Helly18 half way now that’s great! & your Last session Jackie yey! Sure it will be strange not having to go to hospital every day but also great. My Last full radio tomorrow then start first of my 5 boosts. I also will be done and dusted a week tomorrow
x
Kary (finally autocorrect gets it right!), I’m now going to be Doreening with you … no chemo and rads due to start on 29th too (3 weeks and a booster week), but I’ve asked to start in 3 October, as a big day for our 2nd one on 30th and I don’t want to miss it - Sue how about you? Xx
Oh Sue what a long wait. You WILL be with us. I’ll be there all October and will be there as you start and egging you on to your finish. I’m not sure when to take my first Anastrazole tonight or in the morning. Waiting for Dexa scan too. Big hugs xx
Hi guys anyone had shoulder ache/stiffness? I’m thinking this is more to do with the position they have us lay in rather than the radiation itself. Xx
Well had my last rads session today hurrrayy!!! I’m really glad but why do I feel so flat??didnt really know what to expect big banners party balloons??? just seem to feel like when I was having treatment at least I knew they were doing something to get rid of this thing but now it’s only me that can get well again people are trying to be kind saying it’s all over now that is not how I feel how do you move on from this anyone help.Jackie xx
Jackie congratulations on finishing. I think I will be 15 or 16 weeks when I finally get my first blast. I was told it would be 3 weeks from planning, so was surprised to have a start date within 12 days, so hope the same for you Sue - maybe the October thread should have Doreen somewhere in the title?! Xx
Morning ladies. 1st of 23 rads completed yesterday but I have a question. My boob is already swollen pink and warm even after 1st session. Is this normal? I must admit I wasn’t expecting this until further down the line
Jackie, just wanted to tell you when I finished my rads (16 August) the feeling of relief that it was over didn’t last long, I then crashed right down, felt so low, miserable and unwell. The after effects kicked in big time, in fact it was the worse I’d felt since first being diagnosed. Not helped by being unable to sleep (hot flushes/sweats). Hang on in there, there is light at the end of the tunnel. I now feel great (though still not sleeping). Just got back from mooching round the shops, got eyebrows done, treated myself to a gorgeous top. Put my makeup on before I went out and enjoyed just walking round the town, market, stopping for a latte and feeling normal again. I bumped into a few people I knew, all commented how well I looked and how upbeat I was, and I wasn’t putting on a front, really feel perky.
Just accept that you feel c@@p for now, but every day that passes is a day nearer to getting better. Cry if you feel like it, have a glass of wine or a bar of chocolate if that’s what you fancy, just be nice to yourself and remember, this is not forever, things will get better, I promise you xx
Hi Jackie
I finished my rads a week ago today. Got through three weeks of it no bother. This week has been the worst. Full of tears, skin has gone from fine to fried, sore, itchy and I can’t stay awake it’s been a bit crazy. I wasn’t expecting this week to be like this. Ive struggled a bit this week but hubby just keeps telling me to sleep, stop worrying and just take care of myself and for once I’m listening to him. Hopefully won’t last long like this but just gotta ride it out. Hope you’re ok x
Hi everyone thank you for your kind words it’s such a relief to know I can share how I’m feeling with people who understand what I am going through I have a fantastic supportive family but I have to keep a front up for fear of upsetting them.feeling a lot better today not so down just keeping busy ,boob is going really red an itchy just keep using plenty of cream?I had a lovely surprise tonight was invited out by my son for a meal when we got there the whole family were there??it was just what the doctor ordered my 5 children and partners 7 grandchildren 2 sisters and husbands it was such a surprise bought me to tears but happy ones I have a lovely family.
Best wishes to everyone still going through treatment and everyone recovering you are all lovely people I consider you all as my friends Jackie xx
Jackie, that’s sounds a lovely time with your family. Congratulations to those that have finished. I have had 3 weeks with 8 boosts to go and seem to have hit a fatigue wall and feel quite “foggy” along with a terrible itchy rash on my chest and have been given hydrocortisone cream. On the flip side i have 2 matching boobs as the naughty one is swollen so should enjoy that whilst it lasts :). Hope everyone is having a good weekend xxx
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Hello all, I’m starting rads tomorrow, first of 15 sessions, so not sure if that counts as September or October thread…actually not sure if the October thread has started yet… anyway, sorry for the ramble.
It’s very helpful to read of other people’s experiences and I’m very happy to share mine if it helps.
Robin x
Hi Jump123
Awful that you were made feel that way. They need to see how your skin reacts. Terrible to scare you.
Not to alarm Jump123 but anyone else having post rads problems? I’m now 9 days since rads finished. 15 days of rads no problem but last 5 days have been pretty bad. Skin is almost black it’s so burnt in spots. I’ve been in a lot of pain. Finding Bepanthen nappy cream which I had for my son is helping the most but wasn’t expecting post rads skin and fatigue to be so bad.
Hey jump123 bet your’e very nervous about it all now which you don’t need as we have enough worry without nurses scaring you regarding treatment! I am now on session 18 of 20 so 2 more to go! Yeh ? Trust me you have nothing to worry about! Session 15 onwards my skin was a little bit as they say sunburnt and just a little uncomfortable to lie at times on but all in all manageable. radiotherapy itself is a breeze! Just 1 thing moisturise as much as poss. If you have any questions let me know as I am almost at the other side! Lol
Pluckyducky393 sounds awful
Isaw radiotherapist today and asked for something for my skin, they gave me something called intrasite gel it seems good. 18 down 2 to go & they told me skin reaction would carry on for at least 2 weeks after treatment. Maybe you could ask GP or BCN for some it might help?
Hi Pluckyducky,go to GP and get some advice ,I had a lot of problems post rads and ended up with an infection and very , very sore broken skin ,you carry on "cooking "for a while after rads ,but with antibiotics my skin cleared up pretty quickly.Jill
Hi pluckyducky sorry to hear you not feeling too good probably best to go to see your doctor or contact bc nurse just to be on safe side as you say you don’t expect it after rads when you have been lucky with side effects thus far but hay ho these things are sent to try us just something else to cope with in this horrendous journey?I am 5 days post rads now and getting redder but soreness bearable so fingers crossed will be all ok soon !!!for me it’s the psychological effects I find hard feels like I am on a rollercoaster up then down mostly down but keep plodding on as we do.
marydan how’s this week going??any side effects from tamoxifen??
helly18 how’s the boosters going hope you feeling better and rash not too itchy?
Kary any sign of Gra baby yet??i moisturised before and after rads my skin behaved quite well because of this good luck for Thursday
robinh welcome and good luck tmo you will be on your last week before you know it,yes it really helps everyone to share experiences you get a lot of support and tips on here or have a moan (which I seem to be having a lot lol)
natnew81 can’t believe you only got 2 more sessions to go doesn’t time fly when your having fun lol hope you haven’t had too many side effects
good luck to everyone starting or having rads and all those post rads hope you not getting too many side effects but remember everyone this forum is to help each other overcome our issues along the way we have a lot of friendly helpful people on here all willing to share experiences and help each other Jackie xx
Kary what wonderful wonderful news and must be a huge boost. I hope today was a better experience Jackie. I’m confused about some of the information I was given - including I could wear whatever deodorant I liked!! Xx