@ake oh wow what a tough time you have had. I am in the same treatment and have had the thrush and sore mouth, throat ulcers and burning when I pee. Thankfully mine was managed outside of hospital, guess I was lucky.
I really hope your treatment this week is easier on you 
I have my second cycle a week tomorrow (15th) my hair has started to shed today so expecting it to come out in handfuls very soon. Going to shave mine off when it gets really bad.
Good luck for Wednesday xx
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Todayās hair update: still significant shedding. Was outside yesterday & so worried the wind was going to blow it all off.
Yet my chin hairs are still going strong - why!? My top lip could really do with a wax too but I donāt see why I should!
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@sunshineandunicorns Thanks for that, my shedding seems to have slowed down today thank goodness but looking thin and drab. Parting getting wider! But Iāll hold off on any decisions on my hair for now.
I was re reading all the Paxman stuff last night re nurses caps etc, Iām going to keep with it for now. Hubby has day clear today so Iāve got my self dressed, some make-up on and will go out in the car with him later for a drive. Weve a few errands. I just need to feel more me today and make an effort. Feeling tired, but side effects waning finaly. I have chemo on a Monday and seems Fri/ Sat/ Sun are my worst days. Sore throat lessening but mouth just tastes manky. Cant wait to be able to have some satisfaction from eating. Seriously considering a Maccy D drive through!!
Wishing everyone a good Monday xx
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My Little Lifts chemo box has just been delivered. What an amazing charity. I didnt sleep well last night and amongst other things there is sleep spray and a soothing eye maskā¦hopefully that will help tonight. So lovely. Made my day x
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I had my appointment with my oncologist (who is amazing) I asked her about the single filgrastrim injection. Anyway itās a postcode thing depending on what trust you have so sadly for me in Kent itās a no, but anyone else be sure to ask as it is a thing in some trusts
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@galdiolus Postcode lottery again. Not good is it.
Hope you are feeling a bit better
Itās so unfair, shouldnāt happen. We all pay our NI contributions and we should all receive the same service 
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@epic1 such a shame, my oncologist said it would be so much better one injection. Maybe I should write to my local ICB 
Iām feeling much better thank you. Hope you are doing okay x
@sunshineandunicorns itās unfair isnāt it, the chin hair is holding fast but my nose hair is disappearing leaving my with a constantly runny nose 
.
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Yeah, Iām not sure. Sorry youāre triple negative, but it sounds like they are being really attentive. If youāre not sure why youāre having a particular drug and you think people normally have a different one, definitely ask your consultant. I am learning, we have to be more assertive than is comfortable in this process!
I agree!
Still doesnāt sound very lucky - in or out of hospital, thatās all miserable! Really hope your next round is better - and that you feel better in the meantime too. Have side effects started to clear up as you move towards the end of Week 2? Mine didnāt start getting better until well into Week 3 really. Thanks re Wednesday!
I had my second round of chemo yesterday and I asked the nurse why does the hair on the head fall out but everywhere else seems to remain like chin whiskers. She said itās because is visceral the blood flows to that area more. She said when you see someone with a head injury and they bleed they bleed a lot even an scratch and thatās because itās pumped there quickest and constant. Iām not medical but I think thatās what she said.
Good luck today I think your round two is happening. Best of luck x
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Damn it I forgot to ask that question.
Iāll bookend you, my nostril hairs are few and far between and nose running.
@sunshineandunicorns Iāve been advised not to wax my eyebrows now so plucking them and it doesnāt hurt AT ALL, no wincing and yes might take a closer look at my lip too.
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Ooh thatās interesting @nicnac17 . Is wax a no no during chemo then?
Yes, round 2 this afternoon. Iām dreading it but Iām dreading washing my hair even more! which Iām planning just before I go over there x
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How you feeling after round 2?
@sunshineandunicorns I had round 2 at 1.30pm yesterday took about 2 hrs. My nurse was amazing and went through everything. But I forgot to ask about the 1 injection filgristem. When the red stuff went in that wasnāt too bad but the clear one, almost instantly my legs went cold, cold as ice and my nose really odd. The nurse said is it like when you smell horseradish and you suck in and it feels odd I said yes. I donāt remember that from round 1.
After I asked if I could see a BCN to look at what I thought was a Seroma. Thankfully one was there to take a look, she had a prod and did ultrasound but said tissue was how it should look but then she got my surgeon in to look he agreed with the nurse. I then showed him my shoulder where Iād had lymph node clearance I said it didnāt fell right and feels like it pops out of place. So I turned and showed him my back and he thinks my nerve running from my boxer muscle (never knew I had one of them) to my scapula is obviously bruised. My daughter thinks Iām a mutant spider when my shoulders out, it does look bloody weird!
I now have two dodgy arms and two dodgy shoulders and can only sleep on my back. So I am being referred to a physiotherapist.
Felt some nausea last night, thought I was going to be sick ran to loo but nothing. Iāve eaten dinner and breakfast, had all my tablets this morning and taking it as it comes.
I also shaved my head last night, it is going to take some getting used to and by god itās cold and I think Iām going to get an organic gradual tan cos my scalp is so white. And Iāve bought some hats. Glad to not see a wake of hair everywhere Iāve been and not eating it 
Good luck today @sunshineandunicorns itās really no different to the first one just maybe a different nurse and seat. I did take some boiled sweets which really were a godsend. Xxx
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I have a friend whoās been waxing and giving me facials for years and sheās said she didnāt want to do it as my skin will be really sensitive sheās wait for a wax thatās suitable for super sensitive skin. But honestly Iām plucking and itās not painful but thatās only been my eyebrows lips a different kettle of fishā¦ā¦
Iāve done a separate reply to my day yesterday xxx
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@sunshineandunicorns good luck for this afternoon 
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