Aw bless you. I’m quite lucky that the steroids don’t really affect my face, but my stomach! I look six months pregnant 
Also obsessed with MAFS, it’s so compelling!
2 Likes
I’m already a chonk, my belly’s not been reasonably flat since my early 20’s. My trousers feel loose so I’m assuming it’s all gone to my face. Noice.
3 Likes
It’s just the gift that keeps on giving isn’t it 
1 Like
Oh I’m going to have to try MAFS i think…
3 Likes
I do 3 weekly cycles, just started cycle 2 on Thursday. Last cycle, day 10 - 21 I felt great - worked full time. I also felt good on steroids up to day 4. My worst days were day 5 to 9.
1 Like
Thanks for the advice 
Hi all, trying to join this thread still not sure if I’ve done it right…must be my chemo brain. I had my 2nd round of TCHP last Tues. Really struggling with fatigue have no energy & feel awful. Managing to eat & drink but struggling to find things that I want to eat. I felt ok in my 3rd week of last cycle so hoping things pick up this week. I know getting out & about helps but that is too much for me at the moment
7 Likes
My oncologist said to me I should see exercise like medicine. And is this what makes me move 1 hour every day (walk, pilates, yoga, stretching). If I’m really tired, I do 4 sessions of 15 mins each. If I feel good I’ll for a 2 hour walk. I would not stop taking my anti-sickness medicine, so I push myself for 1 hour movement - mostly I walk. And I feel better every time. Saying that it’s almost 3 PM and I’m still in bed…but I’m heading off soon…oh it started raining 
. Umbrella it is.
5 Likes
You did it right! Welcome to the club no one wants to be part of! Sorry you’ve had such a grotty start - I’m feeling really beaten up by it too. Also looking forward to week 3 - as that was better for me in cycle 1 too - and also haven’t made it out of bed today. Just take one day at a time!
1 Like
@Guida yes mine said the same about exercise. I set myself a three mile target every day and am looking at a bit of strength training too (when I feel able) but I do think it has helped with the side effects x
1 Like
I’m bored too. I can’t work as I’m a teacher and there’s no way I could stand all day and do 30 small people any justice whilst inhaling every known virus to man. To fill my days, I take kids to school. The take a leisurely breakfast, do some house work, take a walk with husband at lunch (sometimes with lunch out too) and then tv till I pick kids up. Been baking lots, Christmas shopping and chatting to friends too.
I’m enjoying the rest from work. But I do miss work too.
5 Likes
@bluesatsuma wow, so impressed especially with the Christmas shopping! I should also consider that!
1 Like
Welcome @cornishliz
I’m on my way out to dinner with hubs, trying to negotiate how to dress up my thin lank mess of hair!
Sounds like I’m the same as everyone else in how i spend my time. A bit of tv, a bit of reading a bit of crafting, so far I’ve colouring, painted handmade xmas cards, rediscovered french knitting and making xmas decorations for gifts, made my xmas cake, and cousin sent me diamond art, which is our wedding photo, it’s like colour by numbers but using little beads. Very clever, but does take a lot of concentration. Been tireder round 2 but still trying to
get out for walks in good week and a half. I’m off to see the Yayoi Kusama’s new Infinity room at a gallery next week in Central with a friend. One minute I’m super adhd motivated and the next I’m asleep on the sofa. Just take it as it comes. Xx
6 Likes
I feel shattered today. Not sure if it’s the Covid jab on top of chemo yesterday or low neuts. If my neuts are around 1 chemo will go ahead again on Friday. I’ve worked Monday to Friday and take it easy at the weekends. I didn’t sleep well last night despite my sleep spray from Little Lifts. I think it’s the steroids. Just managed to go downstairs for lunch. Ha. I’ve been watching box sets on I Player and ITV X. I watch MAFS too each night. I’m hoping this isn’t the start of things to come. I don’t think so as neuts were low on Thursday and felt OK.some good ideas of how to fill your time. I thought about writing a book last time but didn’t so kept all my letters. I walk most days as I used to run but got a blister on Wednesday when I wore my trainers so not been again since. I put germoline on it alot which is good for numbing pain. I seem to have alot of painful areas - mouth, bottom, toe, arm where had jab that come and go. I’m taking laxatives so that’s cleared me out and made me dehydrated. I’ve felt cold today but not got a temperature.
4 Likes
Breaking it up into 15 min chunks is such a good idea, makes it seem so much more manageable on a bad day. Great tip!
The Breast Clinic prescribed me Letrozole in May and I’ve been taking it ever since. Yesterday the Onc told me she didn’t realise I was on them and to stop immediately. Taking Letrozole with chemo can cause blood clots!
Has anyone had blood in their nose? Not a full blown nose bleed but little snotty blobs of blood when you blow your nose. I’ve had that for a few days but forgot to mention it yesterday.
There are some adult exercise machines about 300 yards from my house and I’ve been using those every day for about half an hour and that’s about all the exercise I’m getting. I feel very virtuous at the end of each session but it’s not having much effect on my biceps yet.
Yep I have blood when I blow my nose. I thought it was to do with low platelets? I was on Letrozole but stopped a week before starting chemo as I asked the onc about that (thank goodness). My cousin had nose bleeds she said too.
1 Like
Cornishliz you posted right 
Shi xx
Linda_corinne please keep safe temperature is not always indication of infection, I didn’t have a temperature with the uti but it was infection and resulted in 6 days in casa nhs back in 2017. Remember to be bigot hypothermia too during chemo so watch for low temperature too Shi xx