Not really acceptable behaviour that if it happens again speak to the person in charge or if they are the one in charge go to the pals office. You should be treated with care compassion and dignity 
Shi xx
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Be careful during your nadir phase ask your nurses when this is in your cycle Shi xx
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Thanks. You too. 
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When you had your picc line fitted did they give you a sheet saying how much was inside and how much outside. On mine it says 50cm inside and 5cm outside. The nurse installing it said make sure you can see 5 white notches on the outside and tell the chemo nurse not to pull. So I’d check if you have that piece of paper with your dimensions on then speak to your oncologist. I think I can count 5 or 6 notches on your picc line. Doesn’t matter what kind of day these chemo staff are having they should leave it at the door, as should any medic really. I’m sorry this has happened but I’d speak to your onc.
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Oh gawd now you’re panicking me, I’ve been going out throughout, apart from the first week of round 1 when all I could manage was sleep and docile shuffling. But to be honest I’ve been mostly outdoors, although I’ve been to the supermarket, without a mask and some school things. But this could be all wrong and it’s gonna come back and bite me on the bum…….
I’ve done it with diet too. I cant bear the thought of Gaviscon (I am a wimp). I did also check about things not to eat and they said live yoghurts and I said oh well I’ve had that and Actimel and she said and how have you felt and I said good, no problems and she said OK carry on……and I’m glad as I want to try and help my gut out any way I can. I’ve been having a couple of mornings a week, you might gag at this but I’ve found it quite nice - 6oz full fat Greek yoghurt, a good glug of cream, handful of blueberries, small banana and 1 tsp each of organic chia, Flax and Linseed. The other thing I found that didn’t repeat was sourdough buttered with smashed avocado with coriander, chilli, lemon juice with an egg (poached or fried) on top. I’ve also found that spicy food doesn’t repeat either which I am shocked about. That’s probably not very helpful. X
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Don’t be panicked . It’s my OCD ! But I don’t know why im being careful as I’ve got one kid at school so what’s the point 
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Look how different ours are! You’d think there would be some synergy with these procedures wouldn’t you.
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That would be handy but, no, apparently not in my unit. I’m grateful I’m getting the pegfilgrastim though so that’s one thing they’ve got right. The breast care nurse phoned me back and she’s trying to find the written info of exactly what I was given during the surgeries to see if we can find any links as I had a similar reaction both times.
@epic1 My oncologist said the most vulnerable time when the white cell counts are lowest is day 7-14, but that it could start at day 5 or go on til day 16 so that’s just a rough guide. She said some people literally don’t go out whilst others do normal life and it’s up to you what you feel comfortable with. I’m inclined to think just be sensible, sanitise your hands and trolleys etc and avoid anyone you know is ill. Anyway I’d say we’re more likely to get germs from the kids being in school than from going out and about. I’m day 5 now and I’ve only been to see family. Tomorrow I’m hitting the post office and a shop to get a brush for my wig 
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@nicnac17 amazing, love that you are managing this side effect! Hopefully once I have calmed my stomach down I can stay on top of it. Love the idea of Greek yoghurt etc, and so suprised no ill effects from the chilli oil. I’m my own worst enemy as was craving McDonalds (don’t judge me it’s not my usual) so paying the penance for that all day and night 
Anyway we live and learn and won’t be in a hurry to do that again! Thanks for replying to my message xx
You look fantastic. Well done for finding the strength to do it.
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No judging here, we have a fish and chip van in the village every Friday so that’s our tea for Fridays, I’m going to stop because I feel like I’ve got a tree in my throat and it just feels lodged and repeats like crazy…….
The other thing I’d recommend if you’re not already doing this is electrolytes. Now my onc and his team haven’t said I can’t take this but I’ve been having these every day for about a year now. And I find these work for me. Benefits listed below if it works I’m not good at adding images in a message 
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update on my picc they managed to pull out after round 2 EC yesterday
I went back this afternoon for an x ray and guess what, It’s out of place in my chest by 5cm. I said, well I’m not a Nurse, but it’s common sense that if it’s been pulled out of my arm by 5 cm it’s going to be the same at the other end! She said I was 100% right to chase it up. I shouldn’t have been sent home like that, and it was very bad practice if the nurses to do that. So she will be dealing with that herself and speaking to them both.
She said it a much easier procedure to replace the picc line because they already have the vein. They just cut off the dangly catheter bits and put a guide wire past the existing picc tube, pull it out, and replace using the guide wire. Wish me luck!
Im hoping to drive myself if not feeling ill, its only 20 mins. Has anyone been given advice on driving??
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I’ve been told not to drive on chemo day and the day after. Hope you get is sorted OK.x
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I can’t believe this has happened and is creating stress you don’t need. Hope you get sorted easily and quickly.
I was told I can drive as long as I don’t feel drowsy - I drive myself to and from chemo no worries 
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Had oncology appointment today - they are going to reduce my next dose to see if it helps the chest pain/breathing side effects. I hope so as I can’t bear the thought of another week like last week
Doc thinks the flushing is likely to be from pegfilgrastim as I only get it after I’ve had that. She didn’t seem particularly perturbed by it so I’m not going to worry
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Im feeling well today, so i think I’ll give it a go as long as im the same. X
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Glad that they are able to alter your meds. Hope it helps hun 
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