Oh Anna you actually made me burst out laughing! Thanks Nikki will be great to have hair…can’t wait. Wind still going strong here! Sorry Pauls for your frustration…I think I’m coming to terms with allowing myself to take a step back if I can xxxx sorry to hear about your sad experience Char. SAMPS you have such a brilliant grateful attitude xxxx off to see my counsellor soon…all good although so hard to shift butt as usual. Got sixth form meeting at sons school tonight. Haven’t shown my face or wig there since chemo! Come on…I can do it!!! Xxxxx
Injections not a prob, don’t worry about them. Make you a bit achy but to be honest I’m finding that when I’m feeling crap anyway I don’t really care about a few extra aches and pains!!
I wrote a really long and moany post yesterday afternoon and then accidentally deleted it all…couldn’t be bothered to start all over again so you all had a lucky escape from that one! I think we’re all struggling with being positive at this stage aren’t we? Is very hard to shift bum off sofa, and equally hard to shift brain off bleep off mode.
Blood test tomorrow ready for dreaded first Tax on Friday. From what you lot have written it doesn’t sound any worse than the Fec, so fingers crossed.
Evening Sunbeams!
Glad you’re out of the dark side Char, I’ve had a new love of cereal also lol!xx
Anna I hope you and stumpy are bonding well! ? go girl!!! Xx
Rachael I have no doubt, like PaulS said, that you looked lovely, I hope your sons report was just as lovely lol, oh to be in 6th form again, as I wistfully look into space, ?xx
Den I’m so happy your hubby home tomorrow, and cysts!! I’m ok, I am aware that when I’m due my next codeine I can feel my back throbbing, and random pains like someone’s throwing darts at me lol, but it’s not terrible at all, and definitely feeling much better just mainly tired, nail pain eased off today aswell!! Yayyyyy xx ref injections I didn’t really notice any difference, like Ness said it’s just a few more aches to join the party!! Xx
Good luck for bloods tomorrow Ness and don’t forget your steroids PaulS!!! Hope you’re soundo under your electric blanket!! Xxx
Too anyone I’ve forgotten lots of love to you all, it’s quite hard work remembering all this lol, lately I’m lucky if I remember why got up off the sofa,?, lol, chemo brain has really affected me, my friends think it’s hilarious, ?
So Tax1, day 9, is ok, but different to FEC in that Ive needed codeine to curb the pain, might wait in morning to see how I’m feeling without it and go from there, I’m having a pj day with daughter tomorrow, after her driving lesson at 9, she was so happy I’d booked it so early on her day off ??,
Nanight girls lots of love, xxx Sam
Hi Sunnies, I’ve had a normal few days, which has been lovely. Still feeling festive - no decs up yep but made some mince pies yesterday for desert - blooming lovely :smileyhappy: I ate three with loads of cream. Going out for lunch today with my Mum, so just washed my hair, which is still just about hanging on. Can do some creative styling to hide bald bits! I’m hoping to take my daughters to London on Saturday. I fancy a bit of shopping and to go to Winter Wonderland. - Would you girls go on the underground? My next Chemo is on Tuesday? I will have plenty of hand gel and a scarf - What do you think?
The windy posts made me laugh - glad its not just me - I can now give my hubby a run for his money :smileywink: Can’t work out if its the chemo or my increased levels of brocoli and spinage!
Den - Glad to hear your hubby will be home with you soon .
Does anyone still have to have op after Chemo?
NIkki49 - So nice to hear from others who have been through this rubbish.
I’m changing to Fec next week - I am getting really nervous. - I supose its just the unknown. I’ve found Tax not really that bad once the sickness had passed after day 6/7. I just need a kick up the bum to get on with the next lot - Have a good day everyone - take care xx
Think underground ok Nutty as long as not in low immunity. Take a scarf and wrap around nose and mouth if anyone coughs or sneezes!!! Have fun! Den you are one strong woman!!! Think wind is from drugs effect on digestive system as I have it vegetables or no vegetables !!! Back later x
Hello Beamies, good morning and hope you are al having a busy day. Am knitting again, have got a bit obsessed, addicted even, and I WANT MORE WOOL all the time!
Inflation went pretty well - surgeon had a gleam in his eye, but I managed to control his urge to over-inflate me and I used the emla numbing trick so not a sharp as usual … Sam I am attempting to bond with Stumpy, but frankly, it’s not much of a looker; rather short, hard and shiny. Sorry to hurt its feelings, but I have to say that it will be nice to swap it for a better implant/reconstruction at a later date …
Good luck with trips out, underground and avoiding germs, the scarf round the mouth/nose idea is the best plan and wait for trains that are least crowded. I was due to have house guests but I had to put them off due to one of them having a bad Strep throat infection. Can’t believe that they were planning to come anyway, and couldn’t understand why I said no - people are so dim with chemo. Duh! I don’t know about you, but isn’t cancer always in the news right now? It’s rather black and white - we are either being told how much more millions are being poured in, or alternatively, how poor referral rates and the services are. Does anyone ever ask us, the people accessing said services?
Rant over, sending beaming hugs, Anna XXXXXXXXXXXXX
Hello all, hope everyone ok xxx
Steroids today…got lots done this morning! Still managed a little snooze this afternoon…not quite like the marathon ones I’ve been having of late, but glad to have dozed off for a while at least. Hope you remembered yours PaulS!!! Actually, I was so busy remembering to take steroids that I forgot I was also supposed to be drinking loads. Could blame ‘chemo brain’ but unfortunately I’m that forgetful anyway so that’s not new :-/
Great news that husband coming home, Den, you will be much better off feeling crap at home together!
Anna, yes, it does seem as though it’s everywhere, though I wonder whether it’s just that we’re noticing it more, it’s like when you find out you’re pregnant everyone is suddenly pushing a pram!
And though I’ve forgotten who asked, I still have to have surgery afterwards too, definitely Not Thinking About It Yet though!!! And who was it who is having treatment at the Churchill in Oxford, coz that’s where I’ll probably have to go for radio later on (presuming I have to have it), so I’ll be seeing you there, haha! (My chemo is at Stoke Mandeville and everything else is at Wycombe General).
Keeping all fingers and toes crossed for PaulS and myself tomorrow!!!
Ness xxx
Tomorrow’s was to be first Tax so steroids day before unlike FEC. Eating everything I can think of to try to get levels up for tomorrow.
P x
Hello Beams, good morning to all on this cold Friday. Did you hear about the 2 metres of snow fallen in Buffalo NY? Freaky. Best of luck to those getting treatments today/very soon and hope bloods are normal and levels sound. Such a worry, hope any delays are minimal and everyone gets back quickly onto the chemo train …Thank god they check so thoroughly tho’, it’s not your average blood test the too pre- cocktail! Glad hubby is coming home, you must be so relieved.
Inflation is indeed v odd. I had a mastectomy, and knowing that I had chemo and rads to chest wall still to do, surgeons advised delayed reconstruction. This means that a sort of soft bag was put in, and gradually they are inflating it with saline, to stretch the muscle and skin as so much tissue and skin was taken away. Apparently this will save the space for a future reconstruction. Hope it works …
My god I am putting on weight! may be the steroids, ferocious hunger but robs just being at home alot with cupboards full of goodies. I guess spring will be the time to get onto the fitness/diet track and they don’t like us losing weight on chemo do they?I get weighed each time … talking of which, feels like time for a ‘little something’ as Winnie the Pooh would say… TTFN, love Anna XXXXXXXX
Up all night no sleep at all. Steroids. Now waiting for bloods. Fingers crossed. P xx
Morning Sunnies, Good luck today PaulS hope chemo goes ahead. I am going to London - scarf sorted to hide from any germs that may be floating about - need to get out and see a bit of Christmas sparkle, and maybe sample some Mulled Wine:smileyhappy:.
I’ve got a meeting with surgeon on 10th December to disc MX - Hopefully having a doulbe and recon at the same time - being TNBC they were happy with my decision. I’ve also got my appointment through for genetic testing - has anyone else had this?
Off to do some work now, although the mince pies in my kitchen are calling to me- have a good day everyone xx
Oh no, PaulS, my fingers are so crossed for you xxxx I was up all night too, feel like crap, hate steroids 
Yes, Pam, I do have to have surgery after chemo. I had some lymph nodes out already but the lump was too big so the chemo is shrinking it first.
I’m off to have a ‘little something’ too before heading off to be blitzed. See you later!!
Ness xx
Oh so sorry PaulS!! What a pain, hope it’s good news today, if not then rest and repair until it is xx
Good luck ness today, and Anna you enjoy that grub, that’s what my whole unit say everytime, feed that body, it’s what it needs to mend, I’ve said it before but my onc described it to me as the body running a marathon everyday and having to repair that much damage everyday, his motto is eat, rest and repair but keep active, I will be going for a nice long walk this afternoon, then going to watch some films, feeling ok today, I cut codeine by half yesterday and going to stop them today, fingers crossed!! ?
So happy you’ve got your man home den, enjoy!! And Pam glad your feeling better too, sure is a rollercoaster this cruddy ride eh!!
Nutty don’t worry about the FEC too much, I found it so much better than I imagined ?, as long as you get the queen of sickness med Emend I hope you’ll be fine! Xx
Best of luck to everyone today, I suppose I should get up really, or should I, ?xxx lots of love Sam
Yep - I can’t agree strongly enough Sam! Emend has totally changed my life. Am no longer taking anti-sickness meds every 2 hours … just 3 little pills stop the quease and throwing up over the whole three weeks. So pricey but so effective. A XX
I have been given Emend for tax - and I’m ok whilst I take them for the three days but then the sickness kicks in after that - but it only lasts for 3/4 days - I’m just hoping it will be the same on Fec. I wonder why you can’t have another three of these magic Emend pills? I’ve been told to go back to chemo ward if I’m really sick with fec to have fluids. I had morning sickness (hyperemesis gravidarum) and had to go into hospital every few days for fluids. The fluids did always make me feel much better so hopefully if I do suffer with Fec - they will work again. After the last chemo I lost nearly a stone. Onc wasn’t happy with me - but I can put it back on quickly when able to eat again - the mince pies help:smileyhappy: xx
Haha! I think the fact that each Emend pill costs about £600 may have something to do with it, it’s all about the money, sad but true!!
Have a lovely day in town today Nutty, Christmas Sparkle all the way xxx
Ooh and mulled wine!! Lovely!! I’m going to have a couple of cheeky baileys tonight, the bottle has been staring at me for long enough, it’s time!!! Xxx
Sitting here enjoying a large bowl of carrot and coriander soup and a cheese roll catching up with yr news.
Pam I’m due to have surgery after chemo too. Picked up a good book from Macmillan called understanding breast reconstruction at the chemo unit very informative.
Fingers X’d for u today Paul.
Enjoy London nutty as long as your aware of what’s going on around you you’ll be fine. Live goes on.
Quite a bit of bone pain this morning so glad I brought a heated pillow and wheat bag for my shoulders they’ve helped sooo much.
Enjoy ur day ladies one more done. Cx
Well prepared myself for s delay and overnight neutrophils went from 0.54 to 1.45 so it went ahead. Now home and had nice warm bath as freezing and on couch sipping ginger tea, hope everyone’s treatments went ahead today. And that we have minimal SEs! I asked why only one injection for me and was told that this was the new way of doing it, so nurse coming at 4 tomorrow to show me how to do it and then I can do it myself. P xx
Oh PaulS I’m so pleased!! Have a cosy, warm evening and relax, well as much as possible lol, lot of love xxx Sam