September 2017 Chemo Starters

Fairydust
Don’t worry I’m chilling!
To help immune system:

  1. Orange coloured food - like butternut squash, carrots, oranges, sweet potatoes
  2. Ginger - in food/teas
  3. garlic
  4. Probiotics(not meant to take them on chemo)
  5. Vit D3 5000iu daily - most of us are deficient and possibly reduces risk of breast cancer too
  6. Omega 3 - nuts and seeds, oily fish(salmon/mackerel)
  7. Crucifer veg - broccoli cabbage cauliflower daily too

I make myself a carrot/beetroot/fresh ginger/celery/apple/lemon juice, in my juicer every day if I can to really increase my intake.
Otherwise just try to eat more of those immune boosting orange veg in meals/soups etc
I have a supplement called bio-strath that is clinically proven to help with chemo side effects and boost wbc counts. It tastes grim so if you try it go for the capsules!

Sorry you are having to wait - we get all geared up for each treatment so delays can be hard to adjust to. Hope you feel well and canenjoy the time though,

Cath x

I’m sure you have mixed emotions about a further delay but better for your health for now and gives you some precious time to indulge yourself too.
I am trying to eat so well, I did last time but still low neutrophils so added the honey will find out on Tuesday if it has worked. Really hoping no delay or injections which I may have to have if borderline again. I’ve got a day to myself today because can’t go into work because a few people have colds. Must stop eating though, free time is bad for my waistline!

Jo,
Glad you feel well so far. Your lunch sounds great! Now I fancy mackerel pate. I’m still not back on the salads since chemo - just can’t make myself fancy it. Roast veg and soups this week have been ok though, and eggs again! Can’t wait for food to taste good again.
Ali - can’t believe you got caught out online too. I paid on debit card but the bank said they will do all they can to get my money back. I’m not convinced they will manage.

Ck - you are feisty today! Wouldn’t want to get on the wrong side of you :wink: Glad the docetaxel has been kind so far.

Off for my afternoon nap now xxx

Loving the sassiness that some of you are mustering today - we are like an army of slightly deranged good souls just waiting to get back to full strength - proud of you all!
Am feeling wussy as looking at the injection and planning to do it in an hour but also want to run away so far…
I will be fine - even had no sickness meds today and no steroids as feeling really good despite no sleep only wounds are sore and inflamed as usual
Is like reading all the hurricane headlines on the weather and waiting for to see what hits and what happens on the injections! - maybe my head will spin round…
I was interested in the sharing by some of you that we maybe give too much away of ourselves and it can leave none in the tank - I have been supporting my adult children through some stuff and my aged parents and exactly a week ago when on holiday I got a call from my ceo that they are making me redundant after 5 years so spent 2 days this week with unions etc surviving those negotiations - am ok but will have to face the world of work as the main breadwinner in March just when I thought I would be having a phased return to the familiar - if anything am cross that this takes away from the energy I wanted to put into recovering as am currently on autopilot and this doesn’t mix with chemo well!
Hey ho I shouldn’t grumble and have the support of a wonderful OH but we have been muddling through since 1st June and sometimes you wonder how much we can handle just the 2 of us - we are rural and have no Maggie’s or drop in or LGFB options etc - is him I feel for really…
Right time for shower then needle time… I have got this! X

It’s such a shame that so many of us are having to deal with other ? during treatment. It’s an age thing I think, most of us have children or young adults st one side and elderly parents etc at the other. It’s certainly a distraction though! Hope everything works out with your employment MrsMeow, when you get there make sure that when you get home you put your feet up, if you are main breadwinner you will need to rest at the rest of the time. Xx

Thanks Chaffinch that’s kind - yes we all have our stuff and our own Rollercoaster - I am so thankful that my children are older and at least they understand about Xmas etc - even now Santa’s budget has now changed somewhat!

Mrs meow ???sending big hug and love and can your company make you redundant while off sick and also you may have a case for discrimination because of the bc, speak to your union I am sure they need to be careful, the other think you should do is have a free consultation with an employment lawyer too to see if you have a case. Love shi xx

Sorry your chemo was delayed Fairydust. Hope you can make the most of a few days reprieve!

Also sorry to hear about your job MrsMeow. That must have been gutting. Sure your union will be on it but making someone redundant while signed off with cancer is legally very tenuous so definitely worth exploring your options further. It might just put off the inevitable but could give you more time to get back on your feet after all this. In the meanwhile, I hope your injection wasn’t too bad this time xx

Thanks folks sadly redundancy can happen off sick but am getting good advice.
So chuffed at first injection down -just said to OH only 9 to go to which he said actually 29!! Not helping! Pass me a wet fish for his slap! X

Fairy dust, I went it Life Mel Honey this round, I’ve also been having a steak every lunchtime too, my bloods are due next tue so it will be interesting to see how they have done this 2nd round although they did reduce the dose this round, but 1st round they had my weight way out of what I actually was because they weighed me early sept and not again before chemo at start of Oct and I’d lost at least half a stinevin that time (worry if starting chemo that was). I’ll let you know next week why my bloods are. The honey has worked for ali this time so hopefully will work for me too. ???:sparkles::sparkles:shi xx

I’ve had Life Mel Honey too this round, sorry predictive text playing up.

Half a stone again apols for text…

So chemo went in ok thankfully, so I’ll panic less next time, but I’m so hot (not in the attractive sense lol x) I’m digging out the cooling pillow I bought in a whim at the beginning of all of this! Thanks Geordie for summary of side effects!!

Our neut threshold is also 1.5 Fairydust, mine went up after last time following similar list to Cath’s…my onc also told me to eat steak Shi, possibly because I fell down the stairs with low hb and blood pressure while trying to manage the kids meltdown haha but I’ll give it a go. Often I resort to eating popcorn or choc (even dark choc cos it’s better) and telling the kids it’s nuts or something.

It’s true, personal life is very tough, my cancer was missed three times, found the first lump in march 2016…but it is what it is and you can’t rush the treatment once it’s finally diagnosed x knock in effect on loved ones is hard tho and there’s a lot of frustration there.

Good luck Mrs Meow, I hope you find the strength to get it sorted and get the help you need, no one needs such extra pressure going through this treatment xx

Jo, fascinated by lentil sprouts now ?

Night now xxx

Cathysid
Very feisty today! Letting it all out in one go after 3 days and nights of hardly any sleep:0
You can tell I’m on chemo week as I post more and I have a lot of catching up to do with you ladies.
Im in the bath again as the aches and pains with the Docetaxal and Injections are coming through now! This jacuzzii in the bath has hardly been used since 10 years ago and its getting its use now! The amount of fluid Ive drank today Im sure I just let some out in tbe bath???

I can see more veins sticking out now! I used to hate the veins in my hands being so obvious, now I am grateful! The things we never thought we would ever have to think about, eh!!!

Merlot the cat not happy he cant see me lying down in the bath???

Ck hope aches amd pains arent too bad - i hate them!! How are you feeling today?

Jow hope your fingers improve.

I have mad hot hands and feet. Started about 2nd week after chemo 2. It is where the drugs leak to your hands and feet and they become very senditive to heat. I read that you musnt apply presdure and avoid as much friction as possible. I had to take my wedding and engagement ring off last night - while I still could! Anyway going to try and keep them cool today.

Wishing everyone a good day xx

guess what? The (?bogus)website I bought the kids presents from has contacted me, finally! Maybe because I got in touch with the company that takes the websites payments and asked their fraud team to investigate them. They have promised delivery of the presents on Monday! Fingers crossed!

Day 9 today and the chemo hangover is lifting and feeling less sorry for myself. Day 4-8 really is the low point with docetaxel. Mind you bleedy nose and diarrhoea are back but I can cope with them now.
I fancy a cafe lunch and dog walk with the kids. Hoping I don’t have (yet another) toilet disaster day though!

Ck, Ali, Mrs M, jo, Michelle, Geordie- hope your side effects continue to be manageable and remember to nap when you need to. Aloe Vera gel might be good for hot hands and feet - cooling and soothing. Or a cold chamomile tea hand /foot bath. Keep moisturising so your skin doesn’t get dry and split. Drink lots - sparkling mineral water dipped through a straw somehow always seems to taste ok for me.

Well done with the injections, Mrs M! They become easy after a while and you don’t think twice about it.

Lots of love xxx

Fairy dust - starting t after Christmas does sound like it may be an unexpected bonus from your delay. Hope the bio strath works for you xxx

Chaffinch - fingers crossed for you on Tuesday xxx

Cathy hope you get lunch and dog walk sounds perfect
Ali my hands and feet been affected from the first fec and same on dozy - suppose good news is they are not worse - I particularly notice when out and washing hands in cold water in restaurant toilets etc - I have to put cream on feet every few hours or they Crack (where does all the cream go!) But I don’t massage just put quickly on
Have started with back leg ache but not too bad - biggest prob is think I have thrush on tongue which have been trying to avoid with Difflam - and a pain on a Saturday to try to get the nystan liquid - my mouth has gone down quick only day 4 - and all my teeth hurt - is that docetaxel too?
Symptom bingo alive and well!
Hope everyone manages today well - Christmas baking my plan… tho not started yet!

Mrs meow mai7 from May thread advised me the t chemo can cause thrush mouth and also turn your tongue black as well as the usual white, you will need antibiotics ASAP if youve thrush mouth starting lovely. Love shi xx

Hi ladies
At last after 3 sleepless nights, apart from waking up twice for a pee I slept from midnight to 10.30am with a buzzing feeling in my head! Chemo daze I guess! Aches and pains controlled for now and just had lamb chops for lunch. Injection next so will take some paracetomol first! Another vein on my forehead come to say hello. Tingly feet and toes and tingly fingers. Going to do my nails in cherry today. The bath soaks tend to make the varnish come off. My 10kg Epsom Salts have just arrived! Merlot the cat gone out and I’m stripping the bedclothes. Nice and bright in South Manchester!
Hope we are all feeling as good as can be.xxx