Sorry to hear about your PICC dramas @luckyduck1 what an absolute nightmare. I am pretty anxious about anyone touching my PICC anymore after realising the district nurses have no actual clue what they are doing. I also had to go into my local (non chemo) hospital yesterday & barely anyone there has any clue what to do with a picc either.
Bit different to your issues but I spent 5 hours at the hospital that put my PICC in today. I’ve been in agony all night since the district nurse came to change my dressing last night. It seems I’ve had an allergic reaction to the dressing she put on - I remember reading a few ppls post about this, it was a very long day & I’m still unclear what it actually was (within the dressing I mean) that I’ve reacted to?!
Because I told them my arm feels dead they sent me for an ultrasound and it turns out I have a small blood clot. Which I wonder how long has been there as my arm has pretty much always felt dead since getting the PICC but they told me it would “settle down” and I think the reaction with the dressing was just so shit they finally took me seriously.
Anyway, blood clot = blood thinning injections, I assumed for a few weeks but they’ve just called & it will be AT LEAST for the rest of my chemo and possibly longer! FGS!!!
Glad to hear you were told you can drive, I was told at my pre assessment I’d be able to drive on EC but been told different things since! I am going to go with what the pre assessment nurse said! I was told I couldn’t drive with paclitaxel which was what I was meant to be on & now I’m on Abraxane no one really seems to know!
@sunshineandunicorns
Oh no! What a nightmare for you. These damn picc lines are no end of drama! A necessary evil though I suppose hope the thinners solve the problem.for you. It’s terrifying how many drugs our body can cope with at one time! The human body is quite amazing!!
Why was it changed from Paclitaxel?
My chemo day has changed to Friday again I found out when I chased my blood test tomorrow. So my blood test is now Thursday but may be Wednesday when having Phesgo. I have told my consultant’s secretary I can see her on Wednesday now at the end of October which is better than Friday when traffic will be worse. Friday is better anyway for chemo as I have the weekend to recover.
I now have a Paxman machine at home so I hope the nurse can work it as I can’t. I even have a theatre cap in case it goes thin which it may well I was told today by the lady who came to check the size of the cap I use is right which it is fortunately.
I wish this forum had a ‘shocked face’ reaction! What a nightmare you and luckyduck are having. I hope the thinners sort it out and your arm comes back to life
Morning ladies…does anyone know when I can wear a normal bra? I had my last surgery on 30 July. I just want to wear a normal bra for a bit but I can’t remember what was said about going back to a wired bra. I know I’ll not be able to wear wired one when I’m having radiotherapy but that’s a way off. Just want another element of normal in my life - at least for now!
In other news, I’m doing a false tan and pamper day before tomorrow. I may be on the floor by tomorrow night but at least I’ll have beautiful sunkissed skin
I feel like it’s gotta be personal preference on the bra thing right?! Like there is “guidance” from a medical pov but if you feel like you could wear one then surely that’s okay? Personally I’ve grown quite attached to my totally unsexy non underwired range (particularly the cotton crop top style ones!)
@sharlou I would wear whatever makes you happy and comfortable ! I can’t advise as had a mastectomy and have large seroma so currently wearing a compression bra which is very sexy!
I’m coming down with a cold I can feel it and would normally pop a couple of ecinicea pills to ward off but I haven’t been told by anyone what I can and can’t take. Vitamin and supplement wise ? Who would u ask? I don’t have a number for oncologist . Now worried I’m gonna get ill. I’m day 9 .
Bloody Nora you’ve been through it haven’t you. Thinners will sort the clot out but like someone else said something else to take. I reacted to the plaster and the DNs literally just left after flushing and cleaning it and I was so obsessed making sure she didn’t alter the 5cm be she did OK thankfully.
But good luck with the new picc will keep all crossed for you.
I have hardly driven probably twice in the past 2 1/2 weeks. But I do not feel confident and my husband is doing the driving. No ones really said anything to me about driving.
I think use common sense, if it feels OK and it’s not aggravating anything go for it. My last surgery was June and I’m still sleeping in the bra the BCNs gave me but during the day I’m wearing my sports bras.
My second round is on Monday (blood dependent of course) how are you all coping with these looming dates. I know I’m on the train I can’t get off but it just feels like I’m racing ahead……big girl pants isn’t it and suck it all up.
My husband’s booked us a meal at a restaurant on Saturday night and a mate is coming to give me a facial on Sunday like you @sharlou I want some pampering and my skins is as dry as anything….
Does anyone have any of these symptoms:
dry skin, mines facial it feels like sandpaper too.
Running nose - I’ve been advised this could be loss of nostril hairs but sometimes it’s like a tap.
Teeth feel like they want to leave your gums.
Crowns coming out and gums feeling odd.
I’ll end on a positive note I nearly slept the whole night last night woke at 6.15 alarm goes off at 6.40 so tonight I’m hoping for good things .
Your oncologist is who to check with about what you can and can’t take herbal and otherwise, my oncologist told me what to keep off during chemo Shi xx
I thought I saw something too few years back about what to avoid during chemo too and was sure there was something about fake tan maybe best to ring number on here and speak to nurse if you want to check. Shi xx
I had my 4th lot of Paclitaxel yesterday. I thought each lot was a cycle and I was on my 4th cycle but apparently it goes by months so yesterday was 2nd cycle, day 8. Which makes no sense to me. My main problem is still the chemo rash on my face. I’m back on the antibiotic/steroid cream. Also, I dropped a spade on my foot and the nail on my big toe split down the middle because it was so brittle. I’ve taped it up with surgical tape.
Well my picc line dramas continue… will they ever get it right?
It was supposed to be a simple procedure to put guide wire into the original picc then remove old picc and run new one in. But when she cut the catheter off she managed to draw it out too far and the whole thing came out so plan b she managed to find another vein and had to start from scratch. But i think as new vein and i drove home and aggravated it so its throbbing and started to bleed and bruise. Im so f ing over it now. Feeling blue and weepy again.
Chemo nurse just rang back and will contact the nurse that did it and see what she says. Getting so difficult getting to and from hospital all the time asking peple for lifts or cabs which gets expensive. My hubby is self employed and has work on all week so dont want to keep mucking his work up. I could ask mum but shes as blind as a bat and her driving terrifies me. Hair still coming out. Its all over the floor. Silently screaming
hope the thinners solve the problem.for you. It’s terrifying how many drugs our body can cope with at one time! The human body is quite amazing!!
