That doesnt sound like fun 
Oh dear, i hope they can get you some relief sounds horrible
Sorry to hear this Zainab, I had mine cancelled this week due to liver function. Can they give you anything for the rash?
They gave me hydrocortisone and antihistamine. Itās not really touching it. Sorry to hear your chemo paused too.
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Well donāt judge but I bought 3 boxes of lindor chocolates with weekly shop. All different flavours and nearly all gone! I donāt normally have a sweet tooth !
@Zainab sounds awful hope you can get some relief soon.
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Oh my gosh Iāve just caught up on all the messages since I was last on. I am also like Gollum and been crying my eyes out I look a fucking sight. Self esteem none existent, just feel shite, shite, shite but being on here is like a safe place to vent and read and cry and laugh. Thank you, all of you so much 
.
My hair legs, facial hair also still with me, seriously wtf is that all about?
@magl I too think Iāve got a Seroma and going to get BCN to check on Monday when Iām in for round 2, @Zainab I hope your rash clears up and its not too painful.
Iām eating biscuits like theyāre going out of fashion, I havenāt wanted biscuits in so long Iām like now trying to stuff in so many. My husband picked up one of those Jaffa cake tower boxes yesterday, I said please donāt get that Iāll eat all of them in 3mins flat, honestly it was as long as my leg. So Iām with you @epic1, @magl, @sharlou. I look shit, Iām eating so much shit but the silver lining I havenāt got the shits 
Happy Saturday night one and all, letās hope Toyah gets booted from Strictlyā¦ā¦x
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I have/had a chemo rash. Whiteheads on chin and forehead. Pea sized spots on neck. Blotchy red rash under one eye and on nose. Not a pretty sight. They suspended my chemo for one week. Was given antibiotic/steroid cream first week. Antibiotic tablets 2nd week. Back on cream this week. Itās nearly gone now. There are just marks where it was and theyāre fading. I found they took it very seriously and were very keen to get it cleared up.
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Mmmmmm. Good choice.
Good to hear it clears up will ask about antibiotics.
@Zainab i have what looks like acne across both cheeks, I assumed it was because I continued using my face wash and assumed my skin was too sensitive! Maybe itās not. Itās not anywhere else but my cheeks do look flushed 
Sorry to hear this. Not a patch on yours from the sound of it but I have a rash that started from my eyelid up to my eyebrow Thursday, it has since spread to under my eye and round the side. Itās likely mine is from the blood thinners Iāve had to start taking tho (I mean, who knows but I assume).
My team dont seem bothered at all - called my nurse about it Thursday then emergency no today, just keep getting told to put cream on it (Aveeno etc) & take antihistamine. But it stings. Part of me is wondering if I can get some hydrocortisone cream or something.
Sorry to hear your chemo is being paused
Sorry to hear this Jules, I hope its not too stressful tomorrow. For what itās worth Iām still on the wig hunt & reckon if I can look half as good as you in a wig Iāll be onto something (so far I canāt!). Im desperately frightened every night going to bed about waking up with it matted again, stupid really as Iāve got much worse to be frightened about!
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Needs to be done will let you know ā¦ looks such a mess so hoping Iāll be ok to get rid of these mats. In early days I looked every morning on my pillow for hair and nothing.not sure what happened last Wednesday with these mats. Youāre right so much more to be frightened of. Wore my wig today and popped round parents only seen pics they thought it was wonderful encouraging normally very criticalā:joy:
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Hi all, I have finally caught up on all the messages, having not been on here for nearly two weeks. For those who are new to the forum, Iām on docetaxel, carboplatin, and Phesgo (which is the same as Herceptin + Perjeta). I had my phesgo on Wed 18th, had a mild allergic reaction, then had my chemo on Thurs 19th Sept after the reaction had gone. I had an OK couple of days and then on Sun 22nd (Day 4) I had an absolutely horrendous vomiting and diarrhea episode. From there my side effects just kept getting worse. I was checked out on Mon (Day 5) and my bloods were OK, and I had just started the filgrastim injections, so they sent me home, but Wed evening (Day 7) I was admitted with a temperature and signs of an infection. I still had diarrhea, and signs of a UTI - I am convinced I had a UTI and they had seen signs of it from a dip test on Monday, but they never found it in the lab cultures despite testing three times while I was in hospital. I found it really hard that they never found the source of the injection, though they said itās very common. But it just made me feel like there was no evidence of what I was experiencing in my body! However on Wednesday, they did find I was very neutropenic despite being on the filgrastim - numbers were really quite low. I ended up being on two different IV antibiotics and was in hospital for a full week 
From that Sunday onwards, I feel like I had most of the side effects weāre warned about. An acne-like rash on my chest, breasts, back, neck and a little bit on my face, really bad oral thrush, terrible nausea, mouth and lip sores (barely ate anything from Sun to Thurs due to a combo of nausea, thrush and mouth sores), itchy scalp (though thankfully not too bad - sorry some of you are really suffering with this!), sores on my scalp, dry eyes, dry mouth, sores in my ears, sore throat, terrible diarrhea, trouble urinating, itchy everything downstairs (thrush and piles ), lower back pain, some stomach pain/cramps, really bad fatigue, and some kind of brain fog/chemo brain. I also got my period while I was in hospital because why not kick a girl while sheās down lol! Actually since my period Iāve had very odd menstrual bleeding - just on and off low level bleeding very often. Sorry to be so graphic but I feel like I can be here!! Itās been pretty wild, but the good news is that being in hospital was probably the best place for me as they were able to monitor it all and help me get some of the things under control with medication - if any of you have oral thrush, definitely ask for medication for that as it really helped, and then I was more able to eat again which helped with my energy too. The other good news is that I finally saw one of the main consultants from my hospital, on rounds, and she agreed to switch me off this locum consultant situation Iāve been on (which has been awful) and on to the main hospital consultants - so I finally have an appointment with one of them on Tuesday. As long as my bloods are OK we are going ahead with next dose on Wednesday next week - slightly dreading it, though we will discuss a dose reduction (but Iām a bit nervous about this too as I do want to zap the cancer!). Anyway, thatās why Iāve been so quiet - Iām feeling MUCH more myself today and had my first solid bowel movement in two weeks today so hoping for a couple good days before we start again!!! Have read all your messages, and sorry not to have been keeping up with replyingā¦ hope to be a bit more engaged this next round. Keep it up team, weāve got this!!
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Blimey youāve really been through it. Glad your feeling more your self.
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OMG @ake That sounds horrific. I dont know how they workout the dose strength for some drugs but that really hit you hard. I am sure you will be closely monitored with this next lot. So sorry you had to spend so long in hospital too. Thats everyones worse nightmare. Sending you loveā¦hope you continue to feel a bit better x
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Holy moly ake what a nightmare! So glad youāre on the mend, you poor thing
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What terrible bad luck @Ake . Youāve had every hideous side effect going by the sound of it. Now that theyāve got you back on track letās hope everything goes more smoothly from now on.
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ake 
glad your feeling much more yourself just take each round as it comes after being in casa nhs for 6 days after my first chemo back in 2017 itās all you can do you got this and everyone hereās got you 
Shi xx