Oh waffles have a lovely day out and enjoy it all. You have earned it after all that chemo !
Hugs xx
Thanks Carolyn xxx
I had my three monthly CT yesterday so once again waiting for results. It is 5 years next week since I was diagnosed with cancer - it never gets any easier. Sending lots of love and Stable Mabel vibes to anyone else waiting xx
Hello everyone - not sure where to post but feeling scared. Backstory is MX and ANC on 1/6/16 Her2+, then chemo, radio, Herceptin, Letrozole since. Have had tender spot on chest since autumn (prior to rads) and have mentioned it at every appointment. Asked for chest X-ray last oct which was clear. Radiologist said sometimes we just have pain with no known origin and surgeon didn’t even look at it in Feb when I went for a lump check in other side. So I’ve been living with the tenderness which has only bothered me sometimes when lying on my side in bed. An uncomfortable night last week prompted me to take action so rang BCN who got me booked into clinic yesterday. Now waiting for X-ray and bone scan and feeling so stressed. Follow up appointment will be in a month and I don’t know how I’m going to cope waiting - such a feeling of impending doom. I have masses of other stuff going on in my life so with this on top I really feel like I will implode. Any advice on coping would be great. Thanks
Hello oncewild
That’s the trouble with bc …it keeps you on your toes with every ache and pain but sometimes these are just everyday things that arnt serious but I think we all know our own bodies !
The trouble is that there is so much waiting in between and our minds go into overdrive! !
Back when I had my lumpectomy i got a stabbing pain for about a year and was sure in my.mind they had left a scalpel or something in there !! But nothing like that …just a bit of tissue pain !!
Try to focus on your everyday life but please let us know how you are doing .
Xxx
Good luck Waffles xx
Thank you FF xx scan showed slight increase in size of lung mets (have had lung mets for almost 4 and a half years and everywhere else is still clear so can live with that result!) so my Consultant recommended a change to Kadcyla which will be my fifth line chemo after secondary diagnosis. Feel a bit up and down today but will bounce back I am thinking of you all xxx
Just wanted to add you are an inspiration FF and just what I needed today xx
Molly mop
Cheer up …it could be a lot worst and the kadcyla can be a good treatment and no hair loss either.
You must be an old hand at treatment changes now and so follow ff and keep kicking the cancer up the rear end !!!
Hugs xxxx
Hi there,
when i first joined the forum i saw all these different topics and didnt know soon enough we would be living through each stage, topic, feeling, etc.
So my mom has her first scans tomorrow since her dx in june of bone, lung, and liver mets. I dont even know where to begin, i know shes worried, so i try my best to say the right things but im sure theyre not always. i feel like throwing up im so worried. i have so much faith and really depend on that, but at the same time im just so afraid. Afraid of bad news, i dont know if we can handle anymore bad news right now…
i keep telling myself no and to think positive, but at the same time i have to be prepared because she looks to me for comfort if it is bad news…
we still havent adjusted, things have improved but definetely not a normal routine yet to ongoing treatment and on and off pain and lots of fatigue, that just frustrates her because she was so used to being very energetic.
don’t know what to do ladies. sometimes we have good days, but the past few havent been so good. maybe because scans are tomorrow. i dont know…
joelle praying for a cure xoxo
Hello Joelle
I’m so sorry that you are all stressed. …it’s the scans that throw everything back into the stress pot again.
We are all holding hands that the results will be good for your mam …please let us know how things go.
Hugs xx
Thank you ladies. your care and support means a lot and helps a lot xoxo
Ff …join the club of scan anxiety …at least in US …u get them quick …mine was nearly 2 weeks ago …still living in squeaky bum land !!
Let’s all hold hands and wish for stable for everyone that is waiting xxxx
???
I’ll join that hand holding please, had my appt last week to my results only to be told AGAIN that they are still not back! Received another appt at the weekend for another 2 weeks time to get them!! ?
Do they have any idea what we go through whilst waiting for these results!!
Good luck to you both!
Hugs Janette xx
OH ff …stop feeling down …you are one tough old bird to have lived with this so long and keep exercising and doing so well …there is always something oncologist can pull out the bag surely especially in the US …where there are more drugs available …if it is a spine met causing problems. …they would probably offer rads or cyber knife to ease the pain ?
Now think about that baby girl waiting to meet her nanny in January. …
Sending hugs across the pond xxxxx
FF, I love how you got your nicknames! Thinking about you, Carolyn and Rosie, scanxiety is so hard. Hoping for great news for you and sighs of relief all round. FF, I know how you feel, I think that I’ve been through most treatments as well. Would you ever consider an immunotherapy trial, there seem to be some in U.S.but not sure where?
I decided to get a wig last week, my hair has practically gone on this trial sadly. Went for long blonde ha ha, not sure I like it as it keeps sliding, oh what we have to put up with!!
Morning FF
Sorry to hear you are on so much pain hope it subsides soon.
Good luck with your scan and results. Hope E/E keeps on working for a while longer.
I am sure there will be further treatment when this one fails especially in the US.
Take care of yourself.
Linda
Well I can take my “big pants” off now! Bcn has rang to say my results are good, all stable and nothing new shown up!!!
I can now look forward to my big birthday on Wednesday…the big FIVE O, I’m going embrace every single minute just so happy to see it!!
Good luck Carolyn and FF for your results.
Hugs Janette xxx
Afternoon Rosie
That is really good news. Enjoy your birthday celebrations.
Linda
Jeanette
Whoopy what a lovely 50th birthday pressy …right now u have finished with the big girl pants …they are here for others waiting on scans …
Hugs xxx