I’ve just had to sack the cold cap off! I knew within seconds it was different this time, it was agony instantly and within minutes I felt sick. Think because there’s so little hair now it just felt so much worse. Anyway I managed three sessions so that’ll have to do
Have you reported your tingling fingers and toes @rosa1 ? They particularly need to know about tingling fingers and toes in case it’s causing nerve damage.
@magl yes I did. The oncologist said as it’s mild to continue with treatment and if it’s get worse to let them know.
That’s OK then. I dread any of the side effects becoming permanent and I know that’s one of them with that potential.
My neuts are too low for chemo tomorrow so I have to have a week off. Very disappointing as the strength was reduced to avoid this happening.
Good luck with Docetaxel, im the same EC finished. See Oncologist next week, so lots of questions re Docetaxel. EC has been fairly kind, so im dreading the change and what it might bring.
Get stocked up on that chocolate!!
Sorry to hear that
Hi Rosa, hope you are managing to still enjoy some lovely snuggles with your baby? not sure if you’ve seen this anywhere already but there is a drug for glaucoma patients called Bimatoprost which can be prescribed “off label” to help eyelash growth for chemotherapy patients. My doctor has put it on repeat prescription for me. I can’t tell you that it works as I’m only 2 x cycles down so far but worth looking into if you are losing too many & worried about it - according to my optician & pharmacist it does really work!
Hi Rosa, hope you’re coping ok with chemo and a new baby, that must be tough. I haven’t started the taxane part of my chemo yet but I’ve been reading up and found some articles of interest. There have been some research studies on the benefits of wearing compression garments during chemo to reduce peripheral neuropathy. When I mentioned it to my Dr and nurse they weren’t familiar with the research, but I think I’m going to try stockings when I’m getting Docetaxel. The studies also used gloves but I’m not sure if I’ll do that. Just something which might help.
Hey @pod123 ive also read this, I’m also a runner (or ‘was’ haha) so I’m big into compression wear! I’m on a taxane and have been wearing compression calf sleeves (better than socks imho) during chemo, as well as the suzzipad cold therapy gloves (also recommended to help against PN). And not only do I think it helps with PN but with general feeling well & blood flow, boosting circulation. However, be careful with any arm compression - I also used elbow arm compression sleeves and have since been told that this almost definitely caused my blood clot in my PICC line (and that I also shouldn’t have been using it on my other arm where I had the lymph node clearance as it can cause lymphodema!). I was a bit gutted to hear that I most likely cause the clot and am now stuck on blood thinners for the foreseeable!
Yes @sunshineandunicorns i have been able to get lots of cuddles. She loves being held and sleeping on us which is nice. Not so great when she wants to cuddle in bed and you can’t sleep as she’s so restless. Just had cycle 5 so nearly half way which is great. I haven’t heard of that medicine. I’ll see how my eyelashes fair as they’ve never been the longest even from before. I’m unlucky to have short eyelashes. My toddler has lovely long eyelashes.
I read that they don’t help with neuropathy as I’ve had numbness on my right side in my fingers and toes, blisters and burning sensations in my fingers which I’ve not had before when I had 4 x docetaxel every 3 weeks. If it gets so it affectss you doing buttons up etc then you need to say but mine isn’t bad. I am good with pain though so I wonder if it’s worse than I think.
Sorry to hear this @sharlou but also on the positive side think of the extra time you’ve gained back! Can I ask, did they use any gauzes or surgical caps? I asked about this when I was last in for my PICC dressing but still really unclear & seems like it’s up to the HCA managing the cold cap for you
Wow @rosa1, seriously you must be one tough lady doing all this pregnant. What a lot to deal with. Hope you are feeling well enough to look after your new baby and CONGRATULATIONS. I’m glad you’ve not suffered too much with bad effects. I’ve got three kids but they’re 9, 11 and 15. I hope you’ve got lots of great family or friends helping you. Best wishes for it all…nearly there! Xxx
Hi Rosa1, congratulations on your new baby. Wow going through surgery and chemo while pregnant. I know you have no choice but that is really something. I am five years down the line now and really respect all you ladies with young children, because chemo really takes its toll. I lost my eye lashes and eyebrows but they do come back eventually. You take care. Thinking of you.
Sunshine 1
They used a surgical cap but it didnt seem to make any difference, it was awful! I know other people with very little hair manage it but I won’t be using it again after today
Did you take a paracetmol 30-60 mins prior? Also I use a pantie liner on my forehead as that is where it hurts otherwise.
I’m avoiding paracetamol like the plague due to liver function. I honestly don’t know what went wrong yesterday as I’ve had no problems with it at all. Bizarrely even the thought of putting the cap on makes me gag now. It’s all just a bit strange?! Maybe my mush-brain has associated the cap with feeling poorly and it’s more a psychological reaction, who knows? I certainly won’t be trying it again
Well it’s pegfilgrastim day. I hate the stuff more than chemo. I know once I take it I’ll have at least five days of feeling like my chest is in a vice and I can’t breathe. Meh.
In other news, my daughter has taken to calling this group my cancer cult Apparently me talking about ‘one of the women in the group said this’ or ‘oh I asked the ladies in the group’ has made her think I’ve been indoctrinated
Thank you @bluesatsuma. I didn’t have a choice. What can I do except to keep being positive. EC was definitely tough but luckily
It wasn’t as bad as what I thought.