September 2024 chemo starters

My memory is awful. Feels bad because I was known for having an awesome memory before. I forget simple words now, let alone important things. Chemo fog is real. I hope it’s temporary.

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Ah hooray - you look awesome!! Love seeing this, it gives me courage for when my time comes!

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Well done @ake for jogging and Pilates that is amazing. I am walking 3 miles a day which has been great for my mental health and many days with a friend which has been brilliant. I want to get back to running so you have inspired me to at least try a little interval run :running_woman:

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Welcome @bluesatsuma and thank you.
I am HER2+ so on TC Phesgo 3 weekly due my second cycle on Tuesday.

I feel so relieved about my hair which I thought I would as the dread of it shedding was really getting to me

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:heart:beautiful gladiolus :muscle::two_hearts::two_hearts::sparkles::sparkles:Shi xx

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:heart:Linda_Corinne :muscle::muscle::muscle: reduction will hopefully help for remaining cycles :heart: it did for me on remaining cycles when mine was reduced :heart::two_hearts::two_hearts::sparkles::sparkles:Shi xx

@sez oh my god memory just awful, slow and different to how it was before going in HRT. Just diabolical and I have to make allowances for it and yes ask people to talk to me slower, I feel like I am half of me now.

I haven’t driven much at all I don’t feel like my co-ordination is good enough or my arms strong enough or my brain functioning good enough although I did drive in week 3 after round one but only 2 small trips.

My husband has to go away on business and I’ve a friend coming to stay with me and my daughter and I’m dreading him not being here. I’m really worried she’s just going to see this half person/friend when she gets here. But I’ve told her she’s got to get us out she’s going to teach me some resistance exercises I need to do more movement but I’m being a lazy sod! I have been on the bike but only once since my chemo started and I’m usually 3 x a week + weights! So I’m really encouraged with you all walking, Pilates and getting out there, so encouraged thank you x

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My parents are taking care of me from a short distance (they live about 15-20mins away), makes me still feel a bit independent but also safe (I don’t drive).

I was so positive to continue working, my work people were so kind and modified my work load, flexible hours etc and I’ve not been in once since my first treatment cycle. I just worry I’d mess up and do something wrong, I work in a GP surgery so so I really can’t afford to be making mistakes, also we’re merging with another surgery and there’s a lot going on. When I return it’ll probably be like learning a new job anyway (my coworkers are telling me it’s absolute mayhem and not to return yet). I don’t know, I feel lazy. I have maybe one good week a cycle when I feel almost normal and think I should probably go in then but I just haven’t brought myself to.

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I should also imagine with working in a GP surgery infect risk is rife and possible not good for you to be in. But it sounds like they are really supporting you and also including you in what’s going on even if tho you’re not there. I feel like your last sentence you feel guilty for not going in when you have a bit of normal you around, maybe enjoy that bit of normal you for you is all I’d say. Do something you want to do when you feel more like you.

Also lovely to have your parents close by, my Mum has passed but my Dad lives miles away. And I bet they’re doing an amazing job of being there for you when you need them. Hope you get some rest today x

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You look fab. Well done for going for it :heart_eyes:

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I’ve been lucky in one way work wise, they removed me from patient facing jobs (have allocated me an office just for me and moved me to the site nearest to me so I don’t have to travel by public transport and can walk, although I often don’t feel up to walking so far, I live in the Peak District and it’s a lot of hills) but the annoying thing is their sickness policy for everyone else.

Instead of a certain amount of sick days a year you get three instances (not me, my sickness is something else), each instance could be a day or as much as a month+ if recovery is required, after those three instances you go on half pay, so people don’t like to waste a sickness if “it’s not too bad” so they come in sick all the time (with covid and other infectious things) often not wearing masks or anything and I would have to rely on them giving me the heads up to give them a wide berth or steer clear of me (HR said they can’t tell them not to come in and I’m not supposed to ask people to give me the heads up) and I just don’t trust anyone outside my family and friends to do that.

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Oh my gosh, that sounds scary mary and relying on others to be honest. No wonder you’re not going in and I’m assuming they can’t make you go in can they?

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I was hoping to do some work during chemo but I just haven’t felt up to it, which is frustrating as I’m going a bit stir crazy having nothing to focus on. Work have been great and are happy for me to dip in and out as much as I like but the nature of my job means it’s not that easy to do that and before long I’d feel obliged to log on even on days I don’t feel up to it as I’d be scared things got missed. I’ll be going to half pay on 17 December though and that really worries me :confused:

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What a crazy policy! Yeah I’d be inclined not to go in too :grimacing:

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It’s a nuts policy and we were all worried about it before any of my crap even started, just came into affect this year. That’s the NHS for you though

It’s down right wrong! And nuts! You can’t really work from home either can you? Do you get put on reduced pay like @sharlou which is crazy for you too @sharlou yes that’s a worry. With everything we’re all going through anyway and then things like this on top. I do know you can talk to people on these websites about financial things during cancer treatment they may be able to help. X

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I think I’ll be on reduced salary either near the end of the year or the new year (my brain is mush). I’m in a good position financially (no mortage and I’ve always saved well) but my cat is sick too and her vet bills are starting to pinch (cost over £600 in the last fortnight, that’ll teach me about insurance).
They set us up to be able to work from home if it snows (as public transport up here isn’t great and even if you can drive many don’t want to when it’s icy) but for some reason I and others have been discouraged to when we’re sick. We have laptops we have to take to and from different sites (we have x3 surgeries) but they never gave us laptop bags or even charger cables so it’s pretty pointless

We could manage on it…just - but there’d be a LOT of belt tightening. I might ask Macmillan for advice but I feel a bit guilty as my husband works and I know there’ll be a lot worse off than me :grimacing:

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Why would they set you up and then make it difficult? I sympathise as I’m in the NHS too and I know some policies and processes make no sense at all. There seems to be ever changing goal posts :confused:

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Cos they’re numpties (only explanation I can think of) :woman_shrugging:t3:

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