September Sunbeams 2014

Paul I’ll be up 27th to the 30th of august my mate lives in Methil. Is that near you? X

Char it is about 30 minutes from me. I would love to come and meet you for coffee. If you PM me nearer the time we can make arrangements.
P xx

It’s a date then! Will send my mobile number x

Hello Beams, quite right - it is quiet on the forum, and I hope everyone is out and about and having a good summer. I  love caravans Den! We had  the BEST holidays in them as children, visiting the West Coast of Scotland. So beautiful, and often raining, so cosy tucked up in the bunks listening to it hammering down. I have a little fantasy that husband and I will head off with a bed in the back of our people-mover - it’s big enough! Take to the high road! Allotment has gone crazy and it’s beans beans beans! Had my one year check, all ok, lovely cheery onc, who explained everythuing so carefully. I will need a minor gynae procedure, but tey think it’s nothing sinister. They are still faffing about deciding whether to mammo, ultrasound or mri me … my tumour was a bit difficult to see, despite its huge size and am still waiting to get gene test, I’d like to get it over with. These appointments have dragged me back a bit, and I’ve been very preoccupied with it all. Hope it isn’t always going to be this way. What a year and aren’t we amazing for getting through it? Love to you all, Anna :) 

Great Char. Look forward to seeing you. P xx

Hi beamers, remember me?
So nice to drop by and see the old crowd still conversing, what a lovely bunch you are.
It’s a year since my diagnosis, it feels longer! Had an appointment a couple of weeks ago, all was fine, but I’m actually going back to the breast clinic again tomorrow as I’m unhappy about how my armpit is feeling. Hard to know if I’m being paranoid, so going to ask for an ultrasound at least.

I’ve been getting back to work slowly, but not overdoing it. I still get very tired quite often. I have been enjoying spending more time with my 4yo son, he’s a total dreamboat, starting school in September, can’t believe it.

Anyway girls, thought I’d say hi, I think of you often.
xx

Hello Peegee, lovely to hear from you. Hope all’s well, and enjoy the summer. Anna :) 

Thanks beamcakes

Freaking out a bit about tomorrow’s appointment. Will let you know how it goes.
Eek!
xx

Good luck peegee, hope all’s well in the armpit, and they can put your mind at rest tomorrow.You are doing the right thing - always best to report any concerns, then they can tell us it’s all OK!! I’ve had a strange feeling in my neck, not a swelling but a pulling feeling, I actually plucked up the courage to ask the onc to feel it, and he’s found nothing to worry about. I guess we are going to feel a bit hyper-sensitive for a while, worrying about any little swollen gland or strange sensation, especially on the ‘bad’ boob side … but i’m told that it does improve with time. Thinking of you all, and beaming the positive vibes, enjoy the hols, Anna XXX

meant today… brain’s on holiday already! Anna

Dr doesn’t think there is anything wrong, he couldn’t find anything. I got upset because I can feel at least 3 lumps. If he’d felt them and said they’re nothing, that would be different, but as he couldn’t feel them at all, it means I’m no better off than I was.
He saw I was anxious and said I could have an ultrasound, but not today. They are so busy. They gave me an appointment for 2 weeks time. Hmm. Lovely nurse saw I was
upset and worried and had a word. They are going to squeeze me on the end of this Wednesday’s list!!!

Half of me thinks they know what to look for, they are probably right. But the other half is terrified and thinks things can get missed. Another 48 hours to get through!!!
Sigh!
xx

How horrible, it sounds upsetting…Did he do a proper feel of the area? Looking at it as an outsider, it sounds reassuring cos they do look for these things all the time and they know how important it is. I thought that I had a lumpy area in the mastectomy area, but onc said no - there’s nothing there. As they aren’t worried, then I hope that you can find a way not be too worried either. Easy to say, hope I don’t sound glib, it’s all pretty frightening. You’ve done your bit in reporting it, I hope you can put it away a bit. That ultrasound will be reassuring too. Good luck, Anna. :slight_smile: :slight_smile: :) 

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He did have a proper feel, but the position I was in made them hard to find.
I feel much calmer than I did this morning, chances are it’s all fine. Trying to stop freaking out!!

We are told to look for changes, and when we report lumpy changes, they suddenly don’t seem worried. Wtf???

xx

How did scan go Peegee? All ok I hope? Hopefully the weather’s warming up, as we are off to Cornwall for 2 weeks. I am very fatigued right now, had a vile vomiting bug TWICE. Really knocked me out, the immune system clearly has taken a knock. Hope everyone’s well, love Anna

Hi sunbeams

had the scan. 

She agreed my anatomy is a mess and it’s hard to understand all the lumps and bumps. But she couldn’t see anything sinister and it’s likely I’ve had an infection causing gland swelling (sore throat a couple of weeks ago).

 

While I was at hospital I signed up for the Breast Cancer Care Moving Forward course!! And seeing my GP tomorrow too. Need to sort out the mental side of things I think. I can’t help feel I’m waiting for it to come back rather than celebrating it being gone. Bah!

 

xx

 

 

Well done for getting through it Peegee, and what a massive relief that they couldn’t see anything suspicious on scan. Counselling could well help to put a positive frame on things. I found that it gave me permission to wail and moan, and  then to feel very proud of surviving the year… we are amazing! Love Anna. 

Pam and Den - so sorry you are having such a hard time. This is c**p! You both sound fed up and that’s not surprising at all. I do hope it gets sorted out for you both.
Have you tried Genie bras? BHS - not expensive and very comfortable and give support but no pressure. Removable pads. I still use them at night when sleeping. P xx

Hi Pauls - like Den the bra sits in scar so it’s outting pressure just where I don’t want it.  I now also,have some whitish lines punter skin on breast which is a reddish.  Nipple looking yellow ish and greenish!  Hoping so see cancer doctor or nurse this week.

 

seeing general surgery doc tomorro re infected scar cysts!

 

my husband and I really now need a break as we’ve not been away for three years.   Roll on sept.

 

px

Good to hear Paul. Shame we weren’t able to get together next time maybe.
Hope everyone is well will check in soon heading home today xx

Hello everyone, hope all’s well and coping with the appointments. Mine are all this week - mammo, surgical and gynae - not looking forward to that one. Am back from 3 week’s holiday in Cornwall, which was lovely.

 

I was wondering, as I sit here with the second broken tooth in 2 months (ouch), that it seems v unfair that we have to pay for dental treatment after chemo. We get a medical exemption thank goodness, but not a dental one, despite the treatment having a detrimental effect on teeth and gums. Anyone else agree? Shall I get a petition up and running?

Love from Anna X