September 2024 chemo starters

Good luck @sunshineandunicorns xx

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@sunshineandunicorns Good luck for today :+1:t2::muscle:t2:

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Hi @nicnac17 @sunshineandunicorns

I would check with your team or a BCN nurse 0808 800 6000 about plucking or waxing. I was told not to do either or wet shave as it can cause damage to the skin which in turn can cause infection which could trigger temperature.

I invested in the electric shaver for legs and underarms, once they were gone with chemo I put them away but itā€™s surprising how quickly they return and have continued with the electric because of cuts and lymphoedema. For my face I use the JML electric face and eyebrow Skincare Tools and Accessories | JML they donā€™t get as close but you are doing less damage to your skin.

Again double check with a medical professional.
:smiling_face_with_three_hearts:

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@ake Iā€™m also HER2+ and -the others. Think weā€™re on similar cycle treatments.
I found the first cycle was squits for 3 weeks and the second cycle was a bit the opposite. I ended up with a couple of piles too and because of that had to go to A&E once, the first week after my first cycle, not as dramatic as you (bless you), I was home after a few hours.

I hope youā€™re feeling better and your next cycles are a bit easier. Iā€™ve been told by my aunt (whoā€™s a retired palliative nurse with bc herself at the moment and mid treatment, sheā€™s knows so much) Iā€™m/weā€™re on a particularly brutal cocktail so be kind to yourself, weā€™re being really battered about.

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Is yours triple postive then? Sorry, i think that means you get everythingā€¦its no fun is it? The good thing is the HER2+ seems to be very reaponsive to Herceptin/Phesgo so it has all got a purpose even if if is making us sick! Iā€™ve got round 2 tomorrow, Iā€™m doing alright, feeling positive mostly. Hair is hanging on in there despite some shedding. Will be in for a long day -8 or more hours I think but we will see. Good luck and thanks, it is nice to meet someone on a similar regime. Go gently with you too.

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Not triple positive, just HER2+.
My hair is hanging in there, I have treatment 3 tomorrow/Wednesday and have somehow managed to hold onto about 40-50% of it.

They may have stopped me cold capping last cycle cos I had a bad reaction (not to cold capping) and they said it wouldnā€™t be possible to continue as I was. My oncologist has said she doesnā€™t understand that as the cold capping is completely unrelated so sheā€™s said to get them to call and explain to her before they refuse (potentially) tomorrow.

I wonder what will happen, Iā€™m terrified of tomorrow (really donā€™t want another reaction, it was horrific) but they are reducing my docetaxel by 25% and monitoring/administering it slower so hopefully I donā€™t have a reaction. Steroids as usual waking me at 3am so Iā€™ll be knackered regardless (ugh).

*Confirmed cold capping stopped. Because they were to take longer administering the meds they said it would mean having the cap on longer than usual and thatā€™s not healthy. Oh well, I tried.
Had another reaction to docetaxel so looks like I wonā€™t be having that in future, not as scary as last time (thanks goodness). Dry cough and the air in front of me felt really warm, very weird reaction.

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@sez hope all goes to plan today for you.

@ake how are you after your second cycle. Hopefully you are doing okay. I have my second one on Tuesday next week and already feeling nervous about the side effects.

Iā€™m not cold capping and my hair is already starting to shed. Will be shaving it off as soon as it gets too much :pleading_face:

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Morning all, hope youā€™re all doing ok.

Iā€™ve got my blood tests this morning to see if I can have chemo tomorrow, hopefully my liver has righted itself :grimacing:

Still got a touch of cystitis, hoping that wonā€™t cause any delays, I want that round 3 ticked off!

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Good luck today.

Fingers crossed for you today @sharlou

@galdiolus ive got my 2nd one on Tuesday too. Dreading feeling so sick again !

Hope everything goes smoothly for those having treatments / waiting results xx

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@epic1 did they give you anti sickness to take home? I was given three days worth and that helped me.
I am trying to focus on the positive that after Tuesday I am 1/3 through and only 4 left to go (hopefully)
Let me know how it goes for you on Tuesday x

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Iā€™m beginning to feel a bit of a fraud being on here. I had my 4th lot yesterday and I have nothing to report. Iā€™m ER positive and HER2+ and Iā€™m having the usual treatment - Chemo (Paclitaxel) weekly for 12 weeks and Trastuzumab injections 3-weekly for a year. But miraculously I havenā€™t suffered any hideous side effects apart from chemo rash thatā€™s getting better and hair shedding that isnā€™t catastrophic yet.
You probably donā€™t want to hear this so I think Iā€™ll drop out for now unless/until I suffer a sudden dramatic decline.

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Iā€™m similar to you. I donā€™t take my anti sickness tablets as caused pain or diarreah and I donā€™t feel sick. I just get some before chemo by iv. I do have a mouth ulcer though. My neuts were very low last week so just hope they are OK for Friday. Iā€™m seeing my onc next Friday as had lots of questions about what happens after my op. His letter didnā€™t mention Kadcyla but if I donā€™t get a complete response I move to that. Itā€™s for HER2. I asked about it anyway regardless of response as sounds like itā€™s better than Phesgo by 5%. I also asked as Letrozole failed me what I will take instead etc. I see my surgeon on the 23rd and I have a CT on the 11th November to check the lung nodules (scary). I have a covid jab on Friday after chemo hopefully. It was going to be chemo on Thursday when I booked the jab. I am also considering a second opinion.

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Donā€™t be daft, no oneā€™s judging. Youā€™re just as valid as everyone else. I havenā€™t had chemo rash but all my hairs gone. Iā€™m lovingly known as peanut now! Iā€™ve had more issues with my two ops and a precondition shoulder injury. Iā€™ve just done round 2 (3 weeks apart) and steroids still on till tomorrow then Iā€™ll be a zombie peanut. Sickness but no need to take the tablets theyā€™ve sent me home with.

Acid reflux is back as in first week so I shall manage with diet and not eat what burned my throat last time (Iā€™m writing it down I am that person).

Weā€™re all different Magl so donā€™t feel a fraud. X

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Aw @magl thereā€™s no need to drop out! We can celebrate the good here as well as bewail the bad :hugs:

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@nicnac17 that is music to My ears, to hear of someone else like me I have also been writing everything down every day :see_no_evil:
Like you I had the awful acid but I was prescribed Omeprozole which must as I didnā€™t want it has really helped. Although two weeks in and my throat and mouth are still suffering

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:heart:positive responses are good too the forums for everyone so dip in and out as you feel you need too :two_women_holding_hands: everyone gets each other through :heart: itā€™s good you share your story too magl :heart: :two_hearts::two_hearts::sparkles::sparkles:Shi xx

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Linda :heart:follow your teams guidance on the Covid jab :heart::two_hearts::two_hearts::sparkles::sparkles:Shi xx

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Just to add to my tale of (relatively) robust health Iā€™ve been on Letrozole and Adcal since May, ie four months, with not a single ill effect.
Iā€™m going to the hairdresser this afternoon to get some advice about my hair. While Iā€™m in town I plan to stock up on toffees.

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