Thanks Shi, I had the Zolondronic acid alongside my Docetaxel for this first round too and i think she said that could make it worse too. Then on top of last night in A&E its just been a lot. I managed to get off the sofa, fold the washing, wash up and have a shower and I feel a bit brighter. Moving around has helped a bit. Ill get some Epson salts tomorrow and have a nice soak.
Are hot flushes normal on paclitaxel? Iāve been going red hot on and off all night (temp is fine).
Oh good lord Sharlou, Iāve just been upstairs to get a fan! Sorry, Iāve become a bit of a lodger on your September thread!
Iāve just done pacli 4 and can set my watch by the 9.30 pm and 3.15am flushes (usually greeted by āoh hello 3.15 here you are againā), as well as those in between. If they are a side effect, at least we should be rid of them eventually!
Itās driving me mad! Just keeps coming and going. Iām dreading getting into bed as I canāt sleep without covers but I am going to melt!
Haha you are welcome here donāt worry
Iām on the evening primrose oil and also massaging myself in rose geranium oil (in a carrier) for some attempt at hormonal balance. Good luck overnight.
Lucky duck and Sharlouā¦ hope side effects and pains will calm down.
My Docetaxel bone/joint pain were really bad in first cycle for first 6 days - and pain got worse after I had the pre-Filgrastin. Second round I had the 5 Filgrastin daily injections instead and pain was not as bad as i first round. Thinking of you
@sharlou - Iām having hot times this round too (they arenāt really full-on flushes).
Iāve got very flushed cheeks, and a normal temperature. Not been too bad at night although Iāve have been waking 2-4am.
One good thing is, I had to turn the heating off
Haha yes my heating has been off, hubby was shivering in a blankie last night
Is anyone whose on paclitaxel find that their sleep is affected. I keep on waking up around 4ish feeling very hot. I keep complaining to my husband who says the bedroom is cold. I never used to suffer like this and wondering whether itās chemo related or pre menopause symptoms. Iām only 42 and not had my period since having my baby 10 weeks ago.
Yes, @rosa, me! Iām a hot mess! Already through menopause but off hrt now due to the cancer. Hoping it will ease when Iām through treatment.
I only had my first paclitaxel yesterday but I didnāt sleep very well last night and the heat coming off me could warm the whole of Cumbria I think
Pegfilgrastim today. Hates it hates it hates it
How is everyone doing? Are we all about halfway now?
Maybe ask for the 5 day injections. I start them tomorrow as was switched from Pegfilgrastim. Iāve had them before and I can only remember 1 time they affected me.
I have 2 more weekly treatments left. Many have champagne even whilst having chemo or a party. My picc will be removed too hopefully unless they keep it for abit. I know who is doing the last 2 so no need to worry re anymore coldcap issues I hope.
Iām having another CT in Bristol again before surgery which will prob be in Jan.
I saw my oncologist yesterday and he said after radiotherapy he wants me to start letrozole and zoladex. Really was not expecting to be told Iād need injections as well as the tablets. Especially as I may be in this for 19 years. Absolutely not looking forward to menopause symptoms. And how it will affect my bones.
Hey,
I am relating to the hot flashes. I am having monthly zolodex and putting it down to that but who knows what is causing what at this point.
I will be half way at Christmas. Last EC in about 10/11 days then 12 rounds of weekly paclitaxel.
Gosh itās a slog isnāt it
Hi @rosa1
I actually had zolodex for 2 years to treat endometriosis and pelvic congestion syndrome a few years ago. Back on it now for breast cancer.
Itās not easy navigating the side effects initially but it did become very manageable and there is lots you can do with nutrition and movement to mitigate some of the risks. Not that we need to be worrying about that now but after chemo letās hope we have more energy to deal with it.
Yes I am halfway through - keep singing Bon Jovi
Is there 1 for 3 quarters (last week) or 5 sixths as I am now? Ha.
Nice little trip to A&E with a bright red boobā¦cellulitis! Sent home with antibiotics and a ring drawn round the redness, if it grows past the ring Iāve got to go back for IV antibiotics.
Just face planted a giant pizza and Iām going to bed, this week can do one
Iām starting zoladex on Tuesday (alongside my next chemo, yay! ). Would love to know what youāve found helps re nutrition & movement, really quite intimidated by the idea of it!