Marierose, posted on or skinny thread but must have misread. I When you said hormone treatments werent working for you i thoght it was because you are er/pr- but now i see you are er+…at least tht means you have things to ‘go at’…try everything they offer you. I was going to until this wretched thing turned from positive to negative!!! i’ m sure something will work while you aqre having your chemo break. Lots of love. xx
Thanks for your good wishes
I have been in pain since my injections the bum is really sore but I got a pain around the stomach and lower back the chemo was a doddle compared to this I felt so good even the hair loss didn’t bother me I still had a covering after 7 cycles and my mobility was so much better now I have gone back in a short time. But I will plod on and find a way to fight it may start doing my physio excercises again I have not done them while onTaxol.
Again thanks for your concerns love and (((hugs))) xxx
Hi Marirose,
Been off the forum for a week or two so only just saw your news. Sorry you had to move from taxol when you were coping so well on it. I have heard that Fulvestrant can be quite a sore injection.
As regards back pain etc I was absolutely pain free on Cape for the three months before I found out it wasn’t working. However, I had loads of aches and pains when it was working. So for me anyway, pain isn’t necessarily a bad sign. I look on it as the drug getting to work on the cancer. Maybe, this is what is happening with you. Hope you are sleeping better. (((hugs))) xxx
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Hi ladies, just wanted to let you know that my recent MRI revealed collapsed discs in my neck which apparently aren’t cancer related. I’m not sure whether this is right as it seems a little too coincidental to me but for now i will take it. it also showed up the deposits on my neck that the ct scan showed but still dont know whether they are new or have alwys been there. from now on i will ask for the ct scan to onclude my neck so at least we’ll know what we’re up against…just terrified they are heading towards my brain. I would love a release from all this worrying. i am trying to be positive but its hard, as you all know. Your reassurance always seems to get me through. Thank you all. x
Hello stress head
See you have been busy today posting but just thought I would dip in to say that I have my fingers crossed that the scan was a panic and nothing too serious .
I think our lives would be so much better without them !!
Anyway …glad u are feeling better having a chemo break and hopefully you can enjoy a normal Xmas …don’t know quite what the " normal" means really with this bizarre disease but eat drink and be merry comes to mind !!!
Sending hugs xxxxx
Hi Stresshead, glad to hear nothing sinister was found on your scan, I understand what you mean about “not being convinced though” think we always have that bit of doubt don’t we! Like you say though take the results and sit back and enjoy Christmas!
Hugs Janette xxxx
Dear stresshead
I am so pleased to hear your scan was clear from what you thought it was. I know how you feel although you have been given a logical answer to your lumps in the neck but as we all feel there is always that doubt. I get it when I know my spine is covered with mets from top to bottom also I think I have a skin met on my head So it is a good idea to request the neck is included with the CT scan.
Sending you ((((hugs))))
Dear Waffles
Lovely to hear from you I am sorry cape stopped working for you after you were coping so well. My first scan on cape showed a reduction in the tumour so it was such a surprise when it increased to lungs and liver in such a short time. My feet were pretty good on cape but since I finished my feet are always peeling. I do hope your new tablet is working for you I was offered it but chose Paclitaxel instead which now has stopped. This new drug is a hormone drug which is used for recepter ER+ yes this drug is a jab in both cheeks of the bum. That was bad enough but the pain I felt later was quite worring in the back and groin especially as I now have mets in the liver. It lasted a few days but has now gone thank goodness I too thought could it be that the juice attacking it but I think it was wishful thinking but I have had that pain before which led me to having a MRI for the spine. It will be interesting to see how next week goes. I will get over it.
Sending you ((((hugs))))
Best wishes to everyone waiting for results love and (((hugs))) xxx
I have an appointment for scan results in the morning. Have been on weekly Taxol since March 2015 so very conscious that my luck will run out at some point. I will have been stage iv for 4 years in February. Am thinking of everyone walking this path xx
Fingers and toes crossed for you, Mollymop! Waiting is so hard…you’ve been on Taxol for a long time! I never thought you could stay on it for long because of the side-effects? I haven’t yet tried Taxol but have done pretty much everything else so that is encouraging! Xxx
Thank you very much xxx I find Taxol quite doable, quite hard in the beginning and I did have quite a bad reaction to number 4. Since then it has been largely fine, I find it easier than Cape which was my previous chemo. Thank you for your good wishes, this never gets easier!! xx
Hello mollymop
Felt I had to say well done for having so much chemo for so long …you are an inspiration for all the ladies here but stupid question …have you been all that time without your hair ? I think its one of the chemos that causes hair loss ?
Hugs xxxx
Yes I lost my hair on initial diagnosis in 2012 (FEC and Taxoterr) then it grew back in 2013, I had Vinorelbine which didn’t work and Cape which did. From a straight graduated bob to fuzzy fluff :0) I was quite glad when it fell out again!! I don’t mind at all so long as I am here.
* Taxotere sorry x
Thank you very much - scan showed marginal increase in lung mets (millimetres) although thankfully everywhere else still clear. My Consultant is applying for funding for Kadcyla otherwise it will be GemCarbo. Hopefully there will be other options after that too!! Thinking of all waiting for results xx
Hello mollymop
Well it’s sort of good and bad news isn’t it but kadcyla is a newish one and I think from reading threads …a bit kinder than chemo type so fingers crossed its financed. You must be a HER 2 + lady as I think its a follow up from herceptin ?
But you have tolerated so much toxic stuff for so long you are a tough cookie !!
Hugs xxxx
Oh FF. … try not to worry ( says the queen of stress) …scans bring back the reality of the fear factor we live with everyday with this disease but try to have confidence in ibrance which has done what it says on the tin for a long time for you …
Enjoy your breakfast , relax and remember stress feeds cancer and we will all be holding hands for you across the pond.
Carolyn xxxcc
With you all the way FF. Lots of love. x
Hi all,
Sorry I’ve been very quiet lately. I’ve been stressed out. I’ve been on Navelbine since September and wasn’t very confident it was working as I had lots of mild chest rib and upper back pains over last month. Well I had a scan last week and got results today. It turns out my three liver mets have progressed and I have to start IV Doxetaxel. The pains seem unrelated to anything and are probably stress .I am getting a liver biopsy before I start treatment. I’ve been through 3 treatments in 18 months and I’m so worried that nothing will work. xxx
Oh waffles …I’m so sorry that your scan results weren’t what you were hoping for …may be this new chemo will be better for you but of course it means different side effects again to deal with.
Xxxxxx
Oh waffles sorry your scan results weren’t too good. Hopefully this next treatment will kick the little blitters back sides!
FF, try not to let your scan spoil Christmas and hubby’s birthday. Easier said than done i know! I’ve got mine looming next month so will also be suffering from “scanxiety”
Hugs Janette xxx