Can highly recommend look good feel better make up work shop. The guy who ran our session was fabulous and so funny. Lots of good quality freebies. They run it in loads of areas.
Hello beamies, hope today’s windy weather didn’t blow your topknots off … had an incident with my head scarf on the seafront - chased it for a while. Went for amazing hypnotherapy to help with the sickness and horrible needle issue I had last cycle and so far so good. Med help is coming next cycle (hur-fecking-rah) in the form of Emend, and then possibly adjusting down the FEC dose if I’m still being sick - apparently this shows that my liver can’t tolerate the dose. Ho hum. I suppose I am a bit of a lightweight wine-wise too; under the table rather than dancing on it etc…
Anyway, onto more cheerful things, hope you are all doing well and up to some fun and keeping away from tall trees. Pam - I’ll be chemo-ing for ages - I don’t finish until January, and then it’s radiotehrapy, otehrs the same I think, so we’re gonna be around for a while. Sam - I’ve got the sweetest male chemo nurse, who is a bit of a cannula genious, and pretty too. Woah there girl, I must be feeling better! Love Anna.
Well hello there, hope you’re not all blown away! I also had an incident today when I rushed out to rescue my food bin from being run over as it had blown into the middle of the road, ended up then chasing my hat down the road, food bin in hand with poor lady in car wondering what on earth was going on. Probably caused more chaos than if I’d just left it there!
Anyway, my lovely friend came over today and has given my remaining hair a bit of a trim (about 3 inches off) which has made the whole thing much more manageable. She quite rightly says that there is nothing to be done about it all until the chemo is finished, it’s just a case of managing it week by week depending on how much is left and which bits (!) and afterwards we will worry about trying to rectify the situation! It also turns out that she once had a placement in a wigmakers, so is well placed to help me with some pretend hair, so it looks like I’ll be cashing in my prescription after all!
I have to say that I feel much more empowered about the whole hair thing having asked for some help instead of just struggling with it on my own, it really helped just being able to have someone else to talk about it with. Help is good, don’t be scared to ask!!!
Hope SEs not too bad today. New thing here is an achy bruisy arm…but not the one the last chemo went in. So I’m wondering if it’s not a SE at all?? Can’t tell the difference these days! Daughter has come home from school coughing today, great timing right in middle of week 2 :-/
Did someone say their nails were going black? Isn’t that a Tax thing?
Hello all, and Rachael - yes me too, I am plagued by my digestive system. It makes such a racket all the time, wierd slurping and sloshing, with muffled explosions … and having been set like concrete and on the maximum dynamite laxative dose, to exactly the opposite. Satanic! And so unpredictable. Went to ASDA loo and left a special ‘customer feedback’… sorry that wasn’t funny (heh heh). And piles, what a lot of piles … will it all go back to normal I wonder, and what is normal? And wind - like the bellowing of a herd of elephants. Poor husband; I appear to be quite a catch right now. Love Anna.
It’s my nails that have done black. It happened half way though my 2nd fec.
Morning Beamers, glad you liked the LGFB session Char, hope I get a nice bag of goodys at mine in a couple of weeks!!
Pam glad the meditation session was a positive experience, we’ll all be new age hippies by the end of this saga!! Lol
Nutty I’m the same with the loo, sort of, I either can’t go or can’t stop! And I drink about 6 litres of water a day so I’m on the loo every half hour anyway, much to the amusement of family and friends!
Hahaha Rachael, chemo farts are pure evil, I asked the doctor why they hadn’t invented meds for that yet, she just laughed, obviously hasn’t been in the same house as a sufferer!! I haven’t had piles but heard it’s quite common from the irregular bowel movements ?,
Anna a lush nurse definitely passes the time sweeter, should be an NHS regulation! Glad your finally getting sorted with the nausea! I too am quite the catch, given up on the wig for a bit, loving my new beanie look and bald doesn’t bother me either! There are positives to hubby working away lol, my digestion has scared the dog away to the other room, so I can’t even blame him now! ???
Glad your hair day went went well Ness, apart from the headwear chasing lol, other bruisy arm is another one to add to list, could be worse eh, and Char as Ness said I’ve only heard of nails going black and dodgy on Tax, so that’s yet another one, as we’ve said we’re all different with different bits and bobs popping up, all still here fighting though, pretty impressive eh!!!
Gonna try and sleep, steroids bugger up my sleep for a week or so, but if tiredness is all I’m getting right now I’m deffo not complaining, later taters, love n stuff xxx Sam
Pan glad your having a good spell, I’m still wearing an gel layer over my nails and have black shellac nail polish on top, had thenm infilled last Friday and my nails grow slowly so will have them done again before first Tax on the 10th Nov, the chemo manager recommended this before I started, I did share it ages ago on here, blimey feels like years ago now lol, for same reason, to protect from UV light, might be worth bunging on some black varnish Char, xxx
Pam! Not pan, good grief chemo fuddled brain strikes again lol, the other typos ignore, lol, we know what we mean eh lol xxx
Thanks for that will have to pull out the vanishes. I’m petty rubbish at maintaining my nails will have to look at shellacs. Saw something on groupon.
Hi PaulS, shellac is a harder, more permanent nail varnish that helps to keep nails from breaking, has to be put on in a salon, unless you buy all the uv light gear that is needed, I have it on top of gel, a powder mix which goes solid on top of real or false nail, yet again different advice and procedures, I don’t have an oxygen monitor on either,
Glad you’re feeling good though and hats off to you ( see what I did there) carrying on working, I suppose I could but was told under no circumstances by my chemo manager was a classroom of 30 7/8 year olds the place to be during chemo, and If I’m honest I’m loving being at home and chilling, could get used to it ?, but I know when I’m well again I’ll be bored stiff in a week lol,
Have a great day if you can girls, I’m off for a run after doing injections, taking drugs and breakfast, then probably a nap or 2 ?xxxx Sam
Sorry, half answers lol, mine cost £25 every 6 weeks, but my nails do grow slowly, most of my friends have to have them done weekly or fortnightly, and it depends on who does them and my toe nails have had black shellac on for 6 weeks now and still look great!! Xxx
Hello beauties, I paint on a very opaque pale pink, and this seems to be protecting them. Gloves on at all times with cleaning/washing up of course. The nails get super dry and I rub 'em with bio oil before varnish and this seems to help. And hats off truly to PaulS and all of you who are working … Have a great day, sun’s out at the seaside and the colours are just beautiful., sending love and hugs, Anna.
You aren’t the only one, PaulS, I have never had my nails ‘done’ either! Can’t really see me starting now, either, but I’m sure that I can dig out some black or dark purple nail polish if necessary. Was up in the night with a Raging Sore Throat and apparently a rather low temperature, made partner all worried and then he overslept and was late for work, oops, feel a bit guilty coz temperature fine again now! Anyway, I drove him in so I guess that rebalanced my karma… Please can I have my voice back though, it’s choir night 
HAHAHA!!!Anna the wind description made me burst out laughing! Although it’s getting confusing with all the different sorts of wind varieties we’re discussing here…mine still going strong!!! Sure you’re pleased to hear. Day 8 and waiting to feel better by this eve. My worst side effect by day 6/7 is always a gross ‘chemo’ taste going down the back of my throat !!! Nasty!! If I eat it goes away but then this nasty ‘coating’ comes back. Anyone else? Should go by tomorrow. SORE THROAT,alert Anna. On my first chemo I got it as soon as immunity dropped with a cough. Seemed innocent at first. Got worse and two trips to doc. Please get anti biotics soon if you need them. Mine could have cleared up instantly if I hadn’t left it. My oncologist said they love antibiotics…xxxxxxxx
Oh sorry I’m crap at this…the sore throat comment was for Knackered…I think!!! Xxx
Just a thought…Anyone brave enough to put photos on? I can’t keep picturing gorillas etc nearly called Knackeredness Gorilla!!! Xxxx
Me too Rachael! I’d love to put faces with the stories, would be great, just saying ?xxx
Thanks for the advice about the oil someone suggested almond oil on the workshop yesterday. One lady’s nails were coming off so will definitely get some. Brought some rubber gloves but still in our pack must use them now.
Paul hope u got all the info u need about shellac nails. There is so many different views on what we should and shouldn’t do its hard to know what to take and what to leave. Anyway hats off to you doing 5/6k a day. Really must do something I was running 3x a week up till surgery. Cx
I got some Burts Bees cuticle cream. Rich and smells of lemons. This was recommended. Can get from holland and barrett. I am so lazy since chemo…but know I will get fit after. I’m sure it must make you feel Bette. I suppose we just have to listen to our bodies and do what feels right for us. Xxxxx
Hi, my picture is loaded sideways - sorry, forgot to rotate it. Pam it goes like this - go to my profile - click avatars tab - click on upload an avatar (in pink) - click on browse and choose a picture stored on the computer - click open - crop and save and rotate if necessary - Repeat for thumbnail. Nice to see who we all are … I’m holding my nephew’s adorable wee baby! Cheerio ttfn, Anna.