Oh I am with you on the bone pain and stomach cramps. Had my second paclitaxel on Thursday, the pain was constant from Saturday-Monday, codeine doesn’t touch it. Seems to be settling today, touch wood. Lasted longer than on the first cycle though 
Hope you get some relief from it soon 
Oh I’ve just seen your other message @epic1! Sorry you’re at A&E, fingers crossed they get you sorted quickly xx
So sorry you’re in the hospital @epic1
The Docetaxol seems to be so harsh. Hope you can get out of there quickly and feel better on the antibiotics. X
Got home last night after 12 nights. Went to get pump changed today which took ages as they had to make it up from the antib’s and saline etc. Getting pumps and a fridge delivered tomorrow am. Got a call from onc to say consultant wants to operate in Jan and that I will be on Exemastrane from Friday hopefully. Also got a call re when iv antib’s end but they said they would call back. I may be on oral blood thinners so not sure why that may change as it means being off them longer before op. I also got a call re an ultrasound of nodes but they are calling back when I know when didtrict nurses are coming tomorrow hopefully. I will also have Phesgo on Friday. Stayed in bed this am and on sofa now.
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@epic1 sorry only just seen this. Are you home yet? I am sorry you’re there. I know how hard a@e is, but at least you are in cubicle. Let me know how you are xxx
@bluesatsuma Thanks for message - was home late that night but what an awful experience. I dont want to go back again. I didn’t feel safe at all it was all complete chaos. nothing seemed organised and I felt really vulnerable. Nurses hop from cubicle to cubicle with no PPE, I had a cubicle but with a curtain that was always open. Bloods took ages to take, in the end the onoclogist nurse came down to check on me and she took them. So to take bloods and check results took 10 hours laying amongst sick people. Temperature was fine at hospital, when I got home it spiked again but no way going back. I think it’s when i become in so much bone pain the temp spikes. Positive note is that the bone pain is better since yesterday but it’s been horrendous.
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That sounds terrible. Glad you finally got home and I hope your symptoms have settled. I’m really not looking forward to starting Docetaxel on 19th Dec 
Awful experience @epic1. I wrote to my mp about similar. Should not be happening like that. Hope you are feeling better now you’re home. My husband hid my thermonmeter this cycle. I’m only getting it back if i feel ill. We are desperate to avoid what you’ve just experienced. Feel better soon. Xxx
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How’s everyone doing ? I’m having my 2nd docetacel on Tuesday and am terrified. If it goes like last time I’ll end up in a&e on Xmas day!!!
They have reduced the dose to 20% less. Hope this helps . Oncologist said many people drop out of 3rd docetaxel - horrible stuff . Still ,2 more left then done!!
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Hey @epic1 nice to hear from you.
I have my 5th chemo all being well on Tuesday and then one more to go.
My chemo is docetaxal, carbaplatin and Phesgo injection each cycle so empathise with how tough it is.
My nails are now turning brown and are really sore. I loose my taste every cycle and get chemo rash. I also take tablets for horrific heartburn. I will be glad to finish chemo in the new year. So close to the end of chemo hopefully for us all xxx
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Not bad here, had my penultimate paclitaxel yesterday, last one has been delayed by a week as it was due Boxing Day, so won’t be until 2 Jan. Can’t believe it’s nearly over, so happy!
Docetaxel sounds awful Pac hasn’t been too bad for me, I have about 4 days of excruciating bone, muscle and joint pain but other than that it’s just been the usual tiredness and loss of taste/bad taste.
It’s so nice that we’re all almost coming to the end! Are most of us having radio next?
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@galdiolus sorry to hear your nail are sore. I remember the facilitator from the Look Good Feel Better hand and nails course recommended using Vicks Vapour Rub as it contains Camphor that can help with discomfort and help prevent infection.
Hope this helps🥰
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@sharlou ive got radio next. Got appointment 3rd jan to find out what’s involved - think it’s 5 days. Then 2 years of abermiclib and 10 years leteozole. Taking 1 thing at a time ! How about you? Do you have radio next xx
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Glad we are all slowly getting there. I have 4 more weeks of paclitaxol with the last one on the 6th of January. Meeting with radiotherapy next week. Cant believe where the time has gone really. I too will then be onto abemaclicib and bone stuff etc. Its onwards and upwards hopefully!! Would like to be less familiar with the hospital. Im there 4 days out of 5 next week and still need to buy a turkey!
Hope you all have a good weekend!
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Radio next, meeting the radiologist on 20th, expect to start sometime in January. I’m having three weeks on full boob, underarm and collarbone. Just want the ‘big ticket’ items ticked off! After that it is at least 5 years of tamoxifen and zoladex, although I don’t know how long I’ll have the zoladex for 
Bit worried about tamoxifen side effects but mainly have an ‘it is what it is’ attitude about it I think 
xx
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Just had my last paclitaxel. Have my radiotherapy planning appointment on 23rd December. I’ll be having 15 sessions of rsdiotherapy to chest wall, underarm and collarbone area.
Unfortunately due to delays I still have 3 more cycles to go so I’ll not be finished chemo til Feb. My next chemo is this Thurs if bloods are ok so I’m hoping the side effects won’t be too dire for Christmas, but “it is what it is” 
After chemo I’ll be getting 15 sessions of radiotherapy to the breast and collar bone area. Then it’s 10 years of Tamoxifen for me and they haven’t decided about Zoladex or any other hormone blockers. This week I’ve been feeling good though so I’m getting to do a few Christmassy things with the family 
I’ve just come out of hospital following a 9 day stay. Something I always dreaded. It started back in September following my first (and last) course of Filgrastim when I had an awful reaction and couldn’t breathe, I was taken off Filgrastim. It seems it must’ve damaged my lungs as I’ve been really sob ever since.
I woke in the night with terrific right sided chest pain and I thought I was dying. It was 1.30 in the morning and we phoned for an ambulance.
I was rushed (6 hours later) to a&e and after spending 3 more hours in the back of an ambulance outside the hospital.
I was prodded and poked and had loads of tests in a&e (which were slow but brilliant) and eventually sent up to the Oncology Assessment Ward. I had an infection in my lung and was put onto antiobiotics. They also discovered pulmonary embolisms in both lungs and to top it all, I was positive for flu.
After 5 nights in the OAC, I was transferred in the middle of the night to the Oncology ward in a side room.
I was discharged with blood thinners (took from 9.30am to 8.30pm to discharge me).
I’ve not been given any information or any guidance on living with blood clots in my lungs.
My Oncologist (who I’ve never met as all I’ve had are phone calls) is ringing me on Wednesday and won’t do a face to face because of me having the flu.
I’m petrified of carrying on with Doxy and I just don’t feel like I’m getting any help or support from anyone.
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Oh @janie3 you have had such a rough time after the past few days and are obviously very worried about blood clots.
As you don’t have a call with oncology until Wednesday, do you think you might like to chat it through with one of the BCN nurses
Helpline: 0808 800 6000 (Mon-Fri 9am-4pm; Sat 9am-1pm). Speak to our trained helpline team. No questions are too big or too small
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