September 2024 chemo starters

At the weekly blood test they test:

  1. Hb (Haemaglobin)
  2. WBC (White Blood Cell Count)
  3. Platelets
  4. Neuts
    When I go in for chemo they write the results in my record book but not everywhere does the same thing. These were my results for this week.
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Not really as I got my neuts when I had treatment last time on the NHS which I finally found out was stage 2a (less than 50 mm) /stage 2b (over 50mm). Mine was 51mm on the MRI but less on the mammo and us but ended up being 42mm after chemo They write them in your book. I can e mail my onc though but he doesnā€™t answer all my questions. I have alot. So Kadcyla for 14 cycles if I donā€™t get a 100% response or thereabouts otherwise Phesgo injection x 14. 60 to 65% get a complete response when HER2. Kadcycla seems like a long time for HRR2 but I wonā€™t need to use a cold cap but may get more tired also radiotherapy and hormone treatment (AI)! Probably Exemestane for AI which has steroids so makes you put on weight! Letrozole has no steroids so best to switch. Or Anastrozole with no steroids which can give you aches and pains but I didnā€™t get any apart from once when I had the white blood cell injections.

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Ahh, no book here which explains why I donā€™t know any of my details like this x

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Too bloody right, cleaning gets your heart rate going and endorphins pumping.
Stationary bike is good, thatā€™s what I have too, I love mine. Itā€™s really helped me but finding it hard to get on it at the mo!

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I will report back I can tell you know my District Nurse has said I should go with - replacement dressings x 2, alcohol wipes x 4, roll of bandage protector stuff, anti sickness tablets, codiene, paracetamol thatā€™s it. Iā€™ve got insurance and a GHIC card oh an names of my chemo drugs.

But I will let you know.

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I dont get anything like that! They come through on my nhs app but i cant interpret them.
I asked once at my treatment of my bloods were ok and was just told " if they werenā€™t ok, you wouldnt be here!"

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Is anyone else having headaches, like everyday for the last week

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Yeah Iā€™ve had a lot of headaches lately. At first I thought they were because of insomnia but Iā€™m sleeping ok now and still getting them :roll_eyes:

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Yeah, a few. Not helped by tender/sensitive scalp either.

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That and my sniffy nose. Im guessing both are a chemo side effect :woman_shrugging:

Ugh the tender scalp. I swear Iā€™ve got phantom hair, I keep going to take my bobble out :woman_facepalming:

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Iā€™m usually a big head scratcher (not nits or anything, just dodgy skin and I love scratching) so when I try and itch my head and it hurts instead, very unsatisfying.
It always seems to precede a big shed.

On a whim yesterday I went at it with the scissors (I donā€™t have a partner or anyone I want to put through having to remove my hair), tā€™was kind of therapeutic. Very unlike the movies. No surprisingly cute pixie cut at the end, more Boris Johnson pulled out of a vacuum cleaner. :laughing:

A friend said sheā€™d lend me her clippers but she hasnā€™t dropped them off yet so the scissors will have to do as I donā€™t feel like going out.

Does it say what your neutrophils are on the app? Just ask if not. What do they need to be to have chemo as mine seem lower when I have looked at other posts on here.

Not anymore. I think I must be less stressed now than I was. Have you tried doing some meditation? I have the Insight Timer app which is free. I do i do the yoga nidra ones. Iā€™ve only done it once or twice recently to be honest but would recommend it if you do feel stressed or canā€™t sleep.

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Ladies - my pics line in bleeding but only a small amount - thatā€™s ok isnā€™t it ? Seem to remember them saying it might bleed a bit and unless itā€™s saturated dressing donā€™t worry ? Cant really remember they seem to bombard you with so much when u canā€™t take it in !
2nd chemo was on Tuesday and Iā€™ve been so tired and down since. I canā€™t sleep cos of the line one side and node removal pain the other. Hope I turn a corner feeling really sorry for myself today but that might be end of steroids !

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Yes exactly - a small amount is fine as long as not gone thro the dressing. I hope you manage to get some sleep - it does ease off (and this is coming from someone who has had loads of problems with hers!).x

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@epic1 posting here and asking a question makes me think you are a bit concerned about your PICC line bleeding, I know I would if it was me. I finished chemo last December so canā€™t remember the information given. I would call your 24 hr helpline and explain what has happened, if they are concerned they will ask to see you.

I was always told nothing is to small, they would rather you call and tell you itā€™s ok, than you not call and it becomes a bigger thing.

Just found this leaflet from University hospital Southampton very similar to other hospitals, it mentions bleeding at insertion site.

:smiling_face_with_three_hearts:

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I was exactly the same, and did sleep upright propped with loads of pillows. Have a try it might work for you too, I did sleep quite well too.

Iā€™ve just checked my NHS app and yes neutrophils are on there and my reading was 3.8 smack bang in the middle of what itā€™s supposed to be and there is a tab to explain it. A revelation I am going to get them to explain it to me whe. Iā€™m next in.

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I was told unless it is leaking out of the dressing a little bit of bleeding is fine.

Sorry youā€™ve not been feeling great, hope youā€™ve turned that corner today! :hugs: