Feeling a bit glum about things as I failed the blood test test again on Friday. White blood cell count was okay but liver function is low so my FEC 4 has down been postponed for a week. Feeling pretty gutted about it as I had everything planned out around the 3 week cycle, cover at work, seeing friends, work christmas party, preschool party and Christmas itself. Its now looking like I will be spending Christmas feeling pretty rotten which is a bit of a downer. Will now have to have 7 days of injections every cycle as well, they also said my blood pressure was really low, so pretty much feel like my body has failed!
Has anyone got any recommendations for a rubbish liver? Determined to get myself back on track by being super healthy this week! Emma xx
Ha, Paul , Edinburgh! Must be a generic name for centers lol, I had mass excitement that we could have been sat in t waiting room together without knowing it
I start tax a week tomorrow…better or worse than fec? My bloods so low on 2nd course antibiotics, a huge boil on my forehead this time, it looks like a horn!!! Eekkkk thank goodness for hats xxx
HI girls… yes I agree PaulS I’ve heard that Tax is very effective. I haven’t found it worse than fec…the joint pain was a bit intense and moving around was a lot more slow and tiring. Much more physically fatigued on tax but didn’t feel so toxic. Good luck everyone. Felt a bit flat and fed up today…sometimes the days are so long. Having a massage and venturing out into the real world tomorrow so should cheer me up xxxx
Thanks Paul and Rachael
The days do seem sooo long don’t they…we are getting there though I’m looking forward to going back to work
I have 7 days of injections from day 2 of Chemo. I have bit of extra fat on my stomach (until my op) so honestly don’t feel them, the district nurse will come and do them if you’re not keen or perhaps until you felt more confident xx
Have a great day ladies xx
Happy Monday. Hurrah I’m feeling well again. Ater a week in bed knitting with kittens ‘helping’ (what a muddle) I am now up dressed and out and about. What a relief.
Emma- I know about poorly livers - that’s me to a tee. All I can add to other postings is that your liver function will improve, and since they have to take care not to cause liver damage, so the delay is important. I was borderline last FEC (3rd) but repeat bloods showed function was improving, a reduced dose of E (20% down) was ordered and the cocktial went ahead. I wonder if they decided not to postpone ‘cos I’d had the super expensive Emend 120mg… budgets may have prevailed. On Beamies’ great advice, I’ve been doing a bit of detoxing; throughout the day hot water and few drops of lemon juice, I’ve cut right down on the anti-sickness meds (now don’t take anything except Emend) and eating masses of iron-rich stuff like spinach and kale. Seems to be working - constipation gone and less toxic feeling prevailing. All 6 cycles on FEC is known to be very tough indeed on the liver, so they may have to adjust your dose of FEC’c components from time to time, to prevent liver damage, try not to be alarmed at that, it never compromises the FEC effectiveness. Good luck!!
Hope everyone is having a better week, cocktail and Tax girls are all lined up, spirits high and strength good. Went to a restorative yoga session; I was so deeply relaxed and quite out of my body that I failed to spot that the person making the snoring noises was actually me. It was like the frogs chorus and so embarrassing…
Thanks everyone, have ordered some milk thistle from amazon so will get started on that tomorrow! I went for the tablets as I find it easier just to swallow stuff tablets when I’m feeling queasy but I’m guessing they must work the same as the tincture?
I never thought I’d be disappointed not to have chemo, but Im just going to try and use this week to get as healthy as possible. I took the morning off work today and slept in, 10 hours straight which is a bit of a chemo record for me! Clearly was more tired than I realised!
The Christmas thing is making me pretty glum though, I’m guessing quite a few people must be in the same boat? PaulS its looking like I might end up having my 5th FEC on the 22nd so definitely a bit of a write off! Sorry to hear yours is so close to your special birthday as well, you’ll just have to have multiple celebrations instead!
My last tax 23rd, super!! Lol, take care every on this week, mum just left so time to be an adult again, Anna you do make me chuckle!!
Just done first longish run on Tax and it’s definitely affected my breathing differently,quite wheezy.
My back kept me awake a bit last night, throbbing and tight in kidney area, next dose of codeine here I come, all good though considering, later taters xxx Sam
Day 13 tax and first day done substantial walking and felt completely normal. Yesterday had to keep lying down after each task at home! Friend came over and talked till 2 am! Then couldn’t sleep so out of it todAy x
Awww Den you carry on posting!! If it makes you feel any better I’ll have a little moan ?, my mouth is quite painful too, very sore, eating is quite a delicate process, and pretty bloody pointless coz I can’t taste anything anyway lol, and I’m codeines up but my lower back is sore, and random twingy pains popping up, and like Rach said I’m shattered, did supermarket, run, then have wobbed on sofa for rest of day, I think the TAX bit for me is how I sort of imagined chemo, I do realise that our mind plays tricks and we forget how rough we felt at the start, sort of lol,
Off to gargle my Benzydamine mouthwash, it hasn’t let me down yet, bicarbonate on standby!!
Hellooo Beams, hurrah sun out. Will go for a much needed walk, as I absolutely can’t stop FARTING. Cats just looking at me in astonishment and me looking at me ditto …Sorry any delicate Beams out there, but this takes wind to a whole new level; somebody stop me, or at least connect me up to the National Grid to power the South of England …On poorly mouth and gums - Gel Clair fixed my self-induced ulcers, nasty gloopy frogspawny texture, but worked like magic …
Good luck to all today, hope fatigue departs and spirits lift. Love to all and poorly hubby too, TTFN, Anna
Wasn’t looking so promising last night, my feet and ankles were throbbing in bed, was terrible. Anyone had that? Eventually dropped off though and am still here now at 11am.
It’s very odd not knowing what’s coming next, and what I’m capable of. A walk in the sun sounds good, but moving to the sofa does too! Hmm. Tax is proving taxing.
I was crying out for a foot massage last night, that would be nice. But I don’t want to go looking for one, I’d like it to come to me! Sigh.
Anna, self-induced mouth ulcers?? Explain! Surely not.
xx
Haha Anna. Oh yes, been there, I think FEC 2 was my ultimate fart festival, but I’m still going, the amounts of veges I’m eating I suppose it’s inevitable really, lol, and are you eating vindaloo or prodding hot pokers in your mouth to induce ulcers, ?,
Peegee I’ve had the throbbing feet/ankles, back, it’s my day 8 and I’m knackered, I’m keeping the codeine topped up, and feeling better than yesterday, but I’m quite happy to sofa surf and that’s not like me, so I’m listening to my body and doing bugger all ?,
I’ve not got ulcers strangely, my mouth just feels raw, that’s the cells that Tax targets also, have got some odd lumpy bits appeared around tongue, nice!!
Nails/ end of fingers still sore but I think that’s easing a bit today aswell… I won’t cross my fingers cos it’s sore, xxx
HI Beamies…off for genetics meeting today. Nervous. Anna I was laughing with my friend yesterday about the bloody explosive wind! Haha! My poor daughter sleeps with me loads and now she doesn’t bat an eyelash!!! Den don’t get too down…many of us on here are finding it a struggle. Try and push through the bad times as best you can. It Will get better. Xxxxxxx
Morning Beams, well now I know what it’s like to be hit by a bus. Having a better day today though.
Just back from my friends husbands funeral very sad he lost his fight with cancer. A few weeks ago. Leaving two young children.
SE not too bad just bone ache coping on paracetamol every 4 hours and heat pads. One for my back and one on the shoulders. Managing the injections ok. Have a good afternoon girlies. Cx
Sorry you’re feeling low Pam, as Rachael says hope it passes soon, I like to look how far I’ve come rather than how far to go, I know you’ve got a couple more than some of us, I was talking to a lady who has 28 to go, she said as long as it works she’d have a 100,?, me and my mum were impressed lol, maybe take advantage of the many advice and counselling services available to us now, you probably already are, I’ve read a lot of women find them so helpful, some on here I believe??
Sorry about your friends husband Char, that’s why I’m always just so chuffed to wake up each morning, I’m not a smiling, inane, nutter hugging trees or anything, lol, but I really do appreciate every bloomin day, for my sister and many others who’d have given anything to be here, ??
Good luck with your meeting and I might send your daughter a gas mask for Xmas Rachael ??, my daughter just mutters under her breath, I like to think she’s secretly impressed such sounds and aromas can come from me lol,
Friend popping round soon, I might get dressed, then again, I might not ?, xxx Sam
Good morning girls, I’m from Sept 2013 & I like to check in on you all now and again see how you’re all doing.
You all seem a bit down at the moment, it’s mainly the steroid ups followed by the downer when you come off it causing you to feel this way, just wanted to let you know that this is normal we all went through this too but it does get better, you’ve all done so well.
Many of the 2013 girls stopped wearing wigs in April I stopped around the end of April early May ok so I had a bit of a ‘gi Jane’ thing going on but you couldn’t see my scalp anymore :-), I’ve now coloured my hair several times and had multiple trims, I’ve even got to use a hairdryer again now
As I didnt need to have rads I had my recon done in June, just waiting for one more op which is to get good boob reduced to match recon.
Today the first of the September girls (that had rads) is getting her recon done.
So before you know it, you will be giving advice to next September!
Thanks Nikki good to hear how ppl are getting on a year later.
Well today feels so much better I’ve passed from the dark side to the light haha. I didn’t have the steroid tail 16mg for 3 days. Taste returning so tucking into a bowl of frosties yum!
Hope your days a better one. Cx
Hello lovelies, glad to report wind level dropping after very stormy night…how nice to hear from you Nikki - to put this journey into its perspective; a period of temporary sh**, which will END. As you say, come Spring time, we’ll look back on it and all its unpleasantness as done and dusted. Some of us will be going onto rads, some face more surgery and some will go for recon… work to do but we are getting it done. As Sam says, some women face many chemos; at the LGFB event I went to the lady sitting next to me had 21 to go. Not sure what cocktail she was on, but she had much to face…
Am off to get my fake boob inflated this morning. Now there’s a phrase I never thought I’d utter! Have nicknamed it ‘stumpy’, I do hope he doesn’t get carried away and I will emerge as a lopsided Dolly Parton, not the look I was hoping for!
Re my mouth ulcers - all my doing; I foolishly used the electric toothbrush and ripped up my gums …
Onward and upward Beamies, have a good day, Love Anna.
lol, I had mass excitement that we could have been sat in t waiting room together without knowing it 
I’m looking forward to going back to work 