Be gentle with yourself. Hope you feel ok. This rnd 3 EC?
I’ve just booked myself in to have my hair cut shorter next wed. Im fed up with it already and I’ve a wig consultation next sat.
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Im day 10 now after rnd 2 and all the same, Indigestion,
manky chemo taste in mouth, but sore throat going now. Teeth really sensitive. Tireder than 1st round.
I’ve just booked in to see hairdresser next week to get cut short. Not looking forward to the cold but need to take this next step now. I know I’ll lose big again after no 3, so i need to do this in stages. I’m fed up with it now.
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Aww me and you both, I’m fed up with it shedding ALL the time. I’m not comfortable with everyone seeing me like this either so once I’m comfortable that’s when people can see me.
We sound quite similar in symptoms I forgot the manky mouth.
Good luck with haircut x
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Yep 3rd one…just one of the bastards left!! Been in bed since 4pm 
Good luck for the hair chop, it was such a relief for me when I got rid xx
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Yes I’ve now got a No1 buzz-cut and it is so much easier than when it was falling out. Is anyone going for a proper shave (razor ??)
I had my wig meeting today and the lady had ordered 5 based on my initial consultation. TBH they were all really nice, but got it down to 2 possibilities and then randomly picked one. It was £75 through the NHS. Not sure how much I’ll wear it, but might come in handy over Xmas time.
Keep smiling 
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You look fabulous! 
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Wow! That looks do good! Love it x
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Thanks everybody, I am so relieved to have just ripped off the plaster and get it done x
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Jumping over from August group! @galdiolus you look fantastic!
I secretly quite like my shaved head, although I haven’t the guts to show anyone outside of close friends and family. But I’m intrigued and excited to see how it looks when it grows back. I’ve never had short hair and I am wondering if I will now keep it shorter out of choice after chemo.
I’m 3x EC in now, so not much further than you all in this group. You’re doing great! Keep going. Xxx
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Hi Sez,
Oh yeah we’re the same then - HER2+.
As far as I can tell from all my research, the most important drugs for HER2+ are the Herceptin (trastuzumab) + Perjeta (pertuzumab), or having them both together in Phesgo, which is what I’m getting. So hopefully having a different chemo to docetaxel won’t change your outcomes as long you’re still getting some kind of chemo plus those…is that the case? I’m so sorry you had a reaction. I had a reaction to Phesgo with the loading dose, but thankfully yesterday was OK - they gave me more steroids, more antihistamines, and because it wasn’t a loading dose it was less of the Phesgo, and I didn’t have a reaction. It’s horrible to react, isnt’ it, even if quite mild. So sorry it was so scary the first time.
Although I didn’t react to the drugs, I had an AWFUL time with the cold capping and reacted really badly to that, so I have decided I’m done with that too. I think I had it on for longer than I was supposed to as well, but regardless, I had a horrible pain, light sensitivity and even some nausea for hours and hours. I was really struggling and it made me more miserable than even the awful side effects - it’s just not worth it to me - though I’m annoyed I’m so sensitive to it, but so be it. I’ve decided losing your hair isn’t the worst thing in the world! We’ll be in it together!! I’m sorry you had the choice taken out of your hands though, that’s really rubbish. At least you have delayed the hair loss and hopefully promoted regrowth with what you have done so far. Well done!
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The dread is awful isn’t it @gladiolus @epic1 - apart from the cold capping experience (which was awful) the rest was OK yesterday and I had a really good day today. For the first time since all this started I felt able to do some exercise - a very (very!) slow jog for about 3k and then about 20 minutes of gentle Pilates with lots of rests. It was a big improvement for me, and I hope I’ll be well enough to do a bit more now and then as I know movement and exercise can make a big difference to mental wellbeing as well as managing side effects and just feeling better/prepping for surgery etc. I also just enjoy it. I managed to do a bit of the endless cadmin (cancer admin) and even made it to a cafe with my other half for an hour or so. All lovely after being so sick! This evening the nausea has started though. It is quite low level, but I wasn’t able to eat my dinner…feels a bit early for that to be kicking in (day 2!!!) - I’m still on steroids for goodness sake! Ah well, at least I feel mostly alright in myself and I’m going to keep celebrating that it was a good day!!
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I’d managed to master the cold capping, I took cocodamol instead of paracetamol and it worked a treat. With my new treatment plan it’s possible I may be able to resume cold capping. I’ll still likely lose the hair (no surprise, I’m down to about 40% left) but at least it could help it grow back.
I get massive bruises/markings that last 4-8 days with the phesgo but no other reactions to it so far. It’s a bugger when they ask you to put pressure on it afterwards but I told her she can do that, I’m not touching it.
I’m actually surprisingly pleased about the reaction yesterday, I hate docetaxel (the first reaction during cycle 2 was so terrifying I’ve been so anxious and scared of it happening again and the possibility I’ll never have a reaction like that has just taken the weight of the world off my shoulders) and will be relieved not to have to continue with it.
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I’m seeing my onc next Friday and will ask re Kadcyla which is available if I don’t get a 100% response to Phesgo and Taxol. My taxol is being reduced by 10% next week as my neuts are decreasing as expected (⁶th of 12 tomorrow).
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Looks fab!
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Oh that’s good, glad you’re pleased with it. Yes I hate docetaxel too. I had that massive bruise thing the first time with Phesgo, but I didn’t have it yesterday (haven’t checked today).
Well done with cold capping - I took cocodamol too but to no avail. Ugh, hated it. But yes - it is meant to help regrowth!
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Tough old run between the arms and shoulders and nausea and hair shave. Big day!! Just sending courage tonight, and hope for things to improve soon!
My brain has gone funny too. Memory is medium, but I mix up words, and have to ask people to speak more slowly to follow a fast conversation. I can’t drive anymore because my reaction times have gone too slow. I certainly hope it comes back!! @sez
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