@epic1 did they give you anti sickness drugs to start today? Mine said to take it whether I felt sick or not and so far so good but I know affects everybody differently. Hope you feel better soon xx
Yeah they gave me a strong one in hospital that lasts 5 days and then more to take at home as and when. I took one last night and it didnāt do anything. I feel a bit better today but still abit icky . How you doing ? X
Hi sorry your having problems with your PICC. I am allergic to the adhesive in dressing so now just have bandage on it with non adhesive dressing which keeps moving not as itchy and swollen as it was. Hope you get yours sorted. I am contemplating asking for a port to be fitted. Does anyone else have a port instead of PICC?
I had my 3rd (postponed) cycle yesterday - Paclitaxel - and 2nd Trasuzumab. Slept 12 hours solid after I came home. As usual on the day after Iāve got rosy cheeks and canāt sit still. I was give some more dates yesterday so Iām going to be traipsing backwards and forwards to hospital till mid January. Theyāve given me some extra-strong, knock-your-socks-off antibiotics for my chemo rash. That DC that a lot of you are on sounds horrendous. Sending you my heartfelt sympathy.
@epic1 so sorry to hear you are struggling.
I seem to be okay today, apart from my leg is hurting where I had my injection for the HER2+ bit. I have been drinking lots of water and walking as they say that helps flush the toxins through your body.
Which chemo did you have? I am having TC Phesgo.
I did have the anti sickness in my IV but he said take one tablet twice a day for three days and then as and when after that if still needed. Funny how different oncologists prescribe different things. Maybe it depends on the actual drugs you are taking xx
Iām having Ec x 3 then dox x 3. Iām sure Iāll find something that works. I had cheese and toast and that was ok but now I have heartburn
My PICC was fine today and was told there are no issues with the length of it so not sure why I was told that. The blood test was collected at 12.15 so hoping it gets where it needs to today from 1 hospital to another. Next week I am told this wonāt be an issue as Iām having it at home by the same company doing the blood tests. I did say that the saline flush lasts an hour the same as the cold cap cooling time and was told they donāt do the flush for an hour. I said it was double checked and she said maybe they just do it as I am in a hospital. They want to leave whilst your cold cap is cooling.
I was advised bland white food all the stuff we are told are bad for us. White bread, pasta etc. smoothies can be good but lots of fresh fruit and veg can upset your tummy.
I generally ate as normal as possible but smaller portions and less fruit as it increased my tummy upset.
My taste also changed, I preferred salty rather than sweet things. Went off wine, so Iām now a year alcohol free.
Iāve given up alcohol since my diagnosis but I still find it a struggle. About 7 oāclock every evening Iām desperate for a glass of white wine. So far Iāve resisted but I donāt know how long I can keep it up.
I know how you feel, I found it hard in the beginning. I tried many non alcoholic drinks. Non alcoholic āginā botanical drinks mixed with tonic water in a gin glass, feels like the real thing. Some are better than others. I like Everleaf and Caleno. Iāve tried Mother Root but itās too strong on the apple cider vinegar for me. Asda have one, itās ok and Iāve just bought 2 at Aldi (Ā£8.99) the fruity/pink one was very pleasant.
Peroni 0.0% is nice if Iām out having lunch. Most of the wines just taste like juice, the Prosecco 0.0% are quite nice.
Otherwise Iāve bought some Belvoir or Bottlegreen cordials or I have hot herbal teas.
I like Bottlegreen Elderflower and their Ginger isnāt too bad. Iāve got green tea and lemon & ginger tea. My friend asked her nurse about alcohol and she whispered āA little bit of what you fancy does you goodā. So perhaps half a glass would be OK.
If you mean metoclopramide (the anti nausea one) I will say Iāve found myself taking it more daily after this second cycle, whether I feel sick or not when I take it, to help me through, but we all react differently.
Last time after cycle 1 I tried to minimise taking it cos I was already rattling, this time Iām rattling anyway so figure I may as well and am finding at the very least itās settling my gut.
Yes thatās the one. If no improvement tmrrw Iāll try it for a few days xx
Iām allowed it three times a day (one tablet) and it does get the bowel moving if youāre having trouble with that too.
Hopefully you feel better swiftly
I guess there are different regimes for anti sickness. I have 2 tablets tonight, 1 for the next 2 mornings, and one for the next 3 nights. Plus the āas requiredā ones up to 3 times daily for up to 5 days. They did say to me that if taking everything theyāve given isnāt working, I should ring the helpline as there are other options. I also have sweets called Queasy drops recommended by a friend so I plan to try those if I feel nauseous before my next tablet is due. Regarding eating, the nurse said obviously they recommend a healthy balanced diet, but itās also important to eat something rather than nothing so if youāre struggling just try anything you fancy. Someone else suggested protein and fibre are most important and that makes sense to me too. Hope you get on ok tonight.
I wasnāt told not to, I just went off it on chemotherapy. Dr Liz OāRiordan advises 5 units a week for anyone with a cancer diagnosis, lower than everyone else. Thatās probably only 2 small glasses of wine.
How is everyone doing this morning? Iām a week past second EC now and I must admit itās been a bit grim. Bit worried about the next treatment as I donāt want to feel like I have for the past week againā¦but I suppose each one checked off brings me nearer to the final one, so onwards and upwards.
On a positive note, Iāve discovered Tropicana pressed apple juice. For anyone whose tastebuds are kaput (nothing tastes good to me at the minute) it is an absolute joy, utterly refreshing and actually tastes like apples! On a negative note, I no longer like chocolate
Hope everyone is doing ok X
@sharlou glad to hear you are feeling a little better. Itās horrible the anticipation of side effects and I think all we can do is think each one is one step closer to ringing the bell.
Stay strong and stay positive
@sharlou glad you are a week out now and turning the corner hopefully.
I have picked up the kids cold so worried that might impact my next treatment which should be monday. Its nothing more than the normal snotty nose etc but I have no concept of what I can get away with really. I see the oncologist tomorrow as part of the process so will ask
I have been trying to find out what weekly paclitaxol is like compared to EC. Honestly i just want to hear that that bit is easier than EC (I am very mardy about sickness) then I feel I can make it!!! I know weāre all differentā¦ I think its called clutching at straws
Hi glad you are feeling a bit better this morning and will definitely give the Tropicana apple juice a try. I having a square of dark chocolate every day read itās good for you ?? . Like you I wasnāt too bad after my 1st chemo and dreading the 2nd as feel everything may be different this time. I havenāt lost any hair yet! Iām seeing my oncologist on Monday not sure why. I have quite a few questions for him as listening to you lovely girls about your feedback and info from oncologists I donāt feel mine was that informative he didnāt give me any positivity about anything for me to hang onto. I know my prognosis of cancer returning is high risk, apparently due to nearly all lymph nodes being affected and had to wait 3 months to start chemo due to lack of oncologists in my area which I wasnāt happy about. Oh well roll on Wednesday another one crossed off xx