabel!
Hugs Janette xxx
Dear Moijan
Great news Eribuli is working for you and that is the most important thing. It would be great if you could get a break could they work one out for you although I feel when I took a break with cape it caused my progression. I now will be waiting next week to see if this one is working. I cannot plan Christmas away in France until I know what will be happening in the next 2 months.
Love and (((hugs))) xxx
stresshead I am waiting for your results (((hugs))) xxx
Great news Moijan …let’s hope you can have a little break soon though …maybe at Xmas time .
Calling Stress head …where are you? We are all waiting to hear from you.
Hugs xxxx
Hi Ladies,just wanted to let you kmow that my scan results showed i am stable…ish. There is a 3.5mm node on my neck bt as that area hasnt been scaned before they dont know if its new or has always been there, but it certailny wouldnt cause the neck/skull pain i’ve been having. My onc thinks they are unconnected bt offered me an mri to pt my mind at rest. My hsband didnt want me to have it but i have said yes…beginning to think i should have left alone while the news is good though?? he mentioned my groin, which is a new one, but wasnt concerned at all. My latest |TM had aslo gone down from 41 to 31. So, at least we can hopefully have a relatively good christmas.
Moijan, so pleased your results were also good. I am on a chemo break (not my doing) and it is very scary.I think i wold rather know i am on something that is continually working to hold this crap at bay. I do understand though that my onc did it to give my bone marrow chance to recover because he said once that goes kapput its the end of treatment. I’m sure your onc is monitoring you carefully…just try to enjoy your results for the moment.
Lots of love to anyone else awaiting scans/results. xx
Hiya Stress head
Glad to hear from you …scan is maybe a bit better than you were worrying about …it sounds like u need a chemo break though …the body can only cope with so much toxic stuff.
Carolyn xxxx
Hi Stresshead and Carolyn,
this transmission comes straight from the MDU where Miss Tricky Veins here is cannulated and having her treatment.
as its half term was a little concerned as they have less staff on but after Sorting out my heat pad and chair, i leapt in the sink, and was very lucky to spot a cns/teacher who got the needle in very quickly.
then a lady came round with sandwiches…feel very blessed.xx
Hi stresshead
Good news and puzzling news I have posted on our skinny thread. At least you can have a little celebration tonight. The chemo break may do you good the treatment stays in the body a long time I still got cape reacting on my hands and feet for a while and those TM’s are pretty good.
Love and ((((hugs)))) xxx
Hi Stresshead,
Great to hear things are stable. I can certainly understand where your husband is coming from but I think you are right to go for the MRI rather than have your imagination running overtime. Best wishes xxx
Thank you ladies for your best wishes. Already my mind is in overdrive about the mri. My neck pain shows no sign of abating so i have convinced myself its bad. As you say, i am best knowing in the long run. Just have to keep crossing the old fingers for a little longer. X
Hi all
I went for my review with the onc this time it was another consultant who is standing in for mine. She was lovely and very helpful but she said she was sorry she didn/t have the results from the CT scan. She said they were having trouble with the radiologist’s there is a shortage and they have had alot of mistakes and errors so now it is taking 2 weeks for a proper analisis of the scans. So I suppose that I will have to settle for that you never know if they are fobbing you off.
So I have to wait for 2 more weeks now still getting the treatment that is making my hair go very thin but also making me feel quite well.
Love and ((((hugs)))) xxx
Stresshead good luck for Friday
Good luck to others awaiting results
Stesshead, how did scan result go? Maybe i missed your post.
Marirose, hope things are going well for you? FF at my hospthey are so ever run in the mri dept that they are now running clinics every Saturday and on weekday evenings…for ever!
moijanxx
Hi everyone
Just to let you know I got my CT results Wednesday mixed feeling at the moment I have had significant reduction in Lungs 11mm - 8mm no sign of other involvement but considerable increase in Liver mets largest being 38mm - 58mm.They have taken me of chemo as my bloods were dropping and I have an ulcer on my skin mets and they would not heal if I remained on it.
So now I am on Fulvestrant (Faslodex) because I am recepter ER+ injections in both buttocks for 2x3 weeks then monthly and I have got to hope that works.
I was annoyed angry and anything else you can think off but I have settled down now with my sore bum and head. I will take it full on the chin or in my case derrryair
Love and (((hugs))) xxx
Hi Marierose, sorry to hear about the progression in your liver, i get what you mean about mixed feelings, how can one area be doing well and the other not so well!!
You sound like you’re getting your head around it a bit now though which is good.
Sending you a big cyber (((((hug)))))
Janette xxxxx
Hiya marirose
Sorry your new chemo isn’t doing what it says on the tin …you know we sort of get used to our treatment plans and side effects …a bit like a pair of comfy slippers but your oncologist has your best interest at heart and you are probably needing a chemo break to rest your body of the toxic stuff.
Faslodex I think is a drugs funded hormone in the UK …so you are a special person getting it !! my friend in Australia has been stable on it for quite some time so fingers crossed for you.
It means you get to keep your hair a bit longer too !
Have u asked about a clinical trial of ibrance as you might make the criteria of failed chemos and hormones etc etc.
Anyway …sending you some hugs and will make u a nice Bailey’s latte and lemon drizzle cake at cyber cafe .
Carolyn xxxx