Is everyone else living in their pjs? I feel so lazy. I’m having complete headscarf meltdowns. I did the Headwrappers workshop before I started so I was prepared and now i cant seem to tie the simplest of scarves. It’s really annoying me.
Tomorrow i shall get dressed and put on some make up and leave the house. It feels like such a production. How did I function and go to work before? It feels like a distant memory tbh. I had my surgery 18th June a few weeks before we broke up for summer hols so I’ve been at home since then ( 17 weeks ) and i wont be back until Feb probably. Im a TA in a boys school. Hubby taking us out for dinner tomorrow. No idea how to make my stringy hair even half decent. But it will be nice to go out. I’m a bit stir crazy.
Have a nice weekend everyone 
Hi @luckyduck1,
I hope you enjoy getting out. I have been looking at youtube videos for how to tie headscarves, so many different ways!
I know what you mean, I feel like I am spending so much time at home. I have been looking at comfy clothes that aren’t PJ’S this week just so I can feel like I am getting dressed whilst still ready for a nap 
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Take care
Yes, Longewear options!.. it teminds me of Covid times 
@Linda_Corinne just off for my jabs . Hope I don’t get a dead arm- only have one they can use ! Did you get a temp ?
My arm hurts but feel OK otherwise. Not taken my temperature. They did query why I was having it.
How is everyone passing their days?
I am working short days from home (4 hours a day) and I go for a one hour walk. Other than that I feel like I am glued to the sofa/bed watching TV!
My lovely cousin bought me a subscription to a book club so I have books but struggling to focus on reading. I have bought a 1000 piece puzzle for next week when I have my second cycle on Tuesday as thought that might be good.
Trying to stay away from people generally because of the winter bugs but feeling already I am going stir crazy!
I’m glad they’ve been so supportive, but yeah that policy definitely does not sound conducive to an infection-free workplace! I also think when you only have a few good days every three weeks it’s TOTALLY legit to use those days for things that will get your resilience and strength up, whether that is seeing people, exercise, rest, eating a bit more or whatever is needed before the next load hits. By the way I’m in the Peak District too - in Hope Valley! Feeling very lucky to be going through this somewhere that is so beautiful. I’m so sick again this morning but have managed to sit up and stare out the window, and am grateful to be able to see hills.
Im spending my days going slowly stir crazy! I do have to drop one off at school still so I am doing some car journeys… bobbing along in my wig or bobble hat but im not out the car. I do try to do the dog walk but my husbabd does every other day pretty much. Lots of box set tele and I too am trying to get back into reading… find concentrating hard… just start getting into book then nod off!! Crazy times
I honestly don’t know what I’m doing with my days. I’ve done way less work than I expected. I think I am dozing/sleeping a lot of it. Basic everyday tasks like getting showered and dressed take me so long, and when I’m really nauseous I spend a lot of time just lying really still as moving around makes it worse. I’ve managed some podcasts. I’ve enjoyed when friends have been able to pop round for an hour, though I haven’t seen many people at all. I also feel like there has been a lot of admin and appointments. But there should have somehow been more time too - where has the time gone?!!
I’m a few days in to cycle two and nausea is back in force despite being on two different anti sickness meds this time round. So I’m currently alternating between starting out the window, staring at the ceiling, trying to do a few emails, and trying to get a bit of ginger beer down me! I think I have let go of getting anything “done” during treatment - getting through it will be a win. If I have the energy, I’ll try and keep moving my body as I know that helps - even if just small walks - (an hour a day is epic!!! well done!!!) - and then I’m taking all other pressure off!!
I was nervous too, partly because some of the ladies on here have had such an awful time with it, and partly just the idea of it. I asked if I could have an implanted port instead but they said the waiting list was too long. So I went ahead with the PICC line, and I’m really glad I had it done. I hated having all the bloods done in hospital last round when I didn’t have a PICC line, and it’s a relief to know now that if the chemotherapy closes down my already pretty crap veins even further, they will still be able to put in IV and take bloods without hurting me. PICC line insertion was actually the one bit of all of this that was totally straightforward for me - it barely hurt, and although it’s a bit annoying to have it there, it hasn’t really hurt since either.
So far I have had a week off work when I was feeling absolutely rubbish, then a week working 3 short days then a full week of working short days and managed 1 day in the office.
Hopefully next round will be a similar pattern but my boss has suggested as this progresses I need to consider a longer period of time off. Currently though, work is giving me some meaning and purpose and distraction from cancer and chemo, I am lucky my job is pretty flexible.
Trying to get out for at least half an hour walk but other than that lots of TV! Can’t concentrate on books so I have bought a paint by numbers. I used to do them during lockdown.
I am mostly going stir crazy. I’m reading quite a lot, but just light and breezy stuff as I can’t concentrate much or for very long.
I am trying to exercise when I can but really struggling with it due to lack of energy. Then I get lazy git guilt and feel I should be doing more and that just makes me feel worse and lower in energy 
Oh yes, know that vicious cycle well. So hard to balance the need for rest and movement especially when motivation is so low.
We definitely need to give ourselves lots of grace.
Sounds like everybody is pretty much like me then, that makes me feel better knowing it’s not just me glued to the tv!
People keep recommending box sets and I just go yeah watched that already 
Painting by numbers sounds like a plan though might give that a go 
Went for a No.1 today as I was fed up with all the hairs getting everywhere - how is it that they kept ending up in my mouth in the shower?! Anyway it’s really patchy but it’ll have to do for now until I brave the zero to match my husband.
I’m so impressed by those of you who are continuing to work through all this. I’ll admit this week I do feel a bit of a fraud being off as I’ve been feeling good, but I know that’ll change shortly.
I’ve started watching New Amsterdam on Prime. Maybe everyone’s seen it as it’s a few years old, and I guess medical dramas aren’t everyone’s cup of tea, especially during treatment, but I’m enjoying it.
Yeah I was thinking of painting by numbers or maybe knitting!
I’ve never watched so much tv - my friend recommend married at first sight Australia and I was like - no way that’s just not me - I’ve nearly watched all of it I go for a walk a day , a bit of tv , a afternoon nap , check work emails (they have been really good - I can do what I feel like ) bit of reading and that’s about me done . I think rest is really important now . I’ve bought a colouring book but haven’t started it yet - I might do a jigsaw @galdiolus good idea ! I do feel really tired today - think I’ve done too much on my “good week” so might have a longer nap today
I’ve somehow managed to turn into Marlon Brando at the end of Apocalypse Now in a matter of 48 hours. Steroid face totally kicked in (where have my cheek bones gone?!). Flushed too. Ugh, well I still have some hair (only have to keep it til Tuesday when my family returns to Australia and I no longer run the concern if scaring/upsetting the kids).
My daughters bought me a colouring book…I have a bit of a thing for true crime and they got me a serial killers colouring book Quite bizarre colouring in Fred and Rose West 
I have a strange family