Hi September group. Jumping over from August again to catch up. Wide awake on steroids again. Had 2nd docetaxel yesterday with reduced dose after the shit show of previous round. They’ve given me 4 boxes of codeine to help with the muscle and bone pains, as my temperature plays up and codeine won’t mislead the thermometer like paracetamol does.
Those on docetaxel - taste buds are ruined for first week. I found my appetite went down and lost desire for chocolate, carbs and cheese. Fruity lollies and icy drinks helped. Spicy foods also.
Sore mouth and extremely dry skin- use the mouth wash and moisurise like crazy. The red face made a comeback.
Hair seems to be growing again! But eye brows and lashes thinning rapidly.
Naiks - sore. They feel bruised. Again moisturise with something containing urea like eucerin.
Tiredness - for me it was harder than EC. A walk everday helps. I increase to several miles in 3rd week.
Watery eyes - i put a little cereve or vaseline by outside corners of eye as this skin is getting sore and dry.
Runny nose - vaseline up nose helps.
Halfway there or more! Youve got thiss ladies. Can i join you’re WhatsApp group.too?
I’m coming to the end of a different taxol (Abraxane) and my toenails on my left foot are SO sore! I knew this was a thing but thought I might get away with it by painting them black. Also my eyes water and it feels like the watering is burning me, I’ve had to pull over when this happened when driving as I couldn’t see. I’ve not seen the watering eyes mentioned anywhere so glad it’s not just me - I went to the opticians as I’d started to worry there was maybe an issue with my eyesight.
Interesting that codeine doesn’t affect the thermometer and I do wonder why none of my medical team have mentioned this, pretty useful to know!
So, after my usual constipation after treatment ive been to the loo 4 times this morning. Not an unusual pattern but accompanied by belly ache, which I don’t normally have and am not impressed with.
My finger nails, thumbs in particular are really sore, you know that feeling when youve over filed them or over rubbed to get glitter polish off, like that. Bruised. I can’t push my tablets out of the blister pack!! Not tingly though. My heels are also painful, especially in the morning but the other aches snd pains have eased. The Tax truck hits hard!!
EC was a walk in the park in comparison.
Ian and his sister were called up to the hospital to see her yesterday and thankfully she was lucid. Shes now in HDU, but overnight she has now been sedated. For anyone that missed, she is in respiratory failure now and its not looking good. She has a DNR in place following a brain aneurism 10yrs sgo. The timing is just awful. Everything all at once atm. Unfortunately I’m not well enough to dash to the hospital with him to support which is leaving me feeling pretty helpless. Just taking each day as it comes really.
Oh no I’ve got my first one this Monday, I’m trying to keep myself sane but really not looking forward to this. I hope you’re feeling a bit better today
I’m reading your post with interest as my first Docetaxel is on Monday and I am bricking it. Although my eyebrows and lashes probably reduced by 50% I’d say. I’m quite alarmed by your taste comment as I seem to have skipped this on EC and lack of appetite as on EC I’ve been starving the whole time especially at night rumbling tummy waking me up. I’ve made notes on all you’ve said, thank you x. Hope you’re feeling a bit more like you now. X
I’ve been catching up with all the comments since I was last on. Glad Christmas trees going up. We’ve been putting decorations and trees up and it’s bloody glorious makes me so happy.
Have any of you been told you’ve got low calcium or magnesium after your bloods have been done? My onc has told me to up my calcium and added magnesium to my list of tablets. Just wondered if this has come up for anyone else.
This last EC cycle has been extremely difficult, physically and mentally for me. It has really knocked me for six and now with the new drug on Monday I am really apprehensive and scared.
I went to see a dietician today among a few things she recommended I try kinesiology, has anyone done this?
I hope the weekend is going well for everyone, sending big hugs to all x
Aww OK I did that but it looked like I’d sent to the whole group on this which panicked me as I think you’d said be careful and as I said my brain is a squashed plum at the moment
I checked with an ANP on the chemo ward who sort of shrugged & said best to see an optician. I’m still not sure (and this is a genuine question I’m not being facetious) who I should be checking this kind of stuff with. I’ve met my oncologist once before I started for maybe 3 minutes after I had an appt with a registrar, then spoken to her twice on the phone (I don’t have any way to contact her). I have an emergency line who are based at a different, further away hospital, then a number for the oncology nurse who works alongside my oncologist that I have to leave a message for a callback within 48 hours so I guess I should be using this facility more.
Typically I end up ringing macmillan when I have a query I want resolving. There is so much MacMillan nurses have told me & I’ve learnt on this forum that I really thought my team should have shared!
Don’t you get asked re side effects each week by someone. I used to have an appointment with someone each week at hospital either onc or someone else. Now I see the nurse each week who does my bloods and picc line.
I am on Adcal as I had Osteopenia 6 years ago when I had a bone scan when I started Letrozole. I stopped Letrozole in August and am due a bone scan in Jan. I will be on Examastane which is a steroid instead of Letrozole.
a lot of us used visceral tears which did help but do always check with your team 
as I think you’d said be careful and as I said my brain is a squashed plum at the moment 
