I’m on weekly Paclitaxel and I’ve found it to be trouble-free compared to what you have been suffering. I had a skin reaction that is being dealt with but apart from that nothing horrible. No nausea. Appetite normal. So hopefully you’ll find it a welcome change for the better.
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I’m high risk too . Had to do most of research myself as no one said anything to me either. I think they all do this ! In the end paid to see royal marsden consultant who 100% agreed with nhs plan and said by following all this treatment I had a good chance of a cure . Predict score was hopefull too (the new one) are you hormone positive ?
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That was reassuring for you to be given that agreement by a royal marsden consultant. I know nothing about a predict score didn’t tell me anything. I was HER2 negative ER positive removed Grade 3 invasive cancerous tumour 46mm with clear margins and node clearance xx
Washed my hair, 1st significant loss. Not masses, I mean, you wouldn’t even notice it given how much hair I have but 
having a weepy, down day today
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Sorry to hear that but sounds like you’ve got a mass of hair so nobody will probably notice but you are aware 
. Where are you in your treatment ? I keep buying different hair accessories and had a day yesterday experimenting and was quite pleased with the results even though my hair, eyebrow and lashes are all still there so will look different but make up is a wonderful thing. I also have wigs. Made me feel slightly better but know when it happens like you will be devastated
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@jules8 I’m day 18 after my first round of EC-T. I’ve been doing so well, just having a wobbly day today. 
round 2 on monday.
My scalp started feeling sore in one spot last night so I thought something might be up. I tend to loose loads of hair when I brush anyway, always have just because i have thick hair to start, but was a bit more today.
Tiredness is really not helping as not sleeping well.
Ive done the Headwrappers scarf workshop but not bought a wig yet, was going to see how it goes and will when / if the time comes.
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The first big loss is a shock even though expected and it’s totally understandable that you feel sad about it. I also have thick, bushy hair so no patches yet but wow is it thinner. I reckon I’ve lost about 40% so far…I’ve kept it for some reason and I would say the pile of hair is about the size of a guinea pig…husband got the fright of his life when he walked in the bedroom and saw what he thought was a rodent on the dresser 
Have yourself a chilled, relaxing day and I hope you feel perkier soon xx
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I’m day 15 so quite similar. I’ve been very negative about everything and when my bcn called me Tuesday just spent a lot of time crying to her as been reading so much on google think that was my wobbly day. Popped into my work yesterday to see my colleagues which was lovely and everyone was so pleased to see and was a change of scenery. Take care xx
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Mine went straight down the loo lol. It probaby wasnt even that much, it just triggered me into sadness and tears. It’ll pass. I cant get motivated at all today
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@magl Thank you for the update re paclitaxol. I definitely feel like if its a game of two halves I can sign it off in chunks if you like. @luckyduck1 I am exactly the same as you day 18 for me too…Monday coming will be 2nd EC. I didnt cold cap for various reasons and Im now shedding like mad. If I run my fingers through my hair loads come out. I darent wash it…why!! … am I expecting to hang onto it if I dont?? Part of me wishes this bit would just get on and happen. I do have a good wig and in many ways this time of year no one will be ultra surprised to see me walking the dog in a beanie hat. Like the gerbil analagy @sharlou!! 
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Guinea pig even!!
@nellyh i am cold capping but im realistic that it wont save it all. Maybe I need to look into the wig sooner rather than later.
When are we supposed to loose body hair… I’m still shaving my legs lol
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@jules8 I’m missing work although keeping in touch via whats app and Teams. One of my colleagues sent me a little gift yesterday. Feels like i’ll never return! I work in Early Years, full of snotty kids, so was told not to work by the hospital.
Last round will be Dec 23rd so I’m hoping to get back by Feb but i’ve radiotherapy to have after too so I dont know really.
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Do you know what… i bet all the hair i want to go will flippin hang on in there!!
I think eyebrows etc are last to go? Normally my hair grows quite quickly but who know with this shanazzle!!
Be thinking of you on Monday and as we move along. Cant tell you how much you guys help me!
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Also just wanted to say to all you lovely ladies “labelled” high risk. I have had varying opinions from the BC surgeon and oncologist but despite me being terrified of my oncologist before hand one thing I did take as a positive was sometimes people deemed low risk who dont then do chemo can have a reoccurrence. No one can really predict and thats why were getting the full works.
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Hadn’t really looked at it like that. Going to chat to my oncologist Monday now I’m a few weeks on since I last saw him feel a bit braver to ask a few questions. Thank you x
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@nellyh haha, I said to hubby it would be nice if I just lost the grey ones! Poor sod is as stressed as i am and having his his own hair loss journey! We seem to be sepatico and he’s going through it in sympathy bless.
I totally agree on the support if this group and thank you all for your company. We can compare notes after round 2!!
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I cut a bit off before I started so I could remember what colour it was. I think it grows back darker and curlier.
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Hi @epic1
I was very sick after round 1, ended up back in hospital yesterday for fluids and IV anti sickness. Good news is the also changed my meds and I feel so much better.
I have found salty snacks ok, crisps, Ritz crackers etc. but maybe let them know too, incase they can give you something different to try.
Here’s hoping for a less ‘sicky’ round 2 
Hi @luckyduck1 ,
I am the same, prepared with some headscarves and hats but have been really reluctant to get a wig for some reason.
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