Hi all,
Hope you don’t mind me messaging.
My mum is currently taking capecitabine and her last scan showed ‘stable’. She went to the doctors 4 days after her most recent scan results (a month ago) because she was experiencing some pain. She was told to go to the doctors by her lymphedema specialist nurse to help assist with some pain relief.
When she got to doctors, the dr said that he was going to write to onc to ask if she could see mum before May. (Airing on the side of caution). So anyway about a week ago she had her scan and gets her results in a week. I am worrying like crazy. I keep trying to think that she only saw onc a month ago and everything was stable but I’m still panicking.
Hope you can reply.
Kind regards xx
Sorry I forgot to add, he was sending her because of the orange peel effect she has on her skin and wasn’t sure (100%) if it was lymphedema, existing disease or new disease xx
Thinking of everyone going through this and waiting for results. As my wait has been longer than usual (will be two weeks from the scan when I receive them next Tuesday) I am an absolute nervous wreck. Have all these random pains which I have never had before, hopefully my mind is playing tricks on me. Just dreadful isn’t it xx
Hello mollymop
We are all holding your hand for good results and hopefully part of the “stable mabel” club.
My scan results are always two weeks after too …it’s standard time but its certainly squeaky bum time waiting !!!
Try to keep busy and have some nice treats …
Hugs xxxx
Hi Mollymop, got my fingers crossed for you, it definitely doesn’t get any easier results time does it!
I’m off for my 3 monthly CT in a few hours and get results next Thursday so I actually don’t have a long wait this time!
Hugs Janette xx
What good news Helen! These long waits are just awful. I hope all goes well with your bone scan. Good luck Molly op and Jeanette. Best wishes. Waffles xxx
Fab news Helen I am so pleased for you xxx
I did an 8 mile sponsored walk yesterday with some friends and our dogs to raise money for a local hospital. Trying to convince Molly she wants another long walk today but she is having none of it :0)
Sending love to you all xxx
Great news Helen!!!
Hugs Janette xxx
Had my CT results this morning, was good news - stable with some reduction. Am so relieved I can’t put it into words. Thank you for your good wishes 
am thinking of everyone going through this xxx
Hiya
Whoop whoop …join the stable Mabel club …now u can relax …enjoy something nice.
Xxxx
Thank you Carolyn I am very lucky I have been largely stable since 2013. It will be 5 years in July since my primary diagnosis. Secondary was February 2013, Would like to think that will give others with lung mets some hope xx
Fab news Mollymop, yet another Stable Mabel…hoping I will also still be checking in as “Stable Mabel” on Thursday when I get my results!
Hugs Janette xx
Thank you Janette fingers and paws tightly crossed for you xxxx
Thinking of you today Janette, fingers and paws crossed xxx
Thanks Mollymop!
Hugs Janette xxx
Hi everyone,
This week I got the good news that my 4th,5th and 6th cycles of docetaxel have worked well and my CT scan showed my liver and bone mets were either stable or with some improvement. I was so happy to hear this as I’m a glass half empty person to say the least. The only problem is to try to decide what treatment to go on next. Best wishes Waffles xxx
Whoop whoop …what brilliant news for you now you can enjoy something nice to celebrate …whisky and a slice of haggis for breakfast ?? Ha ha
Hugs xxxx
Thanks ladies,
I will have problems going back on to docetaxel because it makes my legs swell up really badly.
I’ve been offered fortnightly paclitaxel and we’re also looking into a trial as well but I need to have a certain kind of mutation to qualify for that. I’ll find out on Tuesday what is suitable. I’m thinking the paclitaxol will be the one though. xxx
Hiya waffles
What’s the difference between the two chemos …is one stronger than the other? I always thought anything with tax in its name was the same …
( in 2004 it was still a trial chemo …I was offered it but stuck to tried and tested fec as I was scared!!)
But so happy for your good news
Xxxx
Hi ladies,
Meant to say I was told that the paclitaxel (taxol) is very like docetaxel but doesn" t have as bad side effects so I may be going on a maintenance dose of that. Anyway Carolyn, off to Edinburgh for some serious haggis munching. Might go easy on the whisky though.!!! love Waffles xxx